Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State Sort descending | Primary Link | Topic(s) | Bill Status | Summary |
---|---|---|---|---|
New York | 2015 State Bills New York 2015 A291 | Health Insurance Coverage | Died | This bill requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died. |
New York | 2021 State Bills New York 2021 S105 | Health Insurance Coverage | Pending | Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Carries over to 2022. |
New York | 2009 State Bills New York 2009 S935 | Health Insurance Nondiscrimination | Died | his bill prohibits the use of genetic information for community rating to develop small group health insurance premiums. The bill also prohibits pre-existing condition exclusions in small group health insurance policies based on genetic predisposition. Measure failed. |
New York | 2020 State Bills New York 2020 A10583 | Privacy | Died | Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Died. |
New York | 2017 State Bills New York 2017 A2461 | Other Topics | Died | Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling. Participation in the program is voluntary, and all information is confidential. Died. |
New York | 2018 State Bills New York 2018 S7555 | Privacy | Died | Enacts the Personal Information Protection Act. Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security of this information. Personal information includes DNA samples. Died. |
New York | 2013 State Bills New York 2013 A3761 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers if recommended by a board-certified geneticist or board-certified genetic counselor. Died. |
New York | 2021 State Bills New York 2021 A3586 | Privacy | Pending | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information, including biometric data. Biometric information is defined to include DNA. Carries over to 2022. |
New York | 2007 State Bills New York 2007 S2696 | Health Insurance Nondiscrimination | Died | This bill prohibits the use of genetic information for community rating to develop small group health insurance premiums. The bill also prohibits pre-existing condition exclusions in small group health insurance policies based on genetic predisposition. Measure failed. |
New York | 2019 State Bills New York 2019 A5976 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
New York | 2019 State Bills New York 2019 S5140 | Privacy | Enacted | Directs the commissioner of education to conduct a study on the use of biometric identifying technology; prohibits the use of biometric identifying technology in schools until July 1, 2022, or until the commissioner authorizes such purchase or utilization. Biometric information is defined to include a DNA sequence. 12/22/2020 Signed by the Governor. Effective immediately. |
New York | State StatuteNew York: NYCL (EDN) 2e and (STT) 106-b | Privacy | Statute | Directs the director of the office of information technology services to conduct a study on the use of biometric identifying technology. Prohibits the use of biometric identifying technology in schools until July 1, 2022 or until the commissioner of education authorizes such purchase or utilization, whichever occurs later. Biometric identifier is defined to include a DNA sequence. |
New York | 2015 State Bills New York 2015 A299 | Health Insurance Coverage | Died | The bill requires every policy of hospital, surgical or medical care or policies that provide reimbursement for laboratory tests or diagnostic X-rays must provide coverage for testing of familial dysautonomia, Canavan's disease and Tay-Sachs. Died. |
New York | 2021 State Bills New York 2021 S4021 | Privacy | Pending | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information, including biometric data. Carries over to 2022. |
New York | 2011 State Bills New York 2011 A1840 | Use of Residual Newborn Screening Specimens | Died | This bill prohibits the retention of DNA, blood spots or other genetic information with an infant's identifying information for any period of time or for any purpose other than newborn screening without parental consent. Measure failed. |
New York | 2019 State Bills New York 2019 S1915 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
New York | 2017 State Bills New York 2017 A6661 | Other Topics | Died | A Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. Died. |
New York | 2019 State Bills New York 2019 A1221 | Employment Nondiscrimination | Died | Creates a company climate report system to assess the workplace environment of companies doing business in New York. Requires companies to submit biennial climate reports based on an anonymous survey of employees to assess the workplace environment including, but not limited to, pay equity, sexual harassment and discrimination based on various factors, an individual's predisposing genetic characteristics. Died. |
New York | 2013 State Bills New York 2013 A4038 | Health Insurance Coverage | Died | Every policy that provides medical coverage, including coverage for physician services in a physician's office, and every policy that provides major medical or similar comprehensive coverage must cover the cost of genetic testing and any subsequent treatment resulting from the results of the genetic test for people who are, in the opinion of a physician, at significant risk of contracting cancer. Died. |
New York | 2021 State Bills New York 2021 A3709 | Privacy | Pending | Grants a consumer a right to request a business to disclose the categories and specific pieces of personal information such as biometric information that it collects about the consumer, the categories of sources from which that information is collected, the business purposes for collecting or selling the information, and the categories of third parties with which the information is shared. Biometric information is defined to include an individual's deoxyribonucleic acid. Carries over to 2022. |
New York | 2007 State Bills New York 2007 S3449 | Health Insurance Nondiscrimination | Died | This bill prohibits group or blanket policies that cover 51 or more employees for hospital, medical, major medical, or similar type comprehensive coverage from excluding members or dependents or establishing rates based on predisposing genetic characteristics. The bill also prohibits health insurers from requiring or using tests for or information about predisposing genetic characteristics for underwriting. The same restrictions are imposed upon hospital service corporations, health services corporation and medical expense indemnity corporations covering 51 or more employees. Measure failed. |
New York | 2019 State Bills New York 2019 A7736 | Privacy | Died | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information. Personal information includes biometric information such as DNA. Died. |
New York | 2019 State Bills New York 2019 S6448 | Research | Enacted | Amends the public health law, in relation to authorizing human research in compliance with federal law. 9/13/2019 Signed by the Governor. |
New York | State StatuteNew York: NYCL (EDN) 363 | Other Topics | Statute | Requires the state university of New York to issue a request for proposals to partner with hospitals both within the state university of New York and other not-for-profit hospitals and non-profit higher education research institutions to map the genomes of individuals suffering from or at risk of Alzheimer's. |
New York | 2015 State Bills New York 2015 A312 | Use of Residual Newborn Screening Specimens | Died | Requires parental consent for newborn DNA storage. The bill states that no test, DNA, blood spot, or other genetic information may be retained with an infant's identifying information other than for the purpose of newborn screening without parental consent. Died. |
New York | 2021 State Bills New York 2021 S567 | Privacy | Pending | Grants a consumer a right to request a business to disclose the categories and specific pieces of personal information such as biometric information that it collects about the consumer, the categories of sources from which that information is collected, the business purposes for collecting or selling the information, and the categories of third parties with which the information is shared. Biometric information is defined to include an individual's deoxyribonucleic acid. Carries over to 2022. |
New York | 2011 State Bills New York 2011 A2325 | Health Insurance Coverage | Died | This bill requires accident and health insurance policies to cover the cost of genetic testing of people with a family history of cancer when his or her physician determines that there is a significant risk of developing cancer. Measure failed. |
New York | 2020 State Bills New York 2020 S4109 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
New York | 2017 State Bills New York 2017 A6878 | Research | Died | Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Died. |
New York | 2019 State Bills New York 2019 A1890 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
New York | 2013 State Bills New York 2013 A506 | Use of Residual Newborn Screening Specimens | Died | This bill requires written parental consent to store a newborn's test, blood spot or other genetic information for any purpose other than newborn screening. Died. |
New York | 2021 State Bills New York 2021 A3802 | Research | Pending | Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Addresses exclusion or inclusion of subjects to participate in human research based on race, ethnicity or sex. Requires reporting certain information relating to the collection of data. Provides that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Carries over to 2022. |
New York | 2009 State Bills New York 2009 A1445 | Research | Died | This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Measure failed. |
New York | 2019 State Bills New York 2019 A8125 | Research | Died | Authorizes human research in compliance with federal law. Substituted by S6488. Senate substitute signed by the Governor on 9/13/19. |
New York | 2020 State Bills New York 2020 A9505 | Employment Nondiscrimination | Enacted | Declares that it is the policy of the state and all its political subdivisions to ensure a fair, non-biased compensation structure for all employees. Status within one or more protected class or classes may not be considered directly or indirectly in determining proper compensation or pay for any individual or group of employees, and no employee with status within one or more protected class to classes may be paid a wage at a rate less than the rate at which an employee without status within the protected class or classes in same establishment is paid for similar work. Protected class includes predisposing genetic characteristic. 4/3/2020 Signed by the Governor. |
New York | State StatuteNew York: NYCL (EXC) law 292 and 296 | Employment Nondiscrimination | Statute | An employer or labor organization may not discriminate against employees, applicants or members based on a predisposing genetic characteristic. An employer or employment agency may not print or circulate materials or use a form of application that discriminate based on a predisposing genetic characteristic. Additional provisions apply to employers, labor organizations, employment agencies, and licensing agencies. A genetic test may be required as a condition of employment if directly related to possible increased risk of disease in the work environment or, with informed consent, for workers compensation and to determine susceptibility to toxins found in the workplace environment. |
New York | 2015 State Bills New York 2015 A318 | Health Insurance Coverage | Died | The bill requires accident and health insurance policies to cover the cost of genetic testing for people with a family history of cancer when the attending physician determines the person has a significant risk of cancer. Died. |
New York | 2021 State Bills New York 2021 S605 | Health Insurance Coverage | Pending | Requires health insurers to provide coverage for expenses incurred in obtaining a colonoscopy when a subscriber has a high-risk predisposition to colon cancer based on genetic or family history. Carries over to 2022. |
New York | 2011 State Bills New York 2011 A2837 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits discrimination based on genetic characteristics in life and disability insurance. Measure failed. |
New York | 2020 State Bills New York 2020 S8448 | Privacy | Died | Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Died. |
New York | 2017 State Bills New York 2017 A8752 | Employment Nondiscrimination | Died | Prohibits clients and modeling agencies from subjecting a model to harassment based on various characteristics, including predisposing genetic characteristics, where such harassment has the purpose or effect of unreasonably interfering with an individual's provision of modeling services by creating an intimidating, hostile, or offensive environment. Died. |
New York | 2019 State Bills New York 2019 A1911 | Privacy | Died | Requires biometric identifies and information to be treated in a manner similar to confidential and sensitive information such as a genetic marker or genetic testing information. Died. |
New York | 2013 State Bills New York 2013 A6527 | Privacy | Died | This bill establishes the Medicaid identification and anti-fraud biometric technology pilot program. Biometric technologies includes, but is not limited to, DNA and other identifiers. Died. |
New York | 2021 State Bills New York 2021 A404 | Health Insurance Coverage | Pending | Requires health insurance policies to cover comprehensive screening for ovarian cancer, including genetic testing. Carries over to 2022. |
North Carolina | 2020 State Bills North Carolina 2020 S786 | Employment Nondiscrimination | Died | Amends genetic nondiscrimination in employment statute. Deletes existing provision related to genetic information and adds protected classes or protected categories, which is defined to include predisposing genetic characteristics. Died. |
North Carolina | State StatuteNorth Carolina: NCGA 126-34.01 et seq. | Employment Nondiscrimination | Statute | The law sets forth procedures for State employment appeals of grievances and disciplinary actions related to discrimination claims, including discrimination based on genetic information. |
North Carolina | 2021 State Bills North Carolina 2021 HB 450 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination | Pending | Prohibits discrimination based on various characteristics such as genetic information in the following areas: housing; employment; lending; education; public accommodation; insurance; and jury service. Carries over to 2022. |
North Carolina | 2017 State Bills North Carolina 2017 HB 186 | Employment Nondiscrimination, Other Topics | Died | Creates the Equal Employment and Equal Access to Public Accommodations Act. Declares that it is the public policy of the State to protect and safeguard the right and opportunity to all individuals to seek, obtain and hold employment without discrimination or abridgment and to enjoy fully and equally the goods, services, facilities, privileges, advantages, and accommodations of places of public accommodations free of discrimination because of race, sex, national origin, citizenship, religion, age, veteran status, genetic information, pregnancy, handicap, or disability. Declares that it is the policy of the State Board of Community Colleges, local boards of trustees of the State of North Carolina, and the Board of Governors of the University of North Carolina not to discriminate among students. Died. |
North Carolina | State StatuteNorth Carolina: NCGA 58-58-25 | Other Lines of Insurance Nondiscrimination | Statute | No insurance company may refuse to issue or deliver any policy of life insurance solely by reason of the fact that the person to be insured possesses sickle cell trait or hemoglobin C trait. A policy also may not carry a higher premium rate or charge by reason of the fact that the person to be insured possesses these traits. |
North Carolina | 2021 State Bills North Carolina 2021 HB 507 | Other Topics | Pending | Establishes certain rights of perinatal care patients, including the right to receive care and treatment free from discrimination based on characteristics such as genetic information. Carries over to 2022. |
Last updated: September 14, 2023