Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
New York | 2007 State Bills New York 2007 A3113 | Health Insurance Coverage | Died | This bill requires health insurers to cover genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk of cancer. Measure failed. |
New York | 2019 State Bills New York 2019 A5651 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive screening for ovarian cancer for persons at high risk, including genetic testing. Died. |
Tennessee | 2019 State Bills Tennessee 2019 HB 459 | Other Topics | Died | Creates a genetic advisory committee. Substituted by 2019 SB 127, which became Pub. Ch. 43 April 3, 2019. |
West Virginia | 2020 State Bills West Virginia 2020 HB 2224 | Health Insurance Coverage | Died | Requires insurance coverage of a comprehensive ultrasound screening of breast if a woman is believed to be at increased risk of cancer based on several factors, including positive genetic testing. Died. |
Massachusetts | 2009 State Bills Massachusetts 2009 H 3809 | Health Insurance Coverage | Died | This bill requires individual accident and sickness policies, individual and group hospital service plans, the group insurance commissionplan for active and retired employees, and individual or group medical service agreement and health maintenance contract to provide benefits on a nondiscrminatory basis for diagnosis and treatment of autism. Diagnosis of autism spectrum disorders is defined to include genetic testing. Accompanied a new draft 2010 H. 4935, which was enacted. |
Minnesota | 2019 State Bills Minnesota 2019 HF 1048 | Other Topics | Died | Establishes a pharmacogenetics task force. Died. |
Nevada | 2021 State Bills Nevada 2021 AB 198 | Health Insurance Coverage | Died | Requires the State Plan for Medicaid to pay the nonfederal share of expenditures incurred to perform genetic testing to detect birth defects in the fetus of a pregnant woman who is 40 years of age or older. Died. |
New York | 2009 State Bills New York 2009 S4782 | Health Insurance Nondiscrimination | Died | This bill prohibits group or blanket policies that cover 51 or more employees for hospital, medical, major medical, or similar type comprehensive coverage from excluding members or dependents or establishing rates based on predisposing genetic characteristics. The bill also prohibits health insurers from requiring or using tests for or information about predisposing genetic characteristics for underwriting. The same restrictions are imposed upon hospital service corporations, health services corporation and medical expense indemnity corporations covering 51 or more employees. Measure failed. |
New York | 2019 State Bills New York 2019 S7083-A | Employment Nondiscrimination | Died | Prohibits an employer, licensing agency, employment agency, or labor organization from subjecting an individual to discriminatory harassment based on various factors, including predisposing genetic characteristics. Prohibits subjecting domestic workers to unwelcome harassment based on genetic information. Died. |
Texas | 2015 State Bills Texas 2015 SB 628 | Privacy | Died | Prohibits a governmental body from capturing or possessing a biometric identified, defined to include DNA, unless it has specific, explicit statutory or has the written consent of the individual or the individual's legal guardian. Died. |
West Virginia | 2021 State Bills West Virginia 2021 HB 3159 | Privacy | Died | Requires a business that collects personal information about consumers to maintain an online privacy policy, make such policy available on its Internet website, and update the information at least once every 12 months. Personal information includes biometric information such as an individual's DNA. 3/15/2021 To House Judiciary. Died. |
Connecticut | 2017 State Bills Connecticut 2017 SB 586 | Health Insurance Coverage | Died | Requires individual and group health insurers to provide coverage for breast cancer chemoprevention counseling, risk assessment, genetic testing and counseling for any woman who is at increased risk for breast cancer due to family history, prior personal history of breast cancer, positive genetic testing or other indications as determined by a health care provider. Died. |
Illinois | 2007 State Bills Illinois 2007 SB 940 | Privacy | Died | This bill was introduced as an amendment to the Genetic Information privacy Act. All language was stricken in a senate amendment and new language was added related to firearms. |
Maryland | 2013 State Bills Maryland 2013 HB 959 | Privacy | Died | Sets forth requirements for governmental units, including an executive, legislative or judicial agency, a department, a board, a commission, an authority, a public institution of higher education, or a unit or instrument of the state that collects or discloses personal information. Defines personal information to include an individual's genetic print. Died. |
Massachusetts | 2020 State Bills Massachusetts 2020 H.4860 | Privacy | Died | Prohibits a public agency or public official from: (1) acquiring, possessing, accessing, using, or assisting with the use of or provide resources for the development or use of any biometric surveillance system, or (2) entering into a contract with or making a request to any third party for the purpose of acquiring, possessing, accessing or using information derived from a biometric surveillance system, unless expressly authorized by law. Biometric data is defined to include deoxyribonucleic acid. Died. |
Mississippi | 2019 State Bills Mississippi 2019 SB 2098 | Other Topics | Died | Allows parents to request exemption of their children from certain activities during a school year, including the collection, tracking, housing, reporting, selling, or sharing with any party outside of the local school district, of noneducational-related information on my child or my family, including, but not limited to DNA sequences. 02/05 (S) Died In Committee. |
New Jersey | 2020 State Bills New Jersey 2020 A4462 | Employment Nondiscrimination | Died | Declares that it is an unlawful employment practice for an employer based on certain factors to require an employee who is the parent or legal guardian of a school aged child to be physically present for work, when that work can be performed remotely, during the public health emergency and state of emergency declared by the Governor. Specified factors include genetic information or the refusal to submit to a genetic test or make available the results of a genetic test. Died. |
New York | 2017 State Bills New York 2017 A1882 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive screening for ovarian cancer. Additional coverage for computed tomography, barium enema X-rays, magnetic resonance imaging (MRI), positron emission tomography, laparoscopy, colonoscopy and biopsy if a person is at increased risk for ovarian cancer due to specified factors, including positive genetic testing. Died. |
Oregon | 2007 State Bills Oregon 2007 HB 3341 | Health Insurance Nondiscrimination | Died | This bill creates the Oregon Health Insurance Exchange and prohibits the treatment of genetic information in the absence of a diagnosis as a pre-existing condition in the exchange. Measure failed. |
Virginia | 2018 State Bills Virginia 2018 HB 1053 | Employment Nondiscrimination | Died | Establishes policies to prevent workplace harassment in the legislative branch. Workplace harassment is defined as unwelcome verbal, written, or physical conduct that either denigrates or shows hostility or aversion toward a person on the basis of certain characteristics, including genetics, that (i) has the purpose or effect of creating an environment that a reasonable person would consider intimidating, hostile, or abusive; (ii) has the purpose or effect of unreasonably interfering with an employee's work performance; or (iii) affects an employee's employment opportunities or compensation. Died. |
California | 2009 State Bills California 2009 SB 145 | Other Topics | Died | This bill prohibits the denial of a workers' compensation claim solely because the motivation behind what caused the employee's injury or injury resulting in death was related to an immutable characteristic of the employee. The bill also states that physicians assigning apportionment to the causes of permanent disability by finding what approximate percentage of the disability is a direct result of the employment-related injury versus other factors may not consider genetic predisposition a cause or other factor of disability. Measure failed. |
Florida | 2019 State Bills Florida 2019 SB 258 | Other Topics, Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurers, long-term care insurers, and disability income insurers from certain actions relating to genetic information or genetic testing of applicants. Prohibits these insurers from taking certain actions relating to coverage or rates unless certain conditions are met. Requires entities providing direct-to-consumer genetic testing to obtain prior written authorization to disclose identifying health information to life or health insurers. Died. |
Kentucky | 2019 State Bills Kentucky 2019 SB 152 | Privacy | Died | Creates a parent's right to consent in writing before any record of the minor child�s blood or deoxyribonucleic acid is created, stored, or shared, unless authorized pursuant to a court order or an ongoing criminal investigation. Died. |
Maryland | 2019 State Bills Maryland 2019 SB 953 | Other Topics | Died | A hospital or related institution may not discriminate in admitting or providing personal care based on genetic information. Died. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.2814 | Privacy | Died | Requires the department of consumer affairs and business to adopt regulations relative to any person that owns or licenses personal information about a resident of the commonwealth. Personal information includes biometric indicators (or any unique biological attribute or measurement that can be used to authenticate the identity of an individual, including but not limited to fingerprints, genetic information, iris or retina patterns, facial characteristics, or hand geometry). 6/27/2018 Accompanied a study order, see H4648. |
Mississippi | 2007 State Bills Mississippi 2007 HB 266 | Employment Nondiscrimination | Died | This bill prohibits employers from using genetic testing for discriminatory purposes. Civil and criminal penalties for violations are set forth. Measure failed. |
New Hampshire | 2019 State Bills New Hampshire 2019 SB 262 | Research | Died | The informational content, including DNA/RNA and genetic sequences, contained in or on abandoned personal material is the property of the individual to whom it pertains regardless of its abandonment. No government or person may acquire, collect, retain or use of such informational content, with some exceptions such as for use by a law enforcement agency. Died on the table. |
New York | 2013 State Bills New York 2013 A3760 | Health Insurance Coverage | Died | Requires policies of hospital, surgical or medical care to provide coverage for ovarian cancer screening. These policies also must provide coverage for specific services if a person is believed to be at increased risk of ovarian cancer to due to family history, personal history or positive genetic testing. Died. |
North Carolina | 2017 State Bills North Carolina 2017 SB 474 | Employment Nondiscrimination, Other Topics | Died | Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to (1) enjoy fully and equally the goods, services, facilities, privileges, advantages, and accommodations of places of public accommodations free of discrimination; and 2) seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Prohibits discrimination in housing practices based on genetic information. Died. |
Texas | 2021 State Bills Texas 2021 SB 962 | Privacy | Died | Requires an individual or the individual�s authorized representative provide express consent for a person to: (1) obtain the individual �s genetic material or genetic information; (2) perform a genetic analysis of the individual or any other analysis or test of the individual that requires the individual �s genetic material; (3) retain the individual �s genetic material or genetic information; or (4) disclose, including through sale or donation, the individual �s genetic material or genetic information. passed_senate. 5/17/2021 Referred to House Public Health Committee. Died. |
Wisconsin | 2017 State Bills Wisconsin 2017 SB 265 | Health Insurance Nondiscrimination | Died | Amends health insurance law pertaining to pre-existing conditions. Insurers may not treat genetic information as a pre-existing condition. Provision stating "without a diagnosis of a condition related to the information" is stricken. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1. |
Alabama | 2012 State Bills Alabama 2012 HB 78 | Privacy | Died | This bill creates the Genetic Information privacy Act. The bill establishes procedures for obtaining, disclosing and storing genetic information as well as penalties for unlawful disclosure. Measure failed. |
Delaware | 2015 State Bills Delaware 2015 SB 68 | Privacy | Died | Restricts the use of a child's personally identifiable information, including DNA and other genetic material, by the operator of an internet service. Substitute bill passed by House and Senate, but substitute bill does not include language regarding DNA and genetic information. Substituted bill was signed by the Governor. |
Illinois | 2020 State Bills Illinois 2020 HB 4656 | Health Insurance Coverage | Died | Amends the Medical Patient Rights Act. Provides that all persons have a right to request an annual breast cancer screening mammogram under the age of 40 if such person has a family history of breast cancer or genetic testing has confirmed likelihood that such person has otherwise tested positive for BRCA1 or BRCA2 mutations. Died. |
Maryland | 2015 State Bills Maryland 2015 SB 703 | Other Lines of Insurance Nondiscrimination | Died | For a stop-loss insurance policy or contract issues to a small employer, a medical stop-loss insurer may not increase cost-sharing or decrease coverage for a specific individual within the plan or exclude any employee or dependent base on an actual or expected health-status related factor, including genetic information. Died. |
Michigan | 2017 State Bills Michigan 2017 HB 4514 | Employment Nondiscrimination | Died | Requires employers of 50 people or more to post a notice that it is illegal under federal law to pay employees different wages for the same work based on certain criteria, including genetic information. Died. |
Missouri | 2018 State Bills Missouri 2018 HB 1761 | Privacy | Died | Prohibits school district from collecting biometric information on any student without express written consent of the student�s parent or legal guardian. Biometric information includes a DNA sequence. Died. |
New Jersey | 2021 State Bills New Jersey 2021 S4199 | Privacy | Died | Prohibits a teaching staff member employed by a board of education from inputting the individually identifiable health information of a student or members of a student�s family, or conversations concerning such information, into a third party software application managed by an entity that engages in partisan political activity. The bill defines individually identifiable health information as any information, including genetic or vaccination information, relating to the past, present, or future physical or mental health or condition of an individual that either identifies the individual or could reasonably be used to identify the individual. Died. |
New York | 2018 State Bills New York 2018 A9780 | Privacy | Died | Establishes a personal information bill of rights. Declares the right of all New Yorkers to have their personal information, including DNA, protected. Died. |
South Carolina | 2020 State Bills South Carolina 2020 SB 4812 | Privacy | Died | Sets forth requirements for the collection and use of consumer biometric information by businesses. Biometric information is defined to include an individual's DNA. Died. |
Washington | 2019 State Bills Washington 2019 HB 2018 | Employment Nondiscrimination | Died | Concerns harassment and discrimination by legislators and legislative branch employees, including discrimination based on genetic status. Substitute bill, which did not include genetic discirmination provision, was enacted. |
California | 2019 State Bills California 2019 SB 731 | Privacy | Died | Language in introduced version, which pertained to genetic characteristics and workers compensation, was stricken. Amended version of bill states that peace officer and custodial officer personnel records maintained by a state or local agency are not confidential and are available for public inspection. Records available for inspection include those relating to an incident in which a sustained finding was made by any law enforcement agency or oversight agency that a peace officer or custodial officer engaged in conduct such as verbal statements, writings, online posts, recordings, and gestures, involving prejudice or discrimination against a person on the basis of various factors, including genetic information. Died. |
Georgia | 2015 State Bills Georgia 2015 SB 157 | Privacy | Died | Except as required by the federal Individuals with Disabilities Education Act, specified information, including DNA, may not be collected, entered into any student data base, or maintained as education records by a state agency, local board of education, or school. Died. |
Maine | 2015 State Bills Maine 2015 LD 1251 | Privacy | Died | Prohibits the collection, entry into an education database or maintenance of DNA by as education records by the department of education or school administrative unit. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 547 | Other Topics | Died | Prohibits a hospital or related institution from discriminating in admitting or providing care for an individual based on various factors, including genetic information. Died. |
California | 2021 State Bills California 2021 AB 60 | Other Topics | Died | A certified peace officer must have their certificate suspended or revoked, and an applicant must have their application for a certificate denied, upon a determination that the peace officer or applicant meets certain conditions. Requires the development of a definition of �serious misconduct," which will serve as the criteria to be considered for suspension or revocation of a certificate. This definition must include certain examples of serious misconduct such as bias in the performance of a peace officer or custodial officer�s duties, including, but not limited to, verbal statements, writings, online posts, recordings, and gestures involving prejudice or discrimination against a person on the basis of genetic information. Carries over to 2022. |
Hawaii | 2019 State Bills Hawaii 2019 SB 1043 | Health Insurance Coverage | Died | Requires health insurers, mutual benefit societies and health maintenance organizations to provide coverage for: (1) screening to determine whether counseling and testing related to the BRCA1 or BRCA2 genetic mutation is indicated; and (2) genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died. |
Maryland | 2009 State Bills Maryland 2009 HB 12 | Privacy | Died | This bill restricts access to, use of and retention of DNA samples and disclosure of DNA test results without consent with some exceptions. The bill also provides personal property rights to DNA samples and DNA test results. The bill requires the health department to develop a uniform written informed consent form. Civil and criminal penalties are set forth, and individuals whose rights are violated may bring civil action. Measure failed. |
Massachusetts | 2018 State Bills Massachusetts 2018 H.4865 | Health Insurance Coverage | Died | Requires health_insurance_coverage for certain genetically targeted drugs for Duchenne muscular dystrophy. Died. |
Mississippi | 2016 State Bills Mississippi 2016 HB 449 | Health Insurance Nondiscrimination | Died | Creates the small business health insurance pool. Health benefit plans covering small employers may not use genetic information to establish a pre-existing condition exclusion in the absence of a diagnosis of a condition related to the genetic information. 2/23/2016 (H) Died In Committee. |
Last updated: February 8, 2024