The Partnership for Community Outreach and Engagement in Genomics brings together community liaisons and health advocates representing diverse populations to engage communities on genomics, inform and share perspectives, and impact the focus of research.

Overview

The Partnership for Community Outreach and Engagement in Genomics was established in 2014. The partnership brings together community liaisons and health advocates representing diverse populations to engage communities around genomic science, to inform and share perspectives about genomic research, and to impact the focus of research.

Guided by the National Human Genome Research Institute's (NHGRI) Education and Community Involvement Branch, the Partnership for Community Outreach and Engagement is committed to:

  • Building relationships and trust with communities through understanding diverse communal views and priorities.
  • Providing input and guidance on the development of programs, tools, and information for various communities.
  • Providing community perspectives about genomic research and science.
  • Identifying potential areas of collaboration between communities, NHGRI and other National Institutes of Health (NIH) institutes, and national and international organizations.

Your Genome & You is an infographic that offers an introduction to the basics of genetics and genomics and how the science impacts our lives. It was designed by the National Human Genome Research Institute's Partnership for Community Outreach and Engagement in Genomics.

Partnership Members

  • Maria Alvarez, Ph.D., Professor and Coordinator of Biology, RISE and BUILD Program Director, El Paso Community College
  • Ada Bends, Cultural Programs Director, Rocky Mountain Tribal Leaders Council
  • Jermane Bond, Ph.D., National Collaborative for Health Equity, Washington, D.C.
  • Suzanne Held, Ph.D., Professor of Community Health, Montana State University, Bozeman
  • Gwen Darien, Executive Vice President, Patient Advocacy, National Patient Advocate Foundation
  • Ella Greene-Moton, Community Education Coordinator, Center for Public Health and Community Genomics, University of Michigan, School of Public Health, Ann Arbor
  • Alma Knows His Gun-McCormick, Executive Director, Messengers for Health, Crow Nation, Montana
  • James O'Leary, Chief Innovation Officer, Genetic Alliance, Washington, D.C.
  • Mary Jackson Scroggins, Director, The Pathways Project, Washington, D.C.
  • Patty Spears, Research Specialist, North Carolina State University, Raleigh
  • Erik Stegman, J.D., Executive Director, Center for Native American Youth, Washington, D.C.
  • Lorelei Walker, Ph.D., Lead Organizer, University of Washington Health Equity Circle, Sound Alliance, Seattle
  • Christine Wilson, M.S., Health Care Communications Consultant, Foxhall Communications Strategies

NHGRI Representatives

  • Vence Bonham, J.D., Senior Advisor to the Director on Genomics and Health Disparities and Associate Investigator, Social and Behavioral Research Branch.
  • Christina Daulton, M.A., Education Outreach Specialist, Education and Community Involvement Branch
  • Carla Easter, Ph.D., Chief, Education and Community Involvement Branch
  • Michael Hahn, Scientific Program Analyst, Office of the Director
  • Jean Jenkins, Ph.D., Clinical Advisor, Division of Policy, Communications and Education
  • Laura Lyman Rodriguez, Ph.D., Director, Division of Policy, Communication, and Education
  • Rosann Wise, Program Analyst, Education and Community Involvement Branch

Contact

Christina R. Daulton, M.A.
Christina R. Daulton, M.A.
  • Education Outreach Specialist
  • Education and Community Involvement Branch