Issues in Genetics

Online Bioethics Resources

National Human Genome Research Institute (NHGRI)

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National Institutes of Health (NIH)

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U.S. Department of Health and Human Services (DHHS)

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U.S. Department of Energy (DOE)

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Other Resources

  • American Academy of Pediatrics: Ethical Issues With Genetic Testing in Pediatrics
    pediatrics.aappublications.org/cgi/content/full/107/6/1451
    Recommendations on newborn screening and genetic testing in children
     
  • bioethics.net
    www.bioethics.net
    Links to articles on bioethics and genetics
     
  • Bioethics Resources on the Web
    bioethics.od.nih.gov
    Links to bioethics resources
     
  • CDC Public Health Genomics
    http://www.cdc.gov/genomics/
    Publications: Ethical, legal, and social implications
     
  • The Council for Responsible Genetics
    www.councilforresponsiblegenetics.org/
    Information on the social, ethical and environmental implications of genetic technologies
     
  • DNA Patent Database
    dnapatents.georgetown.edu/
    Searchable database of U.S. DNA-based patents issued by the USPTO
     
  • Ethical, Legal & Social Issues
    www.ornl.gov/sci/techresources/Human_Genome/elsi/elsi.shtml and
    www.genome.gov/10001618
    Information, articles and links on a wide range of issues
     
  • Ethics in Medicine
    depts.washington.edu/bioethx/
    An electronic resource at the University of Washington School of Medicine
     
  • The Ethics of Synthetic Biology and Emerging Technologies
    www.genome.gov/27542921
    A report to the Presidential Commission on the Study for Bioethical Issues on synthetic biology with an accompanying press release and FAQ.
     
  • Genetics & Ethics
    genethics.ca
    Information on the social, ethical and policy issues associated with genetic and genomic knowledge and technology
     
  • Genetics and Public Policy Center
    www.dnapolicy.org
    Information on genetic technologies and genetic policies for the public, media and policymakers
     
  • Genome Technology and Reproduction: Values and Public Policy and The Communities of Color & Genetics Policy Project
    www.sph.umich.edu/genpolicy/
    Two subprojects combined to form a five year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology.
     
  • Georgetown University: National Information Resource on Ethics & Human Genetics
    bioethics.georgetown.edu/nirehg/
    Search engine for literature on specific issues.
     
  • The Hastings Center
    www.thehastingscenter.org
    The Hastings Center is an independent, nonpartisan and nonprofit bioethics research institute founded in 1969. The Center's mission is to address fundamental ethical issues in the areas of health, medicine, and the environment as they affect individuals, communities, and societies.
     
  • HumGen International - Database
    www.humgen.org/int/
    Access to a comprehensive international database on the legal, social and ethical aspects of human genetics
     
  • International Bioethics Organizations Database
    bioethics.georgetown.edu/databases/organizations/index.html
    Part of the NIREHG, a database of bioethics organizations that have a focus on bioethics or an area related to bioethics.
     
  • National Information Resource on Ethics & Human Genetics, Kennedy Institute of Ethics
    kennedyinstitute.georgetown.edu/
    The NIREHG, funded by the NHGRI and National Institutes of Health, supports information services - for example, bibliographic databases searchable via the Internet, the full text of online annotated bibliographies, and print publications - on topics related to ethics and human genetics
     
  • National Workrights Institute
    www.workrights.org
    A non-profit organization that works to protect the rights of employees in the workplace, including genetic testing of employees.
     
  • NCSL - Genetics Overview
    www.ncsl.org/default.aspx?tabid=14524
    Status of legislative actions and acess to policy briefs on genetic issues of concern to state legislators
     
  • The Presidential Commission for the Study of Bioethical Issues
    www.bioethics.gov/
    Information on current bioethical issues
     
  • Scope Note Series (Kennedy Institute of Ethics/ Georgetown University)
    bioethics.georgetown.edu/publications/scopenotes/
    Information on various aspects of genetics and ethics
     
  • THOMAS Legislative Information on the Internet
    thomas.loc.gov/
    Searchable database of U.S. legislation
     
  • Your Genes Your Choices
    ehrweb.aaas.org/ehr/books/index.html
    Describes the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by the project

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Last Updated: February 6, 2014