Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
New Hampshire | New Hampshire SB 240 | Genetic data storage/privacy/sharing (medicine) | Approved | Relative to conditions for genetic testing. |
Texas | Texas HB 2545 | Genetic data storage/privacy/sharing (industry) | Approved | Relating to an individual's genetic data, including the use of that data by certain genetic testing companies for commercial purposes and the individual's property right in DNA; authorizing a civil p... |
Pennsylvania | Pennsylvania SB 8 | Coverage and reimbursement | Approved | An Act amending the act of May 17, 1921 (P.L.682, No.284), known as The Insurance Company Law of 1921, in casualty insurance, further providing for coverage for mammographic examinations and diagnost... |
Nebraska | https://www.nebraskalegislature.gov/FloorDocs/108/PDF/Slip/LB308.pdf | Genetic discrimination | Approved | Adopt the Genetic Information Privacy Act. |
Montana | Montana HB 682 | Neonatal sequencing | Approved | Revise laws related to collection of genetic material for newborn screenings. |
Maryland | 2021 State Bills Maryland 2021 SB 706 | Other Topics | Died | Alters the definition of "practice pharmacy" to include the ordering and administering of certain laboratory tests. Requires the State Board of Pharmacy, on or before January 1, 2022, to adopt regulations authorizing a pharmacist to order and administer laboratory tests, without a written, oral or electronically transmitted prescription from an authorized prescriber that measure biomarkers, including deoxyribonucleic acid. In the Senate - Hearing 3/02 at 1:00 p.m. Died. |
Minnesota | 2017 State Bills Minnesota 2017 HF 887 | Health Insurance Nondiscrimination | Died | A managed care organization that contracts with the health commissioner cannot discriminate or use any policy that has the effect of discriminating against people on the basis of genetic information. Died. |
Nevada | 2007 State Bills Nevada 2007 AB 578 | Research | Died | This bill prescribes the requirements for surrogate decision makers to give informed consent for certain human subject research. Measure failed. |
New York | 2009 State Bills New York 2009 A8511 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill creates the genetics advisory council. The council, if created, will study and make recommendations on various issues, including unfair discrimination by employers and insurers. Measure failed. |
New York | 2019 State Bills New York 2019 S4144 | Employment Nondiscrimination | Died | Prohibits hiring parties from subjecting a model to harassment based on various factors, including predisposing genetic characteristics. Died. |
Texas | 2015 State Bills Texas 2015 HB 3582 | Privacy | Died | Creates a personal property right in a sample of genetic material and in the genetic information obtained as a result of a genetic test performed on an individual's sample. Died. |
West Virginia | 2019 State Bills West Virginia 2019 HB 2224 | Health Insurance Coverage | Died | Requires insurance coverage of a comprehensive ultrasound screening of breast if a woman is believed to be at increased risk of cancer based on several factors, including positive genetic testing. Died. |
Alabama | 2016 State Bills Alabama 2016 SB 318 | Privacy | Died | Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died. |
Delaware | 2019 State Bills Delaware 2019 SB 17 | Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based upon genetic characteristics and information in the issuance or renewal of disability and long term care insurance. Insurers also must provide notice if a genetic test is required. Died. |
Illinois | 2020 State Bills Illinois 2020 SB 3092 | Privacy | Died | Amends the Genetic Information privacy Act. Requires informed consent for a person or business to disclose an individual's genetic information to third parties specifically for marketing, advertising, or sales purposes. Died. |
Maryland | 2017 State Bills Maryland 2017 HB 1489 | Other Topics | Died | Removes the ban on directly or indirectly advertising for or soliciting business for any medical laboratory, regardless of location, from anyone except a physician, hospital, medical laboratory, clinic, clinical installation, or other medical care facility. Died. |
Massachusetts | 2019 State Bills Massachusetts 2019 S.939 | Employment Nondiscrimination | Died | Adds new section to unlawful employment practices statute. Prohibits any person whose business includes sponsoring, guaranteeing or granting funds or engaging in investment transactions from discriminating against any person in the sponsoring, guaranteeing or granting of funds or making available such funds, because of genetic information and other factors. 11/16/2020 Accompanied a study order, see S2953. Died. |
Mississippi | 2018 State Bills Mississippi 2018 SB 2406 | Health Insurance Coverage | Died | Requires group or individual policies, contracts or certificates of health insurance issued or renewed to cover comprehensive ultrasound screening of an entire breast or breasts if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. 1/30/2018 Died in committee. |
New Jersey | 2020 State Bills New Jersey 2020 A1170 | Privacy | Died | Makes DNA samples and genetic information resulting from DNA analysis property of the person sampled or analyzed. Died. |
New York | 2017 State Bills New York 2017 A1803 | Health Insurance Coverage | Died | Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer. Coverage must include testing and any subsequent treatment based on the results of the test for people with a significant risk of contracting cancer. Died. |
Oklahoma | 2019 State Bills Oklahoma 2019 HB 2455 | Other Topics | Died | Prohibits unlawful housing discriminatory practices based on genetic information. Died. |
Virginia | Virginia HB 1077 | Parentage law | Died | Provides that |
California | 2020 State Bills California 2020 AB 3215 | Other Topics | Died | Establishes the Commission on the State of Hate. Requires the commission to advise the Legislature, the Governor, and state agencies on, among other things, policy recommendations to promote intersocial education designed to foster mutual respect and understanding among California�s diverse population. Appointees to the commission are comprised of experts in combating hate, intolerance, and discrimination on the basis of various factors such as genetic information. Died. |
Hawaii | 2013 State Bills Hawaii 2013 HB 540 | Health Insurance Nondiscrimination | Died | The board of the Hawaii employer-union health benefits trust fund must require every health benefits plan established or contracted to include lower deductibles and co-payments for non-smokers of tobacco and other persons engaged in low risk health behaviors that are designed, in compliance with applicable federal and state laws, to encourage preventative health care, promote wellness, and discourage medically unnecessary use of health care services; provided that the board consults with medical professionals to determine what should be included as low risk health behaviors. Genetic factors and pre-existing medical conditions may not be considered as a behavior when determining what constitutes low risk behavior. Died. |
Maine | 2017 State Bills Maine 2017 LD 1452 | Privacy | Died | The department of education, a school administrative unit or a state agency may not collect, store, transmit or process the certain information, including DNA, from a student without the written consent of a parent or guardian of a student or an eligible student unless otherwise required or authorized by statute or rule. Died. |
Colorado | 2015 State Bills Colorado 2015 HB 1199 | Privacy | Died | This bill requires a state agency or educational institution to obtain consent from parents or eligible students prior to collecting certain data, including biometric records. Biometric records are defined to include DNA. Died. |
Hawaii | 2020 State Bills Hawaii 2020 SB 2539 | Health Insurance Coverage | Died | Requires individual policies of accident and health or sickness insurance to provide coverage for genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Died. |
Maryland | 2009 State Bills Maryland 2009 SB 1 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill prohibits an insurer from requesting or requiring a genetic test or from using a genetic test, the results of a genetic test, genetic information, or a request for genetic services to deny or limit life insurance coverage or benefits or to charge a different rate for the same coverage or benefits under an annuity contract; defining terms; and providing for an exception if the use is based on sound actuarial principles. Measure failed. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.1985 | Privacy | Died | Adds biometric indicators to the state data security protection law. Biometric indicator is defined as any unique biological attribute or measurement that can be used to authenticate the identity of an individual, including but not limited to fingerprints, genetic information, iris or retina patterns, facial characteristics, or hand geometry. Died. |
Minnesota | 2020 State Bills Minnesota 2020 SF 4247 | Privacy | Died | Establishes the Minnesota Consumer Data privacy Act. Gives various rights to consumers regarding personal data. Personal data includes the processing of genetic or biometric data for the purpose of uniquely identifying a person. Places obligations on businesses regarding consumer data. Died. |
New Hampshire | 2019 State Bills New Hampshire 2019 HB 536 | Privacy | Died | Adds biometric information to the Consumer Protection Act. Died. |
New York | 2013 State Bills New York 2013 A1153 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill establishes a genetics advisory council to study various topics, including the use of any genetic test by insurers, employers or educational institutions, including the potential for compromising the individual liberties and civil rights of individuals or causing individuals to suffer unfair discrimination. Died. |
North Carolina | 2017 State Bills North Carolina 2017 HB 82 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination | Died | Prohibits discriminatory housing practices based on protected status, which includes genetic information. Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Also prohibits insurers from refusing to insure or refusing to continue to insure an individual, limit the amount, extent, or kind of coverage available to an individual, or charge an individual a different rate for the same coverage, based on genetic information. School boards also must adopt a policy to establish that the local board of education and school personnel employed by the local board may not discriminate based on genetic information. Charter and nonpublic schools may not discriminate based on genetic information. Died. |
Texas | 2021 State Bills Texas 2021 SB 16 | Privacy | Died | Prohibits a state agency from disseminating to any person any personal data of an individual without the individual �s written consent. A state agency must retain the written consent of an individual obtained per certain requirements. A state agency may not require an individual to consent to dissemination of the individual�s personal data in exchange for access to the services provided by the agency or to the agency�s Internet website. 3/3/2021 Referred to Finance. Died. |
Wisconsin | 2017 State Bills Wisconsin 2017 AB 363 | Health Insurance Nondiscrimination | Died | Amends health insurance law pertaining to pre-existing conditions. Insurers may not treat genetic information as a pre-existing condition. Provision stating "without a diagnosis of a condition related to the information" is stricken. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1. |
Arizona | 2018 State Bills Arizona 2018 HB 2450 | Privacy | Died | Allows the release of genetic testing and information derived from genetic testing to the following, if the necessary requirements are met: an individual or entity that provides services to a health care provider or clinical laboratory, a statewide health information exchange, the health insurance carrier of the person tested, a nationally recognized accreditation organization, a health professional licensing board in the state, and an entity that is responsible for the payment of a health care provider charges. Died. |
Florida | 2018 State Bills Florida 2018 SB 1106 | Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurers and long-term care insurers from canceling, limiting, or denying coverage, or establishing differentials in premium rates, based on genetic information, if there is no diagnosis of a condition related to the genetic information. The bill also prohibits these insurers from requiring or soliciting genetic information, using genetic test results, or considering a person�s decisions or actions relating to genetic testing for any insurance purpose. 3/10/2018 Died in Rules. |
Kansas | 2014 State Bills Kansas 2014 HB 2621 | Privacy | Died | The state board, the department of education, a unified school district or local education agency may not provide any personally identifiable information of any student or teacher, including a DNA sequence, to any federal agency, any Kansas state or local agency, state or local agency outside the state of Kansas, or any other organization or entity unless under specified circumstances. Died. |
Maryland | 2019 State Bills Maryland 2019 HB 716 | Privacy | Died | Amends the definition of personal information used in the state data privacy act. Personally identifiable information is defined to include an individual's DNA. Died. |
Hawaii | http://data.capitol.hawaii.gov/sessions/session2024/bills/SB1471_.htm | Neonatal sequencing | Died | Relating to privacy. Prohibits the department of health or any recipient of individually identifiable health information of a newborn child obtained through genetic and metabolic screening tests required by law to disclose to any person other than the newborn child's parents, guardian, or other persons having custody or control of the newborn child, any individually identifiable health information of a newborn child, including disclosure to a law enforcement officer. establishes that any information obtained by a law enforcement officer in violation of this prohibition shall be deemed evidence acquired by unlawful means. |
Michigan | 2013 State Bills Michigan 2013 SB 568 | Privacy | Died | This bill requires the Department of Community Health to develop a model written, informed consent form for genetic testing. Health care professionals must have test subjects complete the form prior to ordering genetic testing. Died. |
Missouri | 2016 State Bills Missouri 2016 SB 989 | Privacy | Died | Requires state education agencies to obtain parental consent to collect biometric records from parents, K-12 students or through data sharing agreements with any other entity. Biometric records are defined to include DNA sequences. Died. |
New Jersey | 2021 State Bills New Jersey 2021 A5354 | Employment Nondiscrimination, Other Topics | Died | Requires adoption of and training on anti-discrimination and anti-harassment policy by certain campaign committees. Protected category includes genetic information. Died. |
New York | 2018 State Bills New York 2018 A8847 | Other Topics | Died | Prohibits the distribution of consumers' DNA profiles submitted to direct-to-consumer genetic testing companies. Requires companies to provide a copy of their privacy policy to any consumer that submits a DNA sample and provides for civil penalties for violations of these provisions. Died. |
South Carolina | 2010 State Bills South Carolina 2010 HB 4298 | Health Insurance Nondiscrimination, Privacy, Research | Died | This bill amends existing statute sections and creates new statute sections pertaining to health_insurance_nondiscrimination, genetic privacy, research issues and enforcement of these provisions. Measure failed. |
Washington | 2019 State Bills Washington 2019 HB 1854 | Privacy | Died | Protects consumer data. Original version of bill included genetic data in the definition of sensitive information, but it was removed from the substitute bill version. 1/13/2020 By resolution, reintroduced and retained in present status. Rules Committee relieved of further consideration. Died. |
New York | 2007 State Bills New York 2007 A288 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on a insured, applicant or family member of insured or applicant. Measure failed. |
New York | 2019 State Bills New York 2019 A465 | Privacy | Died | Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security the information. Personal information is defined to include biometric information such as DNA. Died. |
Tennessee | 2018 State Bills Tennessee 2018 SB 2536 | Privacy | Died | Following discovery or notification of a breach of system security by an information holder, the information holder must disclose the breach of system security to any resident of the state whose personal information was, or is reasonably believed to have been, acquired by an unauthorized person. Personal information includes a DNA profile. Died. |
Washington | 2020 State Bills Washington 2020 SB 6664 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died. |
Last updated: September 14, 2023