Genetic Counseling, Support and Advocacy Groups Online
- Clinic Directory
Database of genetics clinics, searchable by location, population served and specialty. Hosted by GeneTests/GeneClinics.
- Coalition for Genetic Fairness
Advocacy group for federal legislation regarding genetics discrimination through the National Partnership for Women & Families.
- Family Village
- Find a Genetic Counselor
A searchable database of genetics counseling services. Search by location, name, institution, type of practice or specialty. Hosted by the National Society of Genetic Counselors.
- Gene Tests/Gene Clinics
Comprehensive information on genetic testing and genetic counseling. Includes Educational Materials:
- What is Genetic Testing?
- Who Should Have A Genetics Consultation?
- What is a Genetics Consultation?
- The Genetic Alliance
A nonprofit health advocacy organization that transforms health through genetics, promoting an environment of openness centered on the health of individuals, families, and communities.
- Genetic Centers, Clinics and Departments
Comprehensive resource list for genetic counseling, with links to genetic centers and clinics, associations and university genetics departments. Hosted by the University of Kansas Medical Center.
- Genetics and Rare Conditions Site
Information on genetic conditions and birth defects for professionals, educators and individuals, including national and international advocacy and support groups. Comprehensive list of resources organized by disease/condition. Hosted by the University of Kansas Medical Center.
- Mountain States Genetic Network (MoST GeNe)
Information on genetic counseling, including:
- Indications For Genetic Counseling Referrals.
- What to Expect from a Genetics Consultation.
- National Organization for Rare Disorders
Wide array of genetic-related information
- Online Genetic Support Group Directory
Alphabetic index of genetic disorders with links to associations, support groups and disease-related resources. Hosted by the Mountain States Genetic Network (MoSt).
Last Updated: March 14, 2012