Issues in Genetics

Policy, legal and ethical issues in genetic research

DNA double-helix, pat.pending label, scales of justice, test tube

Feature

The ASHG Genetics and Public Policy Fellowship

Genetics and Public Policy Fellowship Applications are now being accepted for the 2013 Genetics and Public Policy Fellowship. Applications submitted by April 22nd, 2013 will be considered. (Read more)
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Workshop Summary

Reimbursement Models to Promote Evidence Generation and Innovation for Genomic Tests

On October 24, 2012, the National Human Genome Research Institute (NHGRI) and the Center for Medical Technology Policy (CMTP) convened a workshop to explore innovative ways in which genomics-based tests could be covered by public and private payers while generating evidence of the test's impact on medical outcomes, and to develop an action plan enabling future reimbursement of such tests and large-scale sequencing. A summary of that workshop is available now. (Read the summary)
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Highlights

NHGRI/NIGMS reaffirm robust privacy protections in data sharing

The National Human Genome Research Institute and the National Institute of General Medical Sciences, part of the National Institutes of Health, wrote a policy forum in this week's Science to accompany a research paper on the identifiability of genomic research data. The policy paper reaffirms the Institutes' commitment to the privacy of research participants and the benefits of widespread and open research data sharing. The research paper is from the Whitehead Institute for Biomedical Research in Cambridge, Mass.
Read the policy paper [sciencemag.org]
Read the Whitehead Study [sciencemag.org]
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