Online Health and Support Resources

Genetic Counseling, Support and Advocacy Groups Online

  • Clinic Directory
    www.genetests.org/clinics/
    Database of genetics clinics, searchable by location, population served and specialty. Hosted by GeneTests.
     
  • Coalition for Genetic Fairness
    www.geneticfairness.org/index.html
    Advocacy group for federal legislation regarding genetics discrimination through the National Partnership for Women & Families.
     
  • Find a Genetic Counselor
    nsgc.org/p/cm/ld/fid=164
    A searchable database of genetics counseling services. Search by location, name, institution, type of practice or specialty. Hosted by the National Society of Genetic Counselors.
     
  • The Genetic Alliance
    www.geneticalliance.org
    A nonprofit health advocacy organization that transforms health through genetics, promoting an environment of openness centered on the health of individuals, families, and communities.
     
  • Genetic Centers, Clinics and Departments
    www.kumc.edu/gec/prof/genecntr.html
    Comprehensive resource list for genetic counseling, with links to genetic centers and clinics, associations and university genetics departments. Hosted by the University of Kansas Medical Center.
     
  • Genetics and Rare Conditions Site
    www.kumc.edu/gec/support
    Information on genetic conditions and birth defects for professionals, educators and individuals, including national and international advocacy and support groups. Comprehensive list of resources organized by disease/condition. Hosted by the University of Kansas Medical Center.
     
  • National Organization for Rare Disorders
    www.rarediseases.org
    Wide array of genetic-related information
     
  • Waisman Center - University of Wisconsin-Madison
    www.waisman.wisc.edu
    Dedicated to the advancement of knowledge about human development, developmental disabilities and neurodegenerative diseases.