Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State Sort descending | Primary Link | Topic(s) | Bill Status | Summary |
---|---|---|---|---|
Texas | Texas SB 1697 | Neonatal sequencing | Introduced | Relating to an annual report regarding certain newborn screening tests. |
Texas | Texas HB 2545 | Genetic data storage/privacy/sharing (industry) | Approved | Relating to an individual's genetic data, including the use of that data by certain genetic testing companies for commercial purposes and the individual's property right in DNA; authorizing a civil p... |
Texas | 2021 State Bills Texas 2021 SB 1952 | Privacy | Died | Relates to the capture and use of an individual's biometric identifiers, specimen, or genetic information by a governmental body or peace officer or by a person for commercial purposes. Died. |
Texas | State StatuteTexas: Health and Safety Code 33.0111 et seq. | Use of Residual Newborn Screening Specimens | Statute | Reports, records, and information obtained by the health department for newborn screening that do not identify a child or the family of a child will not be released for public health research purposes unless a parent, managing conservator, or guardian of the child consents to disclosure. Newborn screening blood spots and associated data are confidential under law and may only be used as specified. If a family consents to disclosure of nonidentifiable reports, records and information for public health research, any subsequent disclosures must be approved by an IRB or privacy board of the health department and the Health Commissioner or his or her designee. research for public health purposes is defined to include purposes that relate to cancer, a birth defect, an infectious disease, a chronic disease, environmental exposure, or newborn screening. |
Texas | 2015 State Bills Texas 2015 SB 628 | Privacy | Died | Prohibits a governmental body from capturing or possessing a biometric identified, defined to include DNA, unless it has specific, explicit statutory or has the written consent of the individual or the individual's legal guardian. Died. |
Texas | 2021 State Bills Texas 2021 SB 962 | Privacy | Died | Requires an individual or the individual�s authorized representative provide express consent for a person to: (1) obtain the individual �s genetic material or genetic information; (2) perform a genetic analysis of the individual or any other analysis or test of the individual that requires the individual �s genetic material; (3) retain the individual �s genetic material or genetic information; or (4) disclose, including through sale or donation, the individual �s genetic material or genetic information. passed_senate. 5/17/2021 Referred to House Public Health Committee. Died. |
Texas | State StatuteTexas: TS (Insurance) Code 546.001 et seq. | Health Insurance Nondiscrimination, Privacy, Research | Statute | Individual and group health benefit plans that request an applicant for coverage to submit to a genetic test for a permissible purpose must notify the applicant that the test is required, disclose to the applicant the proposed use of the results, and obtain prior written informed consent. A health benefit plan issuer may not use genetic information or the refusal of an applicant to submit to a genetic test to reject, deny, limit, cancel, refuse to renew, increase the premiums for, or otherwise adversely affect eligibility for or coverage under the plan. Genetic material obtained from an individual for a genetic test must be destroyed promptly after the purpose for which it was obtained with some exceptions, including (1) authorized retention of the sample for medical treatment or scientific research or (2) if the sample was obtained for research that is cleared by an institutional review board, and retention of the sample is under a requirement the institutional review board imposes on a specific research project or authorized by the research participant with institutional review board approval under federal law. A health benefit plan issuer may redisclose genetic information without authorization for actuarial or research studies if the tested individual could not be identified in any actuarial or research report and any materials that identify a tested individual are returned or destroyed as soon as reasonably practicable. |
Texas | 2017 State Bills Texas 2017 HB 3491 | Privacy | Died | Limits the use of biometric identifiers by governmental bodies. Biometric identifiers are defined to include a DNA sample. Died. |
Texas | State StatuteTexas: TS (Insurance) Code 846.01 and 1501.001 et seq. | Health Insurance Nondiscrimination | Statute | Pre-existing conditions and health status-related factors are defined to include genetic information with respect to multiple-employer welfare arrangements and the health insurance portability and accountability act. |
Texas | 2017 State Bills Texas 2017 SB 1872 | Privacy | Died | Pertains to medical authorization required to release protected health information in a health care liability claim. Allows the patient or patient's personal or legal representative to exclude genetic information from the authorization. Died. |
Texas | State StatuteTexas: TS (Labor) Code 21.401-405 | Employment Nondiscrimination | Statute | It is an unlawful employment practice if an employer, labor organization, or employment agency discriminates against an individual on the basis of genetic information or refusal to submit to a genetic test. An employer, labor organization, or employment agency commits an unlawful employment practice if these entities limit, segregate, or classify an employee, member, or applicant in a way that would deprive or tend to deprive the employee, member, or applicant of employment opportunities or otherwise adversely affect the status of his or her status on the basis of genetic information or the refusal to submit to a genetic test. |
Texas | 2017 State Bills Texas 2017 SB 281 | Privacy | Died | Limits the use of biometric identifiers by governmental bodies. Biometric identifiers are defined to include a DNA sample. Died. |
Texas | State StatuteTexas: TS (Labor) Code 301.156 | Employment Nondiscrimination | Statute | The Texas Workforce Commission collects and reports on complaints of employment discrimination, including those related to the use of genetic information. |
Texas | 2017 State Bills Texas 2017 SJR 44 | Other Topics | Died | Proposes a Constitutional Amendment providing for the recognition of equal rights of all people. States that equality under the law may not be denied or abridged based on numerous factors, including genetic information. Died. |
Texas | State StatuteTexas: TS (Occupations) Code 58.001 et seq. | Employment Nondiscrimination, Privacy, Research | Statute | The statutes restrict the use and disclosure of genetic tests and the use of family history by a licensing authority. A sample obtained from an individual for a genetic test must be destroyed promptly after the purpose for which the sample was obtained with some exceptions, including (1) authorized retention of the sample for medical treatment or scientific research or (2) if the sample was obtained for research that is cleared by an institutional review board, and retention of the sample is under a requirement the institutional review board imposes on a specific research project or authorized by the research participant with institutional review board approval under federal law. Genetic information may not be disclosed without written authorization with some exceptions, including (1) if the disclosure is for information from a research study in which the procedure for obtaining informed written consent and the use of the information is governed by national standards for protecting participants involved in research projects, including guidelines issued under 21 C.F.R. Part 50 and 45 C.F.R. Part 46 and (2) the information does not identify a specific individual. |
Texas | 2019 State Bills Texas 2019 HB 4127 | Health Insurance Nondiscrimination | Died | Creates the Healthy Texas Program. The board for the program must create policies that promote nondiscrimination with respect to members and providers with regard to genetic information. Died. |
Texas | 2011 State Bills Texas 2011 HB 2110 | Privacy | Died | This bill gives an individual property rights to his or her DNA sample. A person may not collect a DNA sample, perform a genetic test or retain a DNA sample, with few exceptions such as for law enforcement purposes. Measure failed. |
Utah | State StatuteUtah: UC 13-58-101 et seq. | Privacy | Statute | Enacts the Genetic Information privacy Act. Requires a direct-to-consumer genetic testing company to: |
Utah | State StatuteUC 26-18-25 | Health Insurance Coverage | Statute | Requires the Medicaid program to reimburse for exome sequencing for undiagnosed enrollees under the age of 21. |
Utah | State StatuteUtah: UC 26-45-101 et seq. | Employment Nondiscrimination, Health Insurance Nondiscrimination, Privacy | Statute | An employer may not in connection with a hiring, promotion, retention, or other related decision access or (1) take into account genetic information, (2) request or require an individual to consent to release genetic information, (3) submit to a genetic test, or (4) inquire or take into account that an individual or blood relative of that person has taken a genetic test. An employer may compel disclosure of genetic information for specified reasons. A health care insurer may not in connection with the offer or renewal of an insurance product or in the determination of any underwriting decision access or otherwise (1) take into consideration private genetic information about an asymptomatic individual, (2) request or require an asymptomatic individual to consent to a release for the purpose of accessing private genetic information, (3) request or require an asymptomatic individual or his blood relative to submit to a genetic test, or (4) inquire into or otherwise take into consideration the fact that an asymptomatic individual or his blood relative has taken or refused to take a genetic test. An individual whose rights have been violated bring civil action. |
Utah | State StatuteUtah: UC 53A-1-1401 et seq. | Privacy | Statute | Governs the use of biometric identifiers, including human biological samples used for valid scientific testing or screening, by educational entities. |
Utah | State StatuteUtah: UC 31A-1-301, 31A-22-620, 31A-22-1602 | Health Insurance Nondiscrimination | Statute | Genetic information may not be treated as a pre-existing condition in the absence of a diagnosis. The genetic testing privacy act, which prohibits health insurance discrimination, is applicable to insurers except as permitted under the Medicare Supplement Minimum Standards Act. The insurance commissioner may adopt rules regarding nondiscrimination for genetic testing or genetic information in Medicare supplement policies and certificates. |
Utah | 2016 State Bills Utah 2016 HB 358 | Privacy | Enacted | Governs the use of biometric identifiers, including human biological samples used for valid scientific testing or screening, by educational entities. Signed by the Governor on 3/23/2016. |
Utah | 2020 State Bills Utah 2020 HB 231 | Employment Nondiscrimination, Health Insurance Nondiscrimination | Died | Removes provisions regulating an employer's and a health insurer's use of personal genetic information. Died. |
Utah | 2019 State Bills Utah 2019 HB 435 | Health Insurance Coverage | Enacted | Requires the Medicaid program to reimburse for exome sequencing for undiagnosed enrollees under the age of 21. March 26, 2019 Governor Signed. Effective 60 days after adjournment on March 14, 2019. |
Last updated: September 14, 2023