The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2007-2019 U.S. state legislative sessions.

Overview

The Genome Statute and Legislation Database is reviewed and updated monthly. Searchable topics in the database include employment and insurance discrimination, health insurance coverage, privacy, research, the use of residual newborn screening specimens, and other topics of interest.

NHGRI's Table of State Statutes Related to Genomics provides the total number of states that have enacted legislation on the topics in the database, together with a description of each topic. (In some cases the state legislature has enacted multiple bills pertaining to one topic area. As a result, a database search may yield several statute entries for one state on a particular topic.)

Note that the database does not contain information about state regulations. Some states have developed regulations concerning genetic nondiscrimination in employment and insurance, health insurance coverage, genetic privacy, research and the use of residual newborn screening specimens. To search regulations in a particular state, visit the Cornell Legal Information Institute, click on the name of the state, and scroll down to the regulations link.

Definitions of terms such as "bill", "statute", and "regulation" are available through the Glossary of Statutory, Legislative,and Regulatory Terms.

The database does not include state genetic counselor licensing laws. For information about this topic, visit the National Society of Genetic Counselors.

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  • Please contact us if you have any questions, comments or suggestions regarding our database!
State Citation/Title Topic(s) Summary
Alabama 2012 State Bills
Alabama 2012 HB 78
Privacy

This bill creates the Genetic Information Privacy Act. The bill establishes procedures for obtaining, disclosing and storing genetic information as well as penalties for unlawful disclosure. Measure failed.

Alabama 2015 State Bills
Alabama 2015 HB 564
Privacy

Prohibits state agencies, district boards of education, or pre K-12 educational institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits information about the student or the student's family concerning biometric records, which is defined to include DNA sequences. Died.

Alabama 2016 State Bills
Alabama 2016 HB 267
Privacy

Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died.

Alabama 2016 State Bills
Alabama 2016 SB 318
Privacy

Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died.

Alabama State Statute
Alabama: Code of Ala. §27-5-13
Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination

Health and disability insurers may not deny applicants insurance coverage because of a diagnosis of sickle cell anemia.

Alabama State Statute
Alabama: Code of Ala. §27-53-1 et seq.
Health Insurance Nondiscrimination

Health benefit plans, including the Alabama Medicaid Agency, may not require a genetic test to determine if a person has a predisposition to cancer as a condition of insurability or use the results of such a test to determine insurability or discriminate with respect to rates or benefits. The statutes set forth penalties for insurance companies or health maintenance organizations that violate the law.

Alaska 2009 State Bills
Alaska 2009 HB 222
Health Insurance Nondiscrimination

This bill requires health care insurers in the individual market to comply with genetic information nondiscrimination requirements established under 42 U.S.C. 300gg-53. Health care insurers in the group market must comply with genetic information nondiscrimination requirements established under 42 U.S.C. 300gg-1(b)(3), 42 U.S.C. 300gg-1(c) - (f), and 42 U.S.C. 300gg-91. Signed into law August 5, 2009.

Alaska 2016 State Bills
Alaska 2016 HB 369
Privacy

Excludes DNA samples collected in the course of the person's business of determining genetic genealogy from the state genetic privacy law. Died.

Alaska 2016 State Bills
Alaska 2016 SB 182
Privacy

Excludes DNA samples collected in the course of the person's business of determining genetic genealogy from the state genetic privacy law. Died.

Alaska State Statute
Alaska: AS §18.13.010 et seq.
Privacy

This statute provides protections for the privacy of DNA samples and the results of DNA analysis. DNA samples and the results of DNA analysis are the exclusive property of the person sampled or analyzed. Samples collected and analyses conducted for the DNA registry, law enforcement purposes, paternity testing, newborn screening, and emergency medical treatment are exempt. The statute sets forth civi and criminal penalties for violations of the law.

Alaska State Statute
Alaska: AS §21.36.480
Health Insurance Nondiscrimination

Health care insurers offering individual or group plans must comply with the genetic information nondiscrimination requirements established under 42 USC 300gg-53, or 42 U.S.C. 300gg-1(b)(3), 42 U.S.C. 300gg-1(c) - (f), and 42 U.S.C. 300gg-91, respectively.

Alaska State Statute
Alaska: AS §21.54.100 et seq.
Health Insurance Nondiscrimination

Health care insurers in the group market may not establish rules for eligibility or continued eligibility based on genetic information or impose preexisting condition exclusions based on genetic information in the absence of a diagnosis.

Arizona 2007 State Bills
Arizona 2007 HB 2629
Health Insurance Coverage

This bill requires hospital or medical service corporations, health care service organizations, and individual, group and blanket disability insurers who provide health care coverage to pregnant women to cover the cost of genetic testing for thrombophilia if it is ordered by a physician. Measure failed.

Arizona 2008 State Bills
Arizona 2008 SB 2658
Health Insurance Nondiscrimination

This bill amends existing law that prohibits health benefit plans from terminating coverage based on a health status-related factor, including genetic information, by adding a group disability policy or a certificate of insurance for a group disability policy that is not issued in the state of Arizona to the definition of "health benefit plan." Signed by the Governor on April 28, 2008.

Arizona 2010 State Bills
Arizona 2010 HB 2291
Health Insurance Nondiscrimination

This bill prohibits health care service organizations from imposing pre-existing condition limitations or exclusions. Genetic conditions in the absence of a diagnosis related to the condition are not considered pre-existing conditions and may not result in a pre-existing condition limitation or exclusion. Measure failed.

Arizona 2010 State Bills
Arizona 2010 SB 1309
Privacy

The bill establishes the right of parents to consent in writing before any record of the minor child's blood or deoxyribonucleic acid is created, stored or shared, with some exceptions such as for newborn screening. Signed by the Governor May 10, 2010.

Arizona 2016 State Bills
Arizona 2016 HB 2144
Privacy

This bill amends state law pertaining to genetic testing. New provisions include that a person may not order a genetic test without the informed consent of the person being tested. Signed by the Governor on 3/17/2016. Effective August 6, 2016.

Arizona 2016 State Bills
Arizona 2016 SB 1366
Other Topics

Amends statute pertaining to laboratory testing without a healthcare provider's order. Defines laboratory testing to include pharmacogenetic testing. Died.

Arizona 2017 State Bills
Arizona 2017 SB 1373
Privacy

Prohibits schools and school service providers from collecting or possessing biometric information of elementary or secondary school students unless the school service provider: (1) develops a written policy for the collection, retention, disclosure and destruction of biometric information; and (2) obtains a written release to collect biometric information. Sets forth protections for biometric information, if collected. Biometric information is defined as information derived from any biometric identifier used to identify an individual. Died.

Arizona 2018 State Bills
Arizona 2018 HB 2450
Privacy

Allows the release of genetic testing and information derived from genetic testing to the following, if the necessary requirements are met: an individual or entity that provides services to a health care provider or clinical laboratory, a statewide health information exchange, the health insurance carrier of the person tested, a nationally recognized accreditation organization, a health professional licensing board in the state, and an entity that is responsible for the payment of a health care provider charges. Died.

Arizona 2019 State Bills
Arizona 2019 SB 1297
Privacy

This bill specifically excludes direct-to-consumer genetic tests from the definition of genetic test under the existing state privacy law. The bill also amends the provision of the law pertaining to disclosure of information derived from genetic testing to health care providers and others. House second reading on 3/13/2019.

Arizona State Statute
Arizona: ARS §1-602
Privacy

Parents must consent in writing before any record of the minor child's blood or deoxyribonucleic acid is created, stored or shared, with some exceptions such as newborn screening.

Arizona State Statute
Arizona: ARS §12-2801 et seq.
Privacy, Research

Information derived from genetic testing my only be released to the person tested or others with written authorization from the person tested with some exceptions, including but not limited to (1) a researcher for medical research and public health purposes, only if the research is conducted pursuant to applicable federal or state laws and regulations, (2) if the identity of the individual providing the sample is not disclosed to the person collecting and conducting research; or (3) a third person if approved by a human subjects review committee or human ethics committee, with respect to persons who are subject to a state cancer registry. The law also places restrictions on disclosure or compelling disclosure, requires consent from a parent or legal guardian of a minor to conduct genetic testing other than newborn screening, and requires written informed consent for genetic testing by health care providers with some exceptions.

Arizona State Statute
Arizona: ARS §20-1051 et seq.
Health Insurance Nondiscrimination

A health care services organization may not cancel an enrollee's evidence of coverage issued on a group basis because of criteria specified in the statutes, including such health status-related factors. Genetic information is a health status-related factor.

Arizona State Statute
Arizona: ARS §20-1379
Health Insurance Nondiscrimination

Genetic information is a health status-related factor that may not be used as the basis for denial of coverage or as the basis for a pre-existing condition exclusion in the absence of a diagnosis in the individual health insurance market.