Issues in Genetics
Policy, legal and ethical issues in genetic research
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Apply for NHGRI-ASHG's new education fellowship for genetics professionals

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To help cultivate an educated citizenry, the American Society of Human Genetics (ASHG) and NHGRI have teamed up to sponsor the new Genetics and Education Fellowship. Every year, one genetics professional will receive comprehensive training and experience to help prepare him or her for a career in genetics and genomics education. (more)

Gene Patents: Supreme Court rules against

Supreme Court buildingWhether or not human genes should be patent-eligible has been a topic for debate since the 1980s and of keen interest to NHGRI. On June 13th, 2013, a long-running legal case over a patent held by Myriad Genetics on a gene linked to breast cancer reached conclusion with a Supreme Court ruling that isolated but otherwise unmodified DNA can not be the subject of a patent. (more)
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NHGRI/ASHG Genetics and Public Policy Fellowship
Deadline: April 25, 2014

Meeting on the implications of the ACMG Recommendations

Read more NHGRI held a workshop on February 18 and 19, 2014 to discuss the potential implications of clinical sequencing recommendations and guidelines for genomic research, in particular the recommendations from the American College of Medical Genetics and Genomics (ACMG) on the management of incidental findings when patients undergo clinical exome or genome sequencing. Read more

Presidential Bioethics Report on Incidental Findings

Read more The Presidential Commission for the Study of Bioethical Issues released a report on Dec. 12, 2013, entitled Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts. Although not specifically focused on genomics, the report and its guidelines have implications for genomics research and medicine.
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Last Updated: March 27, 2014