Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Virginia | 2009 State Bills Virginia 2009 SB 976 | Health Insurance Nondiscrimination | Died | This bill prohibits the treatment of genetic information as a preexisting condition in basic health insurance plans in the absence of a diagnosis of the condition related to such information. Measure failed. |
California | 2021 State Bills California 2021 SB 480 | Other Topics | Died | require the Metropolitan Water District of Southern California to adopt rules relating to inappropriate conduct, as defined, by board members, officers, and employees. Inappropriate conduct is defined as any conduct toward others that is physical, verbal, or visual based on or because of various characteristics, including genetic information. Carries over to 2022. |
Hawaii | 2019 State Bills Hawaii 2019 HB 1087 | Health Insurance Coverage | Died | Requires health insurers, mutual benefit societies and health maintenance organizations to provide coverage for: (1) screening to determine whether counseling and testing related to the BRCA1 or BRCA2 genetic mutation is indicated; and (2) genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died. |
Maryland | 2009 State Bills Maryland 2009 HB 11 | Health Insurance Nondiscrimination | Died | This bill provides an individual with a right to civil if the state genetic nondiscrimination insurance statutes are violated. Measure failed. |
Maryland | 2021 State Bills Maryland 2021 SB 112 | Privacy | Died | Amends statute requiring a business that maintains personal information of an individual residing in the State to implement and maintain certain security procedures and practices. The bill adds the following to the definition of personal information: genetic information with respect to an individual, including the genetic sample of an individual; the genetic test of an individual; the genetic test of an individual's family member; the manifestation of a disease or disorder in a family member of an individual; any request for and receipt of genetic counseling, or genetic education; and any information derived from genetic information with respect to an individual. In the Senate - Hearing 2/10 at 1:00 p.m. Died. |
Minnesota | 2014 State Bills Minnesota 2014 HF 2402 | Use of Residual Newborn Screening Specimens | Died | The original version of this bill amended the newborn screening law pertaining to storage of blood samples. All language was subsequently deleted pertaining to the newborn screening program. |
Montana | 2019 State Bills Montana 2019 SB 105 | Other Topics | Died | Requires lobbyists to complete harassment prevention training. Harassment is defined to include unwelcome verbal or physical conduct that denigrates or shows hostility or aversion toward an individual on the basis of genetic information. Died. |
New York | 2009 State Bills New York 2009 A2464 | Health Insurance Coverage | Died | This bill requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk of cancer. Measure failed. |
New York | 2019 State Bills New York 2019 S1203 | Privacy | Died | Requires biometric identifies and information to be treated in a manner similar to confidential and sensitive information such as a genetic marker or genetic testing information. Died. |
Texas | 2011 State Bills Texas 2011 HB 2110 | Privacy | Died | This bill gives an individual property rights to his or her DNA sample. A person may not collect a DNA sample, perform a genetic test or retain a DNA sample, with few exceptions such as for law enforcement purposes. Measure failed. |
West Virginia | 2015 State Bills West Virginia 2015 HB 2258 | Privacy | Died | Establishes a parental bill of rights. Requirements include parental consent in writing before any record of a minor child's blood or DNA is made, shared, or stored, unless such blood or DNA is otherwise required by law or court order. Died. |
Arizona | 2007 State Bills Arizona 2007 HB 2629 | Health Insurance Coverage | Died | This bill requires hospital or medical service corporations, health care service organizations, and individual, group and blanket disability insurers who provide health care coverage to pregnant women to cover the cost of genetic testing for thrombophilia if it is ordered by a physician. Measure failed. |
Florida | 2013 State Bills Florida 2013 SB 982 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill amends Florida's health_insurance_nondiscrimination law. The bill removes the exemption for life, disability and long-term care insurance under existing law and states that the law applies to other lines of insurance. Died. |
Iowa | 2018 State Bills Iowa 2018 HF 2352 | Health Insurance Nondiscrimination | Died | Establishes the Healthy Iowa program. Residents of the state are entitled to enroll. Discrimination is prohibited with respect to members and providers based on genetic information. Died. |
Maryland | 2019 State Bills Maryland 2019 HB 1087 | Health Insurance Nondiscrimination | Died | Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. 3/28/2019 Unfavorable Report by Health and Government Operations. Withdrawn. |
Michigan | 2009 State Bills Michigan 2009 HB 5234 | Health Insurance Nondiscrimination, Research | Died | This bill applies to insurers that provide Medicare supplement policies or certificates only. Denying or conditioning the issuance or effectiveness of insurance, including pre-existing condition exclusions, on the basis of genetic information is prohibited. These insurers of these policies or certificates may not (1) discriminate with respect to pricing on the basis of genetic information, (2) request or require an individual or family member to undergo a genetic test (with an exception regarding requesting a test), or (3) use the manifestation of disease in an individual as genetic information about another group members and to further increase premiums for the group. Insurers may request a genetic test from an individual or family member only if the request is pursuant to research that applies to the Common Rule and other criteria are met. Measure failed. |
Missouri | 2015 State Bills Missouri 2015 HB 1240 | Privacy | Died | Protects the privacy of student data, which encompasses biometric records. Biometric records is defined to include DNA. Died. |
New Jersey | 2020 State Bills New Jersey 2020 S269 | Privacy | Died | Requires certain businesses to notify data subjects of collection of personally identifiable information and establishes certain security standards. Personally identifiable information is defined to include biometric information such as DNA. Died. |
New York | 2017 State Bills New York 2017 S4159 | Privacy | Died | A Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. TNC drivers must comply with the anti-discrimination law. Died. |
Rhode Island | 2020 State Bills Rhode Island 2020 S2430 | Privacy | Died | Creates the Consumer privacy Protection Act. Establishes requirements for the collection, use, sale, retention and disclosure of personal information by businesses. Personal information is defined to include biometric information such as DNA. Died. |
Washington | 2015 State Bills Washington 2015 SB 5316 | Privacy | Died | Establishes protections for student biometric information, including a DNA sequence. Died. |
Connecticut | 2017 State Bills Connecticut 2017 SB 586 | Health Insurance Coverage | Died | Requires individual and group health insurers to provide coverage for breast cancer chemoprevention counseling, risk assessment, genetic testing and counseling for any woman who is at increased risk for breast cancer due to family history, prior personal history of breast cancer, positive genetic testing or other indications as determined by a health care provider. Died. |
Illinois | 2007 State Bills Illinois 2007 SB 940 | Privacy | Died | This bill was introduced as an amendment to the Genetic Information privacy Act. All language was stricken in a senate amendment and new language was added related to firearms. |
Maryland | 2013 State Bills Maryland 2013 HB 959 | Privacy | Died | Sets forth requirements for governmental units, including an executive, legislative or judicial agency, a department, a board, a commission, an authority, a public institution of higher education, or a unit or instrument of the state that collects or discloses personal information. Defines personal information to include an individual's genetic print. Died. |
Massachusetts | 2015 State Bills Massachusetts 2015 H.225 | Privacy | Died | The bill amends statute sections pertaining to the department of consumer affairs and business regulations relative to any person that owns or licenses personal information about a resident of the commonwealth. Changes add biometric information, including genetic information, to the types of personal information protected under the law. Died. |
Minnesota | 2020 State Bills Minnesota 2020 HF 3645 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died. |
New Hampshire | 2017 State Bills New Hampshire 2017 HB 396 | Privacy | Died | Prohibits the collection, tracking, housing, storage, reporting or sharing of personally identifiable information with the federal government or for-profit corporations. The findings and purpose section of the bill lists a DNA sequence as private student data. Died on the Table. |
New York | 2011 State Bills New York 2011 A5858 | Health Insurance Nondiscrimination | Died | This bill defines the term "genetic predisposition" for purposes of individual and small group health insurance policies, requires that genetic predisposition be disregarded in community rating, and provides that no pre-existing condition exclusion in such a policy shall exclude coverage on the basis of any genetic predisposition. Measure failed. |
New York | 2020 State Bills New York 2020 S9073 | Privacy | Died | Establishes the It's Your Data Act to provide protections and transparency in the collection use retention and sharing of personal information. Personal information is defined to include biometric information such as a DNA sequence. Referred to Rules 10/28/2020. Died. |
Texas | 2019 State Bills Texas 2019 HB 4518 | Privacy | Died | Establishes protections for the privacy of a consumer's personal information collected by certain businesses, including biometric information. Biometric information includes DNA. Died. |
Wisconsin | 2015 State Bills Wisconsin 2015 SB 145 | Employment Nondiscrimination | Died | Authorizes the circuit court to order a person who engages in discrimination in employment, unfair honesty testing, or unfair genetic testing to pay compensatory and punitive damages. 4/13/2016 Failed to pass pursuant to Senate Joint Resolution 1. |
California | 2009 State Bills California 2009 SB 145 | Other Topics | Died | This bill prohibits the denial of a workers' compensation claim solely because the motivation behind what caused the employee's injury or injury resulting in death was related to an immutable characteristic of the employee. The bill also states that physicians assigning apportionment to the causes of permanent disability by finding what approximate percentage of the disability is a direct result of the employment-related injury versus other factors may not consider genetic predisposition a cause or other factor of disability. Measure failed. |
Florida | 2019 State Bills Florida 2019 SB 258 | Other Topics, Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurers, long-term care insurers, and disability income insurers from certain actions relating to genetic information or genetic testing of applicants. Prohibits these insurers from taking certain actions relating to coverage or rates unless certain conditions are met. Requires entities providing direct-to-consumer genetic testing to obtain prior written authorization to disclose identifying health information to life or health insurers. Died. |
Kentucky | 2019 State Bills Kentucky 2019 SB 152 | Privacy | Died | Creates a parent's right to consent in writing before any record of the minor child�s blood or deoxyribonucleic acid is created, stored, or shared, unless authorized pursuant to a court order or an ongoing criminal investigation. Died. |
Maryland | 2019 State Bills Maryland 2019 SB 953 | Other Topics | Died | A hospital or related institution may not discriminate in admitting or providing personal care based on genetic information. Died. |
Vermont | 2019 State Bills Vermont 2019 H370 | Privacy | Died | Proposes to identify a DNA sample and the results of a DNA analysis performed on the sample as the exclusive property of the person sampled or analyzed and to provide criminal and civil penalties for unlawful DNA collection, analysis, retention, or disclosure. Died. |
Wisconsin | 2020 State Bills Wisconsin 2020 AB 872 | Privacy | Died | Establishes requirements on controllers that process consumers' personal data, including genetic data. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
California | 2019 State Bills California 2019 SB 731 | Privacy | Died | Language in introduced version, which pertained to genetic characteristics and workers compensation, was stricken. Amended version of bill states that peace officer and custodial officer personnel records maintained by a state or local agency are not confidential and are available for public inspection. Records available for inspection include those relating to an incident in which a sustained finding was made by any law enforcement agency or oversight agency that a peace officer or custodial officer engaged in conduct such as verbal statements, writings, online posts, recordings, and gestures, involving prejudice or discrimination against a person on the basis of various factors, including genetic information. Died. |
Georgia | 2015 State Bills Georgia 2015 SB 157 | Privacy | Died | Except as required by the federal Individuals with Disabilities Education Act, specified information, including DNA, may not be collected, entered into any student data base, or maintained as education records by a state agency, local board of education, or school. Died. |
Maine | 2015 State Bills Maine 2015 LD 1251 | Privacy | Died | Prohibits the collection, entry into an education database or maintenance of DNA by as education records by the department of education or school administrative unit. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 547 | Other Topics | Died | Prohibits a hospital or related institution from discriminating in admitting or providing care for an individual based on various factors, including genetic information. Died. |
Minnesota | 2008 State Bills Minnesota 2008 HF 4242 | Other Topics | Died | This bill requires any person who provides a specimen collection kit to a resident of Minnesota for the purpose of collecting genetic material to perform a genetic test to first provide the resident with the disclosure, as described in the legislation. The bill also requires a study to determine which companies and laboratories are providing direct-to-consumer genetic tests to Minnesota residents. Measure failed. |
Missouri | 2021 State Bills Missouri 2021 SJR 26 | Health Insurance Nondiscrimination | Died | Proposes a Constitutional amendment, if approved by the voters, to provide that prohibits health plans from limiting or excluding benefits relating to any condition based on the fact that the condition is a preexisting condition or charging a different premium rate or imposing different out-of-pocket costs for the same coverage based on the fact that a person covered under the plan has a preexisting condition. Genetic information should not be treated as a preexisting condition in the absence of a diagnosis of the condition related to such information. 4/22/2021 Voted Do Pass Senate Insurance and Banking Committee. Died. |
New Mexico | 2019 State Bills New Mexico 2019 HB 141 | Privacy | Died | Prohibits the disclosure of sensitive personal information by a state agency employee acquired by virtue of the employee's position with a state agency to anyone outside the state agency except under specified circumstances. Died. |
New York | 2019 State Bills New York 2019 A2409 | Research | Died | Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Died. |
Tennessee | 2007 State Bills Tennessee 2007 HB 2082 | Health Insurance Nondiscrimination | Died | Prior to amendment, this bill exempt insurance pools created by an association of private, not-for-profit educational institutions that has been in existence for at least 25 years from the provisions governing genetic information nondiscrimination. This language was removed from the final version of the bill. The companion bill substituted with SB 343 signed by the Governor May 15, 2007. |
Washington | 2020 State Bills Washington 2020 HB 2742 | Privacy | Died | Requires controller who determines the purposes and means of the processing of personal data to obtain consent prior to processing sensitive data, including genetic data. Controllers must conduct an assessment of activities pertaining to the processing of sensitive data. Died. |
Alabama | 2012 State Bills Alabama 2012 HB 78 | Privacy | Died | This bill creates the Genetic Information privacy Act. The bill establishes procedures for obtaining, disclosing and storing genetic information as well as penalties for unlawful disclosure. Measure failed. |
Delaware | 2015 State Bills Delaware 2015 SB 68 | Privacy | Died | Restricts the use of a child's personally identifiable information, including DNA and other genetic material, by the operator of an internet service. Substitute bill passed by House and Senate, but substitute bill does not include language regarding DNA and genetic information. Substituted bill was signed by the Governor. |
Illinois | 2020 State Bills Illinois 2020 HB 4656 | Health Insurance Coverage | Died | Amends the Medical Patient Rights Act. Provides that all persons have a right to request an annual breast cancer screening mammogram under the age of 40 if such person has a family history of breast cancer or genetic testing has confirmed likelihood that such person has otherwise tested positive for BRCA1 or BRCA2 mutations. Died. |
Last updated: February 8, 2024