The profound advances in genomics over the past decade are rapidly leading to exciting opportunities for using genomic information as part of medical care and various aspects of everyday life.
On March 13-14, 2017, the National Human Genome Research Institute (NHGRI) in partnership with the Foundation for the National Institutes of Health (FNIH) hosted a strategic visioning meeting for a proposed Genomic Literacy, Education, and Engagement (GLEE) Initiative.
The GLEE Initiative is envisioned as a possible national campaign to enhance the genomic literacy of three target audiences: K-16 students, the general public, and healthcare providers.
The meeting was held at the Natcher Conference Center on the NIH Main Campus in Bethesda, Maryland and ~160 people attended from diverse communities including academia, industry, community-based organizations, non-profits, government, K-16 education organizations. At the meeting, participants discussed proposed elements from working groups focused on each of the three target audiences, and proposed a cohesive strategic vision for any such initiative over the next 1-5 years.
The meeting agenda, working group white papers, and executive summary of the meeting report can be found below.
| Time | Topic |
|---|---|
| 8:00 - 8:30 a.m. | Registration |
| 8:30 - 9:00 a.m. | Welcome & Overview Eric Green, M.D., Ph.D. Director, National Human Genome Research Institute |
| 9:00 - 9:10 a.m. | Perspectives from the Foundation for the National Institutes of Health (NIH) Maria Freire, Ph.D. President and Executive Director, Foundation for the NIH |
| 9:10 - 9:25 a.m. | Community Perspectives I: The Need for Genomic Literacy Bob Nussbaum, M.D. Invitae |
| 9:25 - 9:40 a.m. | Community Perspectives II: The Need for Genomic Literacy Louisa Stark, Ph.D. University of Utah |
| 9:40 - 10:45 a.m. | K-16 Working Group Presentation Bryony Ruegg, Ph.D. Bio-Rad Laboratories Beth Tuck National Human Genome Research Institute |
| 10:25 - 10:45 a.m. | Break |
| 10:45 - 11:30 a.m. | Healthcare Provider Working Group Presentation Katie Johansen Taber, Ph.D. American Medical Association Bob Wildin, M.D. National Human Genome Research Institute |
| 11:30 a.m. - 12:15 p.m. | Community/Public Working Group Presentation Louisa Stark, Ph.D. University of Utah Carla Easter, Ph.D. National Human Genome Research Institute |
| 12:15 - 12:20 p.m. | Instructions for Breakout Sessions Beth Tuck National Human Genome Research Institute |
| 12:20 - 1:15 p.m. | Lunch |
| Working Group Discussions K-16 Working Group: Room F1/F2 Community/Public Working Group: Room E1/E2 Healthcare Provider Working Group: Room D (and Room A if needed) |
|
| 1:15 - 4:30 p.m. | Break |
| 4:30 - 4:45 p.m. | Regroup - Questions for Tomorrow Laura Lyman Rodriguez, Ph.D. National Human Genome Research Institute |
| 5:30 - 7:00 p.m. | Reception |
| Time | Topic |
|---|---|
| 8:30 - 8:45 a.m. | Charge for Day 2 Carla Easter, Ph.D. National Human Genome Research Institute |
| 8:45 - 9:30 a.m. | K-16 Working Group Summary |
| 9:30 - 10:15 a.m. | Healthcare Provider Working Group Summary |
| 10:15 - 10:30 a.m. | Break |
| 10:30 - 11:15 a.m. | Community/Public Working Group Summary |
| 11:15 - 11:25 a.m. | Group Picture |
| 11:25 a.m. - 12:30 p.m. | Lunch |
| 12:30 a.m. - 1:30 p.m. | Synthesis and Visioning Discussion Facilitated by Larry Brody, Ph.D. National Human Genome Research Institute |
| 1:30 p.m. - 2:00 p.m. | Developing an Action Plan and Next Steps Facilitated by Eric Green, M.D., Ph.D. National Human Genome Research Institute |
| 2:00 p.m. | Adjourn |
Last Updated: August 8, 2018
