Issues in Genetics
Policy, legal and ethical issues in genetic research
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Interim Final Regulations Issued for Part of the Genetic Information Non-Discrimination Act

People with a D N A double-helix and letters of A T C G in the backgroundOn October 1, 2009, the Internal Revenue Service, Department of Labor and Department of Health and Human Services released the joint, final interim regulations under Title I of the Genetic Information Nondiscrimination Act of 2008 (GINA). These final regulations will be effective December 7, 2009. Find out how to comment. (Read more)

Highlights
bullet 2010 Genetics and Public Policy Fellowship
This fellowship program is designed for genetics professionals with an advanced degree who are early in their careers and interested in the development and implementation of genetics health and research policies at the national level.

bullet Genetics and Public Policy FellowshipPDF file
Fellowship flyer for distribution

bullet The Genetic Information Nondiscrimination Act of 2008: Information for Researchers and Health Care ProfessionalsPDF file

bullet Guidance on the Genetic Information Nondiscrimination Act: Implications for Investigators and Institutional Review Boards (IRBs) [hhs.gov]

bullet Genomic Medicine: A Revolution in Medical Practice in the 21st Century
NHGRI Director Dr. Francis S. Collins speaks at the 3rd Annual World Health Care Congress in Washington, D.C. on April 17, 2006.

Last Updated: November 12, 2009

See Also
Genetics and Public Policy Fellowship

Policy and Program Analysis Branch
Policy Staff Contact Information

Ethical, Legal and Social Implications Research Program
NHGRI Extramural Research Program

Social and Behavioral Research Branch
NHGRI Intramural Research Program