The extent to which the discoveries from genetics and genomics research are translated into the improved health of the American people is greatly influenced by policy decisions guiding research and the integration of genetics and genomics tools in the clinical setting. The American Society of Human Genetics (ASHG) and the National Human Genome Research Institute (NHGRI) co-sponsor the Genetics and Public Policy Fellowship to give genetics professionals an opportunity to contribute to the policy-making process. The fellowship is designed as a bridge for genetics professionals wishing to transition to a policy career. This unique fellowship provides three separate types of experiences: time spent in the National Institutes of Health within the Executive Branch; a staff position on Capitol Hill serving elected officials in the Legislative Branch; and experience working with ASHG in the non-profit science advocacy sector. This variety of assignments provides experience for fellows in multiple areas of policy-making and helps build a professional network that advances their careers in policy.
Purpose: This is a fellowship program designed for genetics professionals with an advanced degree who are early in their careers and interested in the development and implementation of genetics-related health and research policies at a national level. The fellow will have the opportunity to participate in policy analysis at NHGRI and ASHG, and to work directly within the U.S. Congress.
Duration of Fellowship: 16 months
Start Date: August to early September (negotiable)
Compensation Package: annual $72k stipend plus benefits
Past and Present Fellows
|Year||Fellow||Current Employer||Title||Office Rotation in Congress|
|2017||Nikki Meadows||ASHG/NHGRI||Genetics and Public Policy Fellow||Rep. Louise Slaughter|
|2016||Christa Wagner||Association of American Medical Colleges||Legislative Analyst||Sen. Sherrod Brown|
|2015||Caroline Young||NIH Office of Science Policy||Health Science Policy Analyst||Sen. Sheldon Whitehouse|
|2014||Katherine Blizinsky||Rush University and NIH - All of Us Research Program||Assistant Professor and Policy Director||Sen. Patty Murray|
|2013||Katherine Donigan||U.S. Food and Drug Administration (FDA)||Staff Fellow||Sen. Elizabeth Warren|
|2012||Laura Koontz||U.S. Food and Drug Administration (FDA)||Personalized Medicine Staff||Rep. Louise Slaughter|
|2011||Cristina Kapustij||NIH - National Human Genome Research Institute (NHGRI)||Chief, Policy and Program Analysis Branch||Rep. John Dingell|
|2010||Kyle Brown||Office of the Governor of Colorado||Health Policy Advisor||Senate HELP Committee|
|2009||Selvi Sriranganathan||Kaiser Permanente Mid-Atlantic States||Certified Genetic Counselor||Rep. Eddie Bernice-Johnson|
|2008||Sara Selgrade||NIH - National Institute of Allergy and Infectious Disease (NIAID)||Section Chief for Legislative Activities||Senate HELP Committee|
|2007||Pam Bradley||Personal Genome Diagnostics||Associate Director, Scientific Affairs||Senate HELP Committee|
|2006||Ed Ramos||NIH - All of Us Research Program||Team Lead||Senator Obama|
|2005||Derek Scholes||ASHG||Senior Director of Policy and Advocacy||Senate HELP Committee|
|2004||Mike Stebbins||Arnold Foundation||Vice President of Science and Technology||Senate Minority Leaders Office|
|2003||Jennifer Leib||HealthFutures, LLC||Partner||Senate HELP Committee|
|2002||Daryl Pritchard||Personalized Medicine Coalition||Vice President, Science Policy||Rep Louise Slaughter|
The activities of the fellow will vary with each rotation. They will include research and analysis on a wide range of policy issues impacting biomedical research and its clinical application, and summarizing those analyses for different audiences. Writing tasks may include crafting new policy position statements, preparing testimony, summarizing legislation and drafting speeches. The fellow will participate in a variety of forums and will be expected to represent the involved organizations effectively in individual meetings and larger settings.
Candidates are expected to have an advanced degree in human genetics or related field. Exceptional applicants with other advanced degrees and clearly demonstrated experience-based knowledge in science policy could be considered. Ideally, candidates will have completed graduate training, but be early in the career development path. In addition to possessing a scientific knowledge base, the candidate must have a well-articulated interest in policy. Demonstrated skills in oral and written communications are essential. United States citizenship is not required, but candidates must be eligible to work in in the U.S. (i.e., the fellowship organizations will not sponsor visas).
A committee of representatives from ASHG and NHGRI will review application materials, interview finalists, and recommend up to three candidates to the organizational leaders for the final selection decision. Candidates are asked in the application materials to explain their motivation, areas of interest, and future plans.
NHGRI regularly receives inquiries from geneticists and genomicists interested in pursuing science and health policy, but who are not eligible for the NHGRI/ASHG Genetics and Public Policy Fellowship. To assist such individuals, NHGRI has compiled a list of other policy-related fellowships and internships that may be of interest. See: Other Policy Fellowships and Internships
Questions for the ASHG/NHGRI Fellowship can be directed to:
Cristina Kapustij, M.S.
Chief, Policy and Program Analysis Branch
National Human Genome Research Institute
Derek Scholes, Ph.D.
Senior Director of Policy and Advocacy
American Society of Human Genetics
Last Updated: March 15, 2018