Feature

NHGRI Re-Focuses States Legislative Database

With the passage of the Genetic Information Nondiscrimination Act of 2008, NHGRI has focused its legislative database to track new bills entered and adopted by state legislatures that change protections for genetic privacy, and genetic non-discrimination in health insurance and employment. The new, re-launched Web site was current at the beginning of the 2010 legislative sessions and will be updated at the end of the sessions across the states, typically in May and November. The database is intended to help stakeholders follow, and better understand, how state legislatures are interpreting and expanding on the many ethical, legal and social implications of recent discoveries in the genomic era. (Read more)

Highlights

	The Genetic Information Nondiscrimination Act of 2008: Information for Researchers and Health Care Professionals
	Guidance on the Genetic Information Nondiscrimination Act: Implications for Investigators and Institutional Review Boards (IRBs) [hhs.gov]

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Last Updated: June 10, 2010

See Also

Policy and Program Analysis Branch
Policy Staff Contact Information

Ethical, Legal and Social Implications Research Program
NHGRI Extramural Research Program

Social and Behavioral Research Branch
NHGRI Intramural Research Program

On Other Sites:

Secretary's Advisory Committee on Genetics, Health, and Society (SACGHS)

The American Society of Human Genetics (ASHG)

Genetic Alliance

The Genetics and Public Policy Center

Genomics Law Report