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Genetic Counseling, Support and Advocacy Groups Online

  • Clinic Directory
    Database of genetics clinics, searchable by location, population served and specialty. Hosted by GeneTests.
  • Coalition for Genetic Fairness
    Advocacy group for federal legislation regarding genetics discrimination through the National Partnership for Women & Families.
  • Find a Genetic Counselor
    A searchable database of genetics counseling services. Search by location, name, institution, type of practice or specialty. Hosted by the National Society of Genetic Counselors.
  • The Genetic Alliance
    A nonprofit health advocacy organization that transforms health through genetics, promoting an environment of openness centered on the health of individuals, families, and communities.
  • Genetic Centers, Clinics and Departments
    Comprehensive resource list for genetic counseling, with links to genetic centers and clinics, associations and university genetics departments. Hosted by the University of Kansas Medical Center.
  • Genetics and Rare Conditions Site
    Information on genetic conditions and birth defects for professionals, educators and individuals, including national and international advocacy and support groups. Comprehensive list of resources organized by disease/condition. Hosted by the University of Kansas Medical Center.
  • National Organization for Rare Disorders
    Wide array of genetic-related information
  • Waisman Center - University of Wisconsin-Madison
    Dedicated to the advancement of knowledge about human development, developmental disabilities and neurodegenerative diseases.


Last updated: March 14, 2012