A Community Forum on Genetics: DNA, Health, and Social Justice
Hosted by the University of Washington
Sponsored by the National Human Genome Research Institute
William H. Gates Hall, University of Washington
Saturday, May 21, 2005
9:00 a.m. - 3:00 p.m.
|9:00 - 9:30 a.m.
||Dr. Wylie Burke
University of Washington
|9:30 - 11:00 a.m.
|Dr. Francis S. Collins
National Human Genome Research Institute
|11:00 a.m. - 12:15 p.m.
||Concurrent Breakout Sessions I
|12:15 - 1:15 p.m.
Poster Session: Biotech Expo and other student projects and displays from community
and agency partners
|1:15 - 2:30 p.m.
||Concurrent Breakout Sessions II
|2:30 - 3:00 p.m.
This session will provide participants with a background of key concepts in genetics,
review applications of genetics in society, and introduce the concept of ethical,
legal, and social implications (ELSI). This session will be presented in lecture
format with time for question and answer. (Note that all other breakout sessions
will include a brief introduction to the key scientific, ethical, legal, and social
concepts to support active discussion by all session participants.)
Using Genetics in Healthcare
This session will examine how genetics is applied in healthcare such as tissue
matching for organ transplants. It will highlight who has access to these procedures
and how everyone can learn to navigate the system for genetic services.
Cultural Competency and Family History
This session will look at the cultural meanings of family history and implications
of using family history in healthcare. It will be an opportunity to discuss
cultural competency at the provider and institutional level, and how to ensure
that genetics policies are culturally competent.
Control of DNA Sample - Genetics Research and Community-Campus Collaborations
This session will explore the issues that arise from the use of DNA samples
in research including who has control of DNA samples; ensuring privacy for participants,
families, and communities; and the role of community institutional review boards.
Testing for Ancestry: Race and Genetics
This session is an opportunity to discuss the use of genetic tests to identify
racial ancestry. It will be an opportunity to consider the pros and cons, and
to consider the implications of these tests for multi-racial/multi-ethnic people.
Racial Profiling and DNA Evidence
This session explains how DNA is used in the legal system. In particular, the
session will focus on the influence of genetics on racial profiling in the criminal
justice system, and the role of DNA evidence in the legal system and its implications
for racial minorities.
Behavior and Genetics
This session will focus on the suggestion that some behaviors may have underlying
genetic reasons. It will offer a chance to discuss the state of the science and
the implications and assumptions of these theories.
Implications of Genetics for Environmental Justice
This session considers the role of genetic information, testing, and knowledge
in the environmental justice movement. It will provide an opportunity to strategically
consider where and when genetics is helpful or harmful to an environmental justice
Careers in Genetics
This session is designed for high-school-aged participants and will provide
an overview of opportunities for careers and research in genetics, translational/clinical
research, and research into the ethical, legal, and social implications of genetics.
Students will have the opportunity to hear directly from NHGRI staff, UW students
William H. Gates Hall is located in the University of Washington School of Law near the northwest
corner of the University of Washington Seattle campus, near the intersection
of 15th Avenue NE and NE 43rd Street.
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Last Reviewed: March 25, 2011