NHGRI and the National Institute of Minority Health and Health Disparities (NIMHD) convened a workshop to discuss the use of race and ethnicity data in genomics, biomedical, and clinical research, and their influence on minority health and health disparities.
The workshop's objective was to explore how research participants' diverse backgrounds and experiences can be described in ways that are scientifically and socially meaningful. Participants included genomic, clinical, and social science researchers, as well as NIH staff, government stakeholders, and other experts.
Meeting participants were asked to discuss the current use of race and ethnicity in genomic and biomedical research and how it should be used in future research. The workshop generated recommendations for the appropriate use of race, ethnicity, and other population descriptors in scientific research and reports.
The two institutes are finalizing a report of the workshop including summary of the discussion and recommendations, and will be made available to Council and on Genome's website.
Links to the report, associated materials will be posted as they become available.
Last Updated: September 27, 2017