Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
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West Virginia | 2014 State Bills West Virginia 2014 SB 420 | Privacy | Died | Creates a Longitudinal Data System, which links child care, student and workforce unit record data, and governing board of the system. The governing board must prohibit the collection of confidential information, which includes genetic information. Died. |
California | 2020 State Bills California 2020 AB 2222 | Privacy | Died | Requires a genealogy company, defined as a person that is not subject to HIPAA and obtains the DNA of a person through submission of a saliva sample or other methods, to display a notice in all advertising, it�s privacy policies, at the point of sale of the product, and on product packaging. The notice must contain information about the company's privacy policy. Died. |
Hawaii | 2018 State Bills Hawaii 2018 HB 2127 | Health Insurance Coverage | Died | Requires health insurers, mutual benefit societies, and health maintenance organizations to provide coverage for genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died. |
Maine | 2021 State Bills Maine 2021 LD 1714 | Privacy | Died | Establishes consumer rights with respect to personal information collected by a business. Personal information includes biometric information. Biometric information is defined to include deoxyribonucleic acid. Died Between Houses, Jun 2, 2021. |
Massachusetts | 2019 State Bills Massachusetts 2019 H.180 | Other Topics | Died | Pertains to municipal master plans. Master plans developed should take into account to the extent feasible ways in which future policies and programs can advance equity based on various factors such as genetic information. Died. |
Massachusetts | 2020 State Bills Massachusetts 2020 S.2800 | Privacy | Died | Prohibits an agency, executive office, department, board, commission, bureau, division or authority of the commonwealth or a political subdivision thereof, or any agent, contractor or subcontractor thereof, from acquiring, possessing, accessing or using any biometric surveillance system or any information derived from a biometric surveillance system operated by another entity. Allows certain exceptions such as the use of facial recognition technology by the registrar or motor vehicles. Biometric data is defined to include deoxyribonucleic acid. 7/14/20 Passed to be engrossed. Reprinted as amended, see S2820. Died. |
Missouri | 2014 State Bills Missouri 2014 HB 1873 | Privacy | Died | This bill requires a state agency or education institution to obtain written consent from parents or eligible students before collecting any certain data points, including a biometric record (defined to include DNA). Died. |
New Jersey | 2020 State Bills New Jersey 2020 S1136 | Other Topics | Died | Prohibits discrimination in health programs or activities based on certain factors, including genetic information. Died. |
New York | 2017 State Bills New York 2017 A8752 | Employment Nondiscrimination | Died | Prohibits clients and modeling agencies from subjecting a model to harassment based on various characteristics, including predisposing genetic characteristics, where such harassment has the purpose or effect of unreasonably interfering with an individual's provision of modeling services by creating an intimidating, hostile, or offensive environment. Died. |
Rhode Island | 2019 State Bills Rhode Island 2019 S234 | Privacy | Died | Enacts the Consumer Protection privacy Act. Establishes consumer protections pertaining to the collection and use of personal information, including an individual's DNA, by businesses. Died. |
Virginia | 2020 State Bills Virginia 2020 HB 553 | Employment Nondiscrimination | Died | Requires the legislative branch of the Commonwealth to develop a policy on workplace harassment. Workplace harassment is defined as any unwelcome verbal, written, or physical conduct that either denigrates or shows hostility or aversion toward a person on the basis of various factors, including genetics. Died. |
Arkansas | 2015 State Bills Arkansas 2015 HB 1827 | Privacy | Died | Enacts the Parents' Bill of Rights. A parent must consent in writing before a biometric scan of a minor child or a record of a minor child's blood or DNA is created, shared, or stored. April 2, 2015 Recommended for study in the Interim by Joint Interim Committee on JUDICIARY COMMITTEE- HOUSE |
Florida | 2019 State Bills Florida 2019 SB 1486 | Health Insurance Nondiscrimination | Died | Creates Healthy Florida Program for purpose of comprehensive universal single-payer health care coverage. The Board of the program must establish requirements and standards to promote nondiscrimination, including based on genetic information. Died. |
Kentucky | 2018 State Bills Kentucky 2018 HB 188 | Privacy | Died | Requires certain information holders to encrypt personally identifiable data, which is defined to include a genetic print. Information holders must report a breach of personally identifiable information to consumers. Died. |
Maryland | 2019 State Bills Maryland 2019 SB 786 | Privacy | Died | A business that owns or licenses computerized data that includes personal information such as genetic information of an individual must conduct a reasonable and prompt investigation upon the breach of the security of a system. April 3, 2019 Unfavorable Report by Finance. |
Massachusetts | 2014 State Bills Massachusetts 2014 S.2294 | Research | Died | This bill states that any public health surveillance activity which is also research is subject to the requirements for research using human subjects. Died. |
Minnesota | 2019 State Bills Minnesota 2019 SF 2912 | Privacy | Died | Businesses must conduct risk assessments of processing activities that involve sensitive consumer data, including genetic data. Died. |
New Hampshire | 2016 State Bills New Hampshire 2016 HB 1493 | Privacy | Died | Declares that an individual's genetic information and DNA sample are the property of the individual. Committee Report: Referred to Interim Study, 05/05/2016. |
New York | 2011 State Bills New York 2011 A2837 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits discrimination based on genetic characteristics in life and disability insurance. Measure failed. |
New York | 2020 State Bills New York 2020 S8448 | Privacy | Died | Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Died. |
Texas | 2017 State Bills Texas 2017 SJR 44 | Other Topics | Died | Proposes a Constitutional Amendment providing for the recognition of equal rights of all people. States that equality under the law may not be denied or abridged based on numerous factors, including genetic information. Died. |
Wisconsin | 2013 State Bills Wisconsin 2013 AB 269 | Employment Nondiscrimination | Died | Permits the Department of Workforce Development (DWD) or a person who has been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court to recover compensatory and punitive damages caused by the act of discrimination or unfair honesty or genetic testing after the completion of all administrative proceedings before DWD and the Labor and Industry Review Commission concerning the violation. Failed to pass pursuant to Senate Joint Resolution 1. |
Connecticut | 2015 State Bills Connecticut 2015 HB 5832 | Health Insurance Coverage | Died | Adds tomosynthesis to health_insurance_coverage requirements if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. Died. |
Idaho | 2014 State Bills Idaho 2014 SB 1385 | Privacy | Died | Unless explicitly mandated by federal statute, a state agency, district or education institution must obtain written consent from parents or eligible students before collecting biometric records, defined to include a DNA sequence. Died. |
Maryland | 2010 State Bills Maryland 2010 HB 504 | Employment Nondiscrimination | Died | This bill amends the employment discrimination law to state that an unlawful employment practice is established, including discrimination based on genetic information, when the complainant demonstrates that genetic information was a motivating factor for any employment practice even though other factors motivated the practice. Measure failed. |
Connecticut | 2021 State Bills California 2021 SB 6626 | Health Insurance Coverage | Died | Requires individual health insurance policies to provide coverage for diagnostic and screening mammograms under certain circumstances. Positive genetic testing for the harmful variant of breast cancer gene one, breast cancer gene two or any other gene variant that materially increases the insured's risk for breast cancer fulfills the criteria for required coverage. Died. |
Illinois | 2019 State Bills Illinois 2019 SB 1307 | Privacy | Died | Amends the Genetic Information privacy Act provisions concerning uses and disclosures for treatment, payment, health care operations, health oversight activities, and public health activities; uses and disclosures of information to a health information exchange; business associates; and establishment and disclosure of limited data sets and de-identified information. Provides that various uses or disclosures of a patient's genetic information may not (rather than may) occur without the patient's consent. Died. |
Maryland | 2015 State Bills Maryland 2015 HB 552 | Other Lines of Insurance Nondiscrimination | Died | For a stop-loss insurance policy or contract issues to a small employer, a medical stop-loss insurer may not increase cost-sharing or decrease coverage for a specific individual within the plan or exclude any employee or dependent base on an actual or expected health-status related factor, including genetic information. Died. |
Minnesota | 2008 State Bills Minnesota 2008 HF 3438/SF 3138 | Use of Residual Newborn Screening Specimens | Died | This bill excludes the health department's collection, use, storage and dissemination of genetic information and blood specimens for testing infants for heritable and congenital disorders from the law governing genetic information collected by a government entity. The bill also requires that parents are provided information about how specimens may be used and allows parents to opt out of public health studies or research. Measure failed. |
Missouri | 2021 State Bills Missouri 2021 HB 995 | Research, Use of Residual Newborn Screening Specimens | Died | Amends statute section pertaining to the release of residual newborn screening specimens for anonymous scientific study. Requires consent of parent or legal guardian be obtained for such release at the time of specimen collection. 2/23/2021 - House public hearing completed. Died. |
New Mexico | 2013 State Bills New Mexico 2013 HB 366 | Health Insurance Coverage | Died | An individual or group health insurance policy, health care plan or certificate of health insurance that is delivered or issued for delivery in New Mexico must provide certain benefits that have, in effect, a rating of "A" or "B" in the current recommendations of the United States preventive services task force, for various services, including genetic counseling and evaluation for breast cancer BRCA-gene testing for women whose family histories are associated with an increased risk for deleterious mutations in BRCA1 or BRCA2 genes. Died in Committee. |
New York | 2019 State Bills New York 2019 A1911 | Privacy | Died | Requires biometric identifies and information to be treated in a manner similar to confidential and sensitive information such as a genetic marker or genetic testing information. Died. |
South Dakota | 2013 State Bills South Dakota 2013 HB 1238 | Health Insurance Coverage | Died | Every policy of group or individual health insurance, each service or indemnity-type contract issued by a nonprofit medical or surgical service plan corporation and each health maintenance contract that covers a female, that is delivered, issued for delivery, or renewed in South Dakota, and that provides coverage for occult breast cancer screening must provide additional benefits for (1) comprehensive ultrasound screening if a mammogram demonstrates heterogeneous or dense breast tissue based on the Breast Imaging Reporting and Data System established by the American College of Radiology or if a woman is believed to be at an increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman's physician or advanced practice registered nurse; and (2) magnetic resonance imaging in accordance with guidelines established by the American Cancer Society or the American College of Radiology or if a woman is believed to be at an increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman's physician or advanced practice registered nurse. Died. |
Washington | 2020 State Bills Washington 2020 HB 2273 | Other Topics | Died | Creates a study committee on human genome editing. Died. |
California | 2018 State Bills California 2018 AB 2765 | Employment Nondiscrimination | Died | Prohibits discrimination in a digital marketplace or otherwise acting upon applications to participate with a digital marketplace as a marketplace contractor based on an individual's genetic characteristics. Died. |
Georgia | 2010 State Bills Georgia 2010 SB 408 | Health Insurance Nondiscrimination | Died | This bill prohibits a health group cooperative from excluding a small employer based on a health status-related factor, including genetic information in relation to an employee or dependent of an employee. Measure failed. |
Louisiana | 2020 State Bills Louisiana 2020 HB 408 | Health Insurance Coverage | Died | Requires coverage of cancer treatment targeting a specific genetic mutation. Prohibits a health coverage plan from denying coverage for a medically necessary drug on the basis that the drug is not indicated for the location in the body of the patient's cancer, if the drug is FDA approved for the treatment of the specific mutation of the patient's cancer. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 201 | Privacy | Died | Amends the Personal Information Protection Act by adding activity tracking data to the scope of protected information. Activity tracking data is defined to include genetic information; genetic samples; genetic tests of an individual or family member; and requests for or receipt of a genetic test, genetic counseling or genetic education. Died. |
Massachusetts | 2017 State Bills Massachusetts 2017 S.1120 | Other Topics | Died | Prohibits local or state administrative, legislative or regulatory body or instrumentality from engaging in discriminatory land use practices based on a variety of factors, including genetic information. Died. |
Mississippi | 2010 State Bills Mississippi 2010 HB 825 | Health Insurance Nondiscrimination | Died | This bill prohibits group health benefit plans from imposing pre-existing condition exclusions based on genetic information in the absence of a diagnosis. Measure failed. |
New Jersey | 2007 State Bills New Jersey 2007 A4170 | Employment Nondiscrimination | Died | This bill prohibits employers from (1) seeking to obtain or use a genetic test or genetic information, (2) requiring a genetic test or genetic information, (3) accessing or requesting or requiring consent to access genetic information, (4) requesting or requiring a genetic test from an individual or family member, or (5) inquiring about whether an individual or family member has taken or refused to take a genetic test. Civil penalties are set forth for violations. Measure failed. |
New York | 2013 State Bills New York 2013 A6527 | Privacy | Died | This bill establishes the Medicaid identification and anti-fraud biometric technology pilot program. Biometric technologies includes, but is not limited to, DNA and other identifiers. Died. |
North Carolina | 2019 State Bills North Carolina 2019 SB 455 | Other Topics | Died | Prohibits unlawful discriminatory practice based on protected status, including genetic information. Died. |
Utah | 2021 State Bills Utah 2021 SB 200 | Privacy | Died | Provides consumers the right to access, correct, and delete certain personal data. Gives consumers the right to opt out of the collection and use of personal data for certain purposes. Requires certain businesses that control and process personal data of consumers to: safeguard personal data; provide clear information to consumers regarding how the consumer's personal data are used; accept consumer requests to exercise the consumer's rights under this bill; comply with a consumer's request to exercise the consumer's rights under this bill; and maintain data protection assessments. Creates a process for a consumer to submit requests and appeal a business's decision regarding the business's processing of the consumer's personal data. Allows the Division of Consumer Protection to accept and investigate consumer complaints regarding the processing of personal data. Creates a right for a consumer to know what personal information a business collects, how the business uses the personal information, and whether the business sells the personal information. Allows a consumer to require a business to delete personal information, with |
Wisconsin | 2020 State Bills Wisconsin 2020 AB 870 | Privacy | Died | Requires controllers of consumers' personal data to provide a consumer with copies of the consumer's personal data processed by the controller. Personal data includes genetic information. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Massachusetts | 2019 State Bills Massachusetts 2019 H.287 | Privacy | Died | Amends data security protections to include biometric information, which is defined to include genetic information. 10/26/2020 Accompanied a study order, see H5043. Died. |
Mississippi | 2017 State Bills Mississippi 2017 HB 175 | Health Insurance Nondiscrimination | Died | Creates the small business health insurance pool. Health benefit plans covering small employers may not exclude genetic information as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. 1/31/2017 Died in Committee. |
New Jersey | 2018 State Bills New Jersey 2018 SJR115 | Other Topics | Died | Establishes the New Jersey Pharmacogenomics Commission. Died. |
New York | 2015 State Bills New York 2015 A323 | Health Insurance Coverage | Died | Requires policies that provide coverage for hospital, surgical or medical to cover screening for ovarian cancer, including genetic testing. Additional coverage is required if genetic testing is positive. Died. |
Oklahoma | 2015 State Bills Oklahoma 2015 HB 1742 | Other Topics | Died | The Office of Management and Enterprise Services must contract with a vendor to conduct a pilot project to determine incentives to both health care providers and patients for each care encounter in which the provider and patient incorporate genetic testing for ability to metabolize prescription drugs, drug testing of persons prescribed narcotics and other proven medical interventions made available and recorded through the program in the rendering and utilization of health care. Died. |
Last updated: September 14, 2023