Discuss these questions with your doctor or clinical trial team.
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- What may be the benefits of sickle cell gene therapy?
- Will gene therapy cure my sickle cell disease?
- What are the risks of sickle cell gene therapy?
- Why is chemotherapy used in gene therapy?
- Is there a risk of cancer from gene therapy?
- Can I have children after I have gene therapy?
- Can I pass my sickle cell gene to my children if I have gene therapy?
- How is eligibility determined for sickle cell disease gene therapy?
- If I participate in a gene therapy clinical trial, what happens to the treatments I am currently taking for my sickle cell disease (e.g., hydroxyurea, pain medications)?
- What are the steps in the gene therapy process?
- How will participating in a gene therapy clinical trial affect my physical and mental health?
- What are the costs to participate in a sickle cell gene therapy clinical trial?
- What type of health care will I need after sickle cell gene therapy?
- How long will I be followed after I complete my sickle cell gene therapy?
- How does the clinical trial team know if the gene therapy worked?
- What happens if the gene therapy does not work?
The Democratizing Education Project welcomes your feedback about the sickle cell disease gene therapy resources. Please email your comments or questions to DemocratizingEd@mail.nih.gov.
These educational materials are for informational purposes only. They are meant to promote your general understanding of gene therapy for sickle cell disease. We encourage you to use these educational materials to talk with your healthcare provider or a clinical trial team.
Last updated: September 22, 2022