Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
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Alaska | 2021 State Bills Alaska 2021 SB 116 | Privacy | Died | Establishes the Consumer Data privacy Act. Requires businesses to notify consumers before the collection of personal information. Consumers may opt out of the sale of personal information. Businesses must maintain privacy policies available online describing consumer's privacy rights such as the designated methods in which the consumer can request access or deletion of personal information. Biometric information, including deoxyribonucleic acid, is considered personal information. Carries over to 2022 session. |
Utah | 2020 State Bills Utah 2020 HB 265 | Privacy | Died | Requires government agencies to provide an annual report to the state auditor detailing the collection, use, and disclosure of personally identifying information, including DNA. Died. |
Florida | 2010 State Bills Florida 2010 HB 1593 | Employment Nondiscrimination | Died | This bill prohibits appointments, terminations, assignments, and maintenance of status, compensation, privileges and other terms and conditions of employment in the state personnel system based on genetic information. Measure failed. |
Wisconsin | 2019 State Bills Wisconsin 2019 SB 28 | Health Insurance Nondiscrimination | Died | In selecting patients with whom to enter into a direct primary care agreement, a health care provider may not discriminate on the basis of genetic information. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Massachusetts | 2019 State Bills Massachusetts 2019 H.1344 | Other Topics | Died | Prohibits local or state administrative, legislative or regulatory body or instrumentality to from engaging in a discriminatory land use practice, including practices based on genetic information. Accompanied a study order, see H5081. Died. |
Mississippi | 2016 State Bills Mississippi 2016 SB 2775 | Privacy | Died | Enacts the Parents Matter Act. Parental rights include the right to be notified in advance and to refuse or to consent in writing before any record of the minor child's blood or deoxyribonucleic acid (DNA) is created, stored or shared, with some exceptions. 2/23/2016 (S) Died In Committee. |
New Jersey | 2018 State Bills New Jersey 2018 AJR181 | Other Topics | Died | Establishes New Jersey Pharmacogenomics Commission. Died. |
New York | 2015 State Bills New York 2015 A312 | Use of Residual Newborn Screening Specimens | Died | Requires parental consent for newborn DNA storage. The bill states that no test, DNA, blood spot, or other genetic information may be retained with an infant's identifying information other than for the purpose of newborn screening without parental consent. Died. |
Oklahoma | 2013 State Bills Oklahoma 2013 HB 1342 | Health Insurance Nondiscrimination, Research | Died | A health carrier offering health benefit plans providing individual market health_insurance_coverage may not (1) impose a pre-existing condition exclusion on the basis of genetic information, (2) establish rules for the eligibility, including continued eligibility, of any individual to enroll for coverage based on genetic information, (3) adjust premium or contribution amounts for an individual on the basis of genetic information concerning the individual or a family member of the individual, (4) request or require an individual or a family member of an individual to undergo a genetic test, or (5) request or require or purchase genetic information for underwriting purposes or to determine eligibility. A health carrier may request, but not require, that an individual or a family member of the individual undergo a genetic test if the request is made pursuant to research that complies with Part 46 of Title 45, Code of Federal Regulations or equivalent federal regulations and any applicable state or local law or regulations for the protection of human subjects in research and other criteria are met. Died. |
Arizona | 2020 State Bills Arizona 2020 HB 2881 | Privacy | Died | Amends the state genetic privacy law. Declares genetic testing and the information derived from it, whether in the possession of a public or private entity, to be the exclusive private property of the person tested. Died. |
Virginia | 2007 State Bills Virginia 2007 HB 2121 | Health Insurance Nondiscrimination | Died | This bill prohibits the treatment of genetic information as a preexisting condition in the Small Employer Health Insurance Exchange in the absence of a diagnosis of the condition related to such information. Measure failed. |
Florida | 2019 State Bills Florida 2019 HB 697 | Health Insurance Nondiscrimination | Died | Creates Healthy Florida Program for purpose of comprehensive universal single-payer health care coverage. The Board of the program must establish requirements and standards to promote nondiscrimination, including based on genetic information. Died. |
Kentucky | 2017 State Bills Kentucky 2017 HB 483 | Health Insurance Nondiscrimination | Died | Makes technical changes to state statutes that prohibit the use of pre-existing condition exclusions based on genetic information. Clarifies that the prohibition applies to all insurers that offer any health benefit plan coverage. Died. |
Maryland | 2019 State Bills Maryland 2019 SB 556 | Employment Nondiscrimination | Died | Requires managers and supervisors in the Legislative and Executive branches of State government to immediately report certain incidents of workplace bullying, including bullying based on genetic information. 3/11/2019 Unfavorable Report by Finance; Withdrawn. |
Maryland | 2021 State Bills Maryland 2021 HB 148 | Privacy | Died | Amends statute requiring a business that maintains personal information of an individual residing in the State to implement and maintain certain security procedures and practices. The bill adds the following to the definition of personal information: genetic information with respect to an individual, including the genetic sample of an individual; the genetic test of an individual; the genetic test of an individual's family member; the manifestation of a disease or disorder in a family member of an individual; any request for and receipt of genetic counseling, or genetic education; and any information derived from genetic information with respect to an individual. In the Senate - First Reading Finance. Died. |
Minnesota | 2011 State Bills Minnesota 2011 HF 1357 | Other Topics | Died | This bill requires any person who provides a specimen collection kit to a resident of Minnesota for the purpose of collecting genetic material to perform a genetic test to first provide the resident with the disclosure, as described in the legislation. The bill also requires a study to determine which companies and laboratories are providing direct-to-consumer genetic tests to Minnesota residents. Measure failed. |
Montana | 2017 State Bills Montana 2017 HB 356 | Health Insurance Nondiscrimination | Died | Health insurance issuers offering individual health_insurance_coverage may not establish rules for eligibility, including continued eligibility, of any individual based on a health status-related factor, including genetic information, of the individual or a dependent of the individual. Died. |
New York | 2007 State Bills New York 2007 S3449 | Health Insurance Nondiscrimination | Died | This bill prohibits group or blanket policies that cover 51 or more employees for hospital, medical, major medical, or similar type comprehensive coverage from excluding members or dependents or establishing rates based on predisposing genetic characteristics. The bill also prohibits health insurers from requiring or using tests for or information about predisposing genetic characteristics for underwriting. The same restrictions are imposed upon hospital service corporations, health services corporation and medical expense indemnity corporations covering 51 or more employees. Measure failed. |
New York | 2019 State Bills New York 2019 A7736 | Privacy | Died | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information. Personal information includes biometric information such as DNA. Died. |
Tennessee | 2020 State Bills Tennessee 2020 HB 752 | Privacy | Died | Allows the recipient of an organ transplant and referral hospital to examine all genetic records of the donor or prospective donor unless prohibited by any other law. Died. |
Colorado | 2020 State Bills Colorado 2020 HB 1144 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. 02/13/2020 House Committee on State, Veterans, & Military Affairs Postpone Indefinitely. |
West Virginia | 2013 State Bills West Virginia 2013 SB 45 | Privacy | Died | The Division of Motor Vehicles or other state agency or department charged with motor vehicle registration or operation, the issuance or renewal of driver licenses or the issuance or renewal of any identification cards, must modify applications to include an exemption for a biometric and social security number religious exemption. Biometric data is defined to include DNA and RNA. Died. |
Idaho | 2014 State Bills Idaho 2014 HB 511 | Privacy | Died | Regulates the collection, possession and disclosure of biometric identifiers, defined to include human DNA, by private entities. Died. |
Maryland | 2009 State Bills Maryland 2009 SB 57 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill provides an individual with a right to civil if the state genetic nondiscrimination insurance statutes are violated. Measure failed. |
Massachusetts | 2020 State Bills Massachusetts 2020 S.2564 | Other Topics | Died | Requires that certain state entities make a dedicated effort to encourage diversity and advance equity based on race, color, religious creed, national origin, sex, gender identity, sexual orientation, genetic information, ancestry, disability, and language in any recommendations, policies, programs and initiatives developed. 1/5/2021 In Senate. No further action taken. Died. |
Missouri | 2007 State Bills Missouri 2007 SB 325 | Employment Nondiscrimination | Died | This bill authorizes designated administrators to take action if it is determined that a person has engaged, is engaging in, or has taken a substantial step toward engaging in an act of discrimination prohibited under the state genetic nondiscrimination laws that applies to employers. Measure failed. |
New Jersey | 2020 State Bills New Jersey 2020 AJR 155 | Other Topics | Died | Establishes New Jersey Pharmacogenomics Commission. Died. |
New York | 2017 State Bills New York 2017 A6878 | Research | Died | Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Died. |
Oregon | 2017 State Bills Oregon 2017 HB 2232 | Health Insurance Coverage | Died | A health benefit plan offered in Oregon must provide coverage for BRCA testing, if indicated. Died. |
California | 2017 State Bills California 2017 AB 728 | Health Insurance Coverage | Died | Prohibits a health care service plan contract or a health insurance policy that covers prescription drug benefits from denying or otherwise limiting coverage of a genetically targeted drug for the treatment of Duchenne muscular dystrophy under specified circumstances. Died. |
Virginia | 2020 State Bills Virginia 2020 HB 473 | Privacy | Died | Gives consumers the right to access their data and determine if it has been sold to a data broker. Requires a controller, defined in the bill as a person that, alone or jointly with others, determines the purposes and means of the processing of personal data, to facilitate requests to exercise consumer rights regarding access, correction, deletion, restriction of processing, data portability, objection, and profiling. The measure also (i) requires transparent processing of personal data through a privacy notice, (ii) requires controllers to disclose if they process personal data for direct marketing or sell it to data brokers, and (iii) requires controllers to conduct a risk assessment of each of their processing activities involving personal data and an additional risk assessment any time there is a change in processing that materially increases the risk to consumers. The measure applies to any legal entity that conducts business in the Commonwealth or produces products or services that are intentionally targeted to residents of the Commonwealth and that (a) controls or processes personal data of not fewer than 100,000 consumers or (b) derives over 50 percent of gross revenue from the sale of personal data and processes or controls personal data of not fewer than 25,000 customers. Sensitive data includes genetic or biometric data. Died. |
Florida | 2021 State Bills Florida 2021 HB 969 | Privacy | Died | Creates the Florida privacy Protection Act. Requires collectors to provide notice to consumers about data collection and selling practices. Provides consumers right to request data be disclosed, deleted, or corrected and to opt-in or opt-out of sale or sharing of such data. Provides nondiscrimination measures, methods for requesting data and opting-in or opting-out of sale or sharing of such data, private cause of action, enforcement, and jurisdiction. Personal information is defined to include biometric information such as DNA. 4/30/21 Died in returning messages. |
Louisiana | 2012 State Bills Louisiana 2012 HB 637 | Employment Nondiscrimination | Died | This bill changes the person in charge of promulgating regulations for genetic monitoring from the executive director of the Louisiana Workforce Commission to the chairman of the Louisiana Commission on Human Rights. Measure failed. |
Maryland | 2020 State Bills Maryland 2020 HB 784 | Privacy | Died | Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died. |
Massachusetts | 2013 State Bills Massachusetts 2013 H.974 | Health Insurance Coverage | Died | Individual or group policies of accident and sickness insurance, except policies providing supplemental coverage to Medicare or to other government programs, delivered, issued or renewed by agreement within or without the commonwealth must provide coverage for breast cancer screening technology, including, but not limited to, Magnetic Resonance Imaging (MRI) for high risk women. Coverage must be provided not less than once annually to women 25 years and older. High risk women, include, but are not limited to women who test positive for BRCA 1 or 2 or who have one or more first degree relatives that have tested positive for BRCA 1 or 2. Reporting date extended to Thursday July 31, 2014, pending concurrence. Died. |
Illinois | 2021 State Bills Illinois 2021 HB 2880 | Privacy | Died | Amends the Personal Information Protection Act. Provides that individuals and entities have intellectual property rights in their digital identity assets. Provides for the payment of royalties to individuals and entities for access, for the purpose of commercial advertising, to their digital assets. Digital assets include, but are not limited to, information accumulated regarding an individual's or entity's personal information. Personal information includes medical history such as RNA and DNA profiles and genetic history. Carries over to 2022 session. |
Minnesota | 2019 State Bills Minnesota 2019 SF 1883 | Other Topics | Died | Establishes a pharmacogenetics task force. Died. |
New Hampshire | 2014 State Bills New Hampshire 2014 HB 1586 | Privacy | Died | This bill establishes procedures for protecting the privacy of student and teacher personally-identifiable data, including DNA. As of October 30, 2014, Interim Study Report: Recommended for Legislation in 2014 (Vote 15-0). |
New York | 2011 State Bills New York 2011 A2325 | Health Insurance Coverage | Died | This bill requires accident and health insurance policies to cover the cost of genetic testing of people with a family history of cancer when his or her physician determines that there is a significant risk of developing cancer. Measure failed. |
New York | 2020 State Bills New York 2020 S4109 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
Texas | 2017 State Bills Texas 2017 SB 281 | Privacy | Died | Limits the use of biometric identifiers by governmental bodies. Biometric identifiers are defined to include a DNA sample. Died. |
Connecticut | 2021 State Bills Connecticut 2021 HB 5364 | Other Topics | Died | Creates a penalty for the unauthorized public photography of an individual with a genetic or medical condition. Died. |
Wisconsin | 2011 State Bills Wisconsin 2011 AB 289 | Employment Nondiscrimination | Died | This bill would eliminate the compensatory and punitives damages for acts of employment discrmination or unfair honesty or genetic testing. Measure failed. |
Illinois | 2015 State Bills Illinois 2015 HB 887 | Privacy | Died | Requires health insurance providers to protect health information related to sensitive services. A 2016 House Amendment would define sensitive services to include genetic testing. Died. |
Maryland | 2014 State Bills Maryland 2014 SB 227 | Other Topics | Died | Repeals a prohibition on advertising for or soliciting business related to direct to consumer genetic testing in the State. Died. |
Florida | 2010 State Bills Florida 2010 SB 2268 | Employment Nondiscrimination | Died | This bill prohibits appointments, terminations, assignments, and maintenance of status, compensation, privileges and other terms and conditions of employment in the state personnel system based on genetic information. Measure failed. |
Wisconsin | 2019 State Bills Wisconsin 2019 SB 366 | Employment Nondiscrimination | Died | Allows the Department of Workforce Development or an individual who is alleged or was found to have been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court in addition to or in lieu of filing an administrative complaint, with some exceptions. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Indiana | 2019 State Bills Indiana 2019 SB 204 | Health Insurance Nondiscrimination | Died | Specifies that a state employee health plan, a policy of accident and sickness insurance, and a health maintenance organization contract must provide for availability, renewability, premium rating, and coverage without regard to health status, including genetic information. Died. |
Maryland | 2017 State Bills Maryland 2017 SB 660 | Research | Died | Requiring hospital administrators to provide patients with a specified patient's bill of rights. The bill of rights addresses patient participation in research. Died. |
Michigan | 2019 State Bills Michigan 2019 SB 333 | Employment Nondiscrimination | Died | Requires employers of 50 or more individuals to post a notice that wage discrimination based on genetic information is prohibited under federal law. Died. |
Last updated: February 8, 2024