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Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society​ at the National Human Genome Research Institute.
… development grants related to the ethical, legal and social implications of genomic research. Dr. Kaufman serves … … Dave Kaufman, Ph.D. … Dave Kaufman, return of results policy, ethical legal and social implications, genomic information, citizen science … …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data management practices would help support NIH's … NIH chief of staff and associate director for science policy, and NHGRI director, Dr. Eric Green. Additionally, …
Staff
Dr. Laura Koehly is the chief of and senior investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.​
… M. Koehly, Ph.D., is chief and senior investigator in the Social and Behavioral Research Branch, National Human Genome … Dr. Koehly's research focuses on developing and applying social network methods to the study of complex social systems, such as families and communities. Her …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Structures and Values Genomics and the Physical and Social Environments Genomics and Social Justice Shifting Societal Definitions, Beliefs and … the Rights of Individuals and Groups Law, Regulation and Policy Governing Genomics Industry, Commerce and Economics … …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… of the research participants (see Genomic Data Sharing Policy  below). In addition, NIH issues Certificates of … Database . The Common Rule Published in 1991, the Federal Policy for the Protection of Human Subjects, also known as … for Genomics Research Resource . NIH Genomic Data Sharing Policy The NIH Genomic Data Sharing Policy  sets guidelines …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… date for the new NIH Data Management and Sharing (DMS) Policy occurred last month – January 25, 2023. The DMS Policy … diverse research communities; and the ethical, legal, and social considerations should be integrated throughout the … Birney Roundtable discussion: The promise and perils of social and behavioral genomics Creating the fourth chapter of …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … Carrie D. Wollinetz, Ph.D., Associate Director for Science Policy, National Institutes of Health … Related Content … … way we manage data related to the NIH Genomic Data Sharing Policy. ​ … Eric Green, Genome Data Sharing Policy, privacy, …
Research Funding
Applications demonstrating excellent grantsmanship, grant mechanisms and research methodologies common to ethical, legal and social implications research.
… Lessons, the Domestic Legal Landscape, and Options for U.S Policy Anya Prince 2015 Summary Statement Full Application Ethical, Legal, and Social Implications of Translational Psychiatric Genomics … Trials of Germline Gene Editing: Ethical, Legal, and Social Issues Bryan Cwik 2018 Summary Statement Full …
News and Events
Discover the secrets hidden in your genome through illustrations, videos, engaging stories, and the latest science that impacts your life.
… The following social media channels are maintained by NHGRI's Office of … institute. … On Instagram, LinkedIn, Facebook, X and other social media channels, the National Human Genome Research … intend. For additional guidance, please read our Privacy Policy . … NHGRI Office of Communications Social Media …
News Release
Researchers and clinicians are sequencing human genomes faster than ever, so considering the societal implications of genomic data is even crucial.
… Me Anything" (AMA) with ELSI program directors and NHGRI policy experts. Our hosts were Lawrence Brody, Ph.D., … for all individuals and populations.The Ethical, Legal and Social Implications (ELSI) Research Program at the National … … Related Content … Reddit AMA: Ethical, legal and social implications of genomics research … Researchers and …