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Genomic Literacy, Education, and Engagement (GLEE) Initiative:

Strategic Visioning Meeting

March 13-14, 2017
Natcher Conference Center
Bethesda, Maryland
 

Genomic Literacy, Education, and Engagement (GLEE) Initiative

The profound advances in genomics over the past decade are rapidly leading to exciting opportunities for using genomic information as part of medical care and various aspects of everyday life.

On March 13-14, 2017, the National Human Genome Research Institute (NHGRI) in partnership with the Foundation for the National Institutes of Health (FNIH) hosted a strategic visioning meeting for a proposed Genomic Literacy, Education, and Engagement (GLEE) Initiative.

The GLEE Initiative is envisioned as a possible national campaign to enhance the genomic literacy of three target audiences: K-16 students, the general public, and healthcare providers.

The meeting was held at the Natcher Conference Center on the NIH Main Campus in Bethesda, Maryland and ~160 people attended from diverse communities including academia, industry, community-based organizations, non-profits, government, K-16 education organizations. At the meeting, participants discussed proposed elements from working groups focused on each of the three target audiences, and proposed a cohesive strategic vision for any such initiative over the next 1-5 years.  

The meeting agenda, working group white papers, and executive summary of the meeting report can be found below.  
 


GLEE Meeting Summary
GLEE Meeting Attendee List
 

Monday, March 13, 2017

Time Topic
8:00 - 8:30 a.m. Registration
8:30 - 9:00 a.m. Welcome & Overview
Eric Green, M.D., Ph.D.
Director, National Human Genome Research Institute
9:00 - 9:10 a.m. Perspectives from the Foundation for the National Institutes of Health (NIH)
Maria Freire, Ph.D.
President and Executive Director, Foundation for the NIH
9:10 - 9:25 a.m. Community Perspectives I: The Need for Genomic Literacy
Bob Nussbaum, M.D.
Invitae
9:25 - 9:40 a.m. Community Perspectives II: The Need for Genomic Literacy
Louisa Stark, Ph.D.
University of Utah
9:40 - 10:45 a.m. K-16 Working Group PresentationPDF file
Bryony Ruegg, Ph.D.
Bio-Rad Laboratories

Beth Tuck
National Human Genome Research Institute
 
10:25 - 10:45 a.m. Break
10:45 - 11:30 a.m. Healthcare Provider Working Group PresentationPDF file
Katie Johansen Taber, Ph.D.
American Medical Association

Bob Wildin, M.D.
National Human Genome Research Institute
 
11:30 a.m. - 12:15 p.m. Community/Public Working Group PresentationPDF file
Louisa Stark, Ph.D.
University of Utah

Carla Easter, Ph.D.
National Human Genome Research Institute
12:15 - 12:20 p.m. Instructions for Breakout Sessions
Beth Tuck
National Human Genome Research Institute
12:20 - 1:15 p.m. Lunch
  Working Group Discussions

K-16 Working Group: Room F1/F2
Community/Public Working Group: Room E1/E2
Healthcare Provider Working Group: Room D (and Room A if needed)
1:15 - 4:30 p.m. Break
4:30 - 4:45 p.m. Regroup - Questions for Tomorrow
Laura Lyman Rodriguez, Ph.D.
National Human Genome Research Institute
5:30 - 7:00 p.m. Reception

 

Tuesday, March 14, 2017

Time Topic
8:30 - 8:45 a.m. Charge for Day 2
Carla Easter, Ph.D.
National Human Genome Research Institute
8:45 - 9:30 a.m. K-16 Working Group Summary
9:30 - 10:15 a.m. Healthcare Provider Working Group Summary
10:15 - 10:30 a.m. Break
10:30 - 11:15 a.m. Community/Public Working Group Summary
11:15 - 11:25 a.m. Group Picture
 
11:25 a.m. - 12:30 p.m. Lunch
12:30 a.m. - 1:30 p.m. Synthesis and Visioning Discussion
Facilitated by Larry Brody, Ph.D.
National Human Genome Research Institute
1:30 p.m. - 2:00 p.m. Developing an Action Plan and Next Steps
Facilitated by Eric Green, M.D., Ph.D.
National Human Genome Research Institute
2:00 p.m. Adjourn

Posted: April 21, 2017