Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
New Jersey | 2018 State Bills New Jersey 2018 S3153 | Privacy | Died | This bill sets forth privacy protections for personally identifiable information collected by businesses. Personally identifiable information includes biometric data such as DNA. Died. |
New York | 2015 State Bills New York 2015 A318 | Health Insurance Coverage | Died | The bill requires accident and health insurance policies to cover the cost of genetic testing for people with a family history of cancer when the attending physician determines the person has a significant risk of cancer. Died. |
Oklahoma | 2014 State Bills Oklahoma 2014 SB 2070 | Privacy | Died | This bill prohibits collection or retention of biometric data in connection with motor vehicle registration or operation, the issuance or renewal of driver licenses or the issuance or renewal of any identification cards by any department or agency of this state charged with those activities. Died. |
Virginia | 2008 State Bills Virginia 2008 HB 593 | Health Insurance Nondiscrimination | Died | This bill prohibits the establishment of rules for eligibility or continued eligibility based on a health status-related factor, including genetic information, in Virginia share health insurance policies. This bill also prohibits pre-existing condition exclusions in these policies based on genetic information in the absence of a diagnosis of a condition related to such information. Measure failed. |
Arizona | 2018 State Bills Arizona 2018 HB 2450 | Privacy | Died | Allows the release of genetic testing and information derived from genetic testing to the following, if the necessary requirements are met: an individual or entity that provides services to a health care provider or clinical laboratory, a statewide health information exchange, the health insurance carrier of the person tested, a nationally recognized accreditation organization, a health professional licensing board in the state, and an entity that is responsible for the payment of a health care provider charges. Died. |
Florida | 2018 State Bills Florida 2018 SB 1106 | Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurers and long-term care insurers from canceling, limiting, or denying coverage, or establishing differentials in premium rates, based on genetic information, if there is no diagnosis of a condition related to the genetic information. The bill also prohibits these insurers from requiring or soliciting genetic information, using genetic test results, or considering a person�s decisions or actions relating to genetic testing for any insurance purpose. 3/10/2018 Died in Rules. |
Kansas | 2014 State Bills Kansas 2014 HB 2621 | Privacy | Died | The state board, the department of education, a unified school district or local education agency may not provide any personally identifiable information of any student or teacher, including a DNA sequence, to any federal agency, any Kansas state or local agency, state or local agency outside the state of Kansas, or any other organization or entity unless under specified circumstances. Died. |
Maryland | 2019 State Bills Maryland 2019 HB 716 | Privacy | Died | Amends the definition of personal information used in the state data privacy act. Personally identifiable information is defined to include an individual's DNA. Died. |
Maryland | 2021 State Bills Maryland 2021 HB 218 | Privacy | Died | Requires certain private entities in possession of biometric identifiers or biometric information to develop a written policy, made available to the public, establishing a certain retention schedule and guidelines for permanently destroying biometric identifiers and biometric information. Biometric identifier is defined to includes a genetic print. The bill defines confidential and sensitive to include a genetic marker and genetic testing information. In the House - Withdrawn by Sponsor. Died. |
Minnesota | 2012 State Bills Minnesota 2012 HF 3025 | Privacy | Died | This bill amends the definition of genetic test in the statutes regarding government data practices. Measure failed. |
Montana | 2017 State Bills Montana 2017 HB 392 | Other Lines of Insurance Nondiscrimination | Died | Creates the Montana family and medical leave insurance fund. Applicants for coverage must provide eligibility documentation. The department may not require documentation that exceeds the right to privacy allowed under HIPAA, the ADA and GINA. Died. |
New York | 2009 State Bills New York 2009 A1445 | Research | Died | This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Measure failed. |
New York | 2019 State Bills New York 2019 A8125 | Research | Died | Authorizes human research in compliance with federal law. Substituted by S6488. Senate substitute signed by the Governor on 9/13/19. |
Tennessee | 2020 State Bills Tennessee 2020 SB 1081 | Privacy | Died | Allows the recipient of an organ transplant and referral hospital to examine all genetic records of the donor or prospective donor unless prohibited by any other law. Died. |
West Virginia | 2014 State Bills West Virginia 2014 SB 420 | Privacy | Died | Creates a Longitudinal Data System, which links child care, student and workforce unit record data, and governing board of the system. The governing board must prohibit the collection of confidential information, which includes genetic information. Died. |
New York | 2011 State Bills New York 2011 A2837 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits discrimination based on genetic characteristics in life and disability insurance. Measure failed. |
New York | 2020 State Bills New York 2020 S8448 | Privacy | Died | Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Died. |
Texas | 2017 State Bills Texas 2017 SJR 44 | Other Topics | Died | Proposes a Constitutional Amendment providing for the recognition of equal rights of all people. States that equality under the law may not be denied or abridged based on numerous factors, including genetic information. Died. |
Wisconsin | 2013 State Bills Wisconsin 2013 AB 269 | Employment Nondiscrimination | Died | Permits the Department of Workforce Development (DWD) or a person who has been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court to recover compensatory and punitive damages caused by the act of discrimination or unfair honesty or genetic testing after the completion of all administrative proceedings before DWD and the Labor and Industry Review Commission concerning the violation. Failed to pass pursuant to Senate Joint Resolution 1. |
Connecticut | 2019 State Bills Connecticut 2019 SB 369 | Other Topics | Died | Establishes a task force to require a study of the link between the abnormal genes associated with breast and ovarian cancers and the nerve death associated with Alzheimer's disease to improve diagnosis, risk assessment and treatment of such disease. Died. |
Illinois | 2014 State Bills Illinois 2014 HB 5998 | Privacy | Died | Amends the Genetic Information privacy Act. Makes a technical change in a section concerning the short title. Died. |
Maryland | 2014 State Bills Maryland 2014 HB 1120 | Other Topics, Privacy | Died | Requires the Motor Vehicle Administration to offer to an applicant for a driver's license, identification card, or moped operator's permit the opportunity to upgrade to an enhanced identification document. The enhanced ID will be embedded with memory and a microprocessor chip that stores biometric identifiers, which may include DNA. Died. |
Massachusetts | 2020 State Bills Massachusetts 2020 S.2800 | Privacy | Died | Prohibits an agency, executive office, department, board, commission, bureau, division or authority of the commonwealth or a political subdivision thereof, or any agent, contractor or subcontractor thereof, from acquiring, possessing, accessing or using any biometric surveillance system or any information derived from a biometric surveillance system operated by another entity. Allows certain exceptions such as the use of facial recognition technology by the registrar or motor vehicles. Biometric data is defined to include deoxyribonucleic acid. 7/14/20 Passed to be engrossed. Reprinted as amended, see S2820. Died. |
Missouri | 2014 State Bills Missouri 2014 HB 1873 | Privacy | Died | This bill requires a state agency or education institution to obtain written consent from parents or eligible students before collecting any certain data points, including a biometric record (defined to include DNA). Died. |
New Jersey | 2020 State Bills New Jersey 2020 S1136 | Other Topics | Died | Prohibits discrimination in health programs or activities based on certain factors, including genetic information. Died. |
New York | 2017 State Bills New York 2017 A8752 | Employment Nondiscrimination | Died | Prohibits clients and modeling agencies from subjecting a model to harassment based on various characteristics, including predisposing genetic characteristics, where such harassment has the purpose or effect of unreasonably interfering with an individual's provision of modeling services by creating an intimidating, hostile, or offensive environment. Died. |
Rhode Island | 2019 State Bills Rhode Island 2019 S234 | Privacy | Died | Enacts the Consumer Protection privacy Act. Establishes consumer protections pertaining to the collection and use of personal information, including an individual's DNA, by businesses. Died. |
Virginia | 2020 State Bills Virginia 2020 HB 553 | Employment Nondiscrimination | Died | Requires the legislative branch of the Commonwealth to develop a policy on workplace harassment. Workplace harassment is defined as any unwelcome verbal, written, or physical conduct that either denigrates or shows hostility or aversion toward a person on the basis of various factors, including genetics. Died. |
California | 2013 State Bills California 2013 SB 799 | Health Insurance Coverage | Died | Requires every health care service plan contract, except a specialized health care service plan contract to provide coverage for genetic testing for hereditary nonpolyposis colorectal cancer (HNPCC) under certain circumstances. Died. |
Florida | 2021 State Bills Florida 2021 SB 1140 | Other Topics, Privacy | Died | This bill prohibits DNA analysis and disclosure of DNA analysis results without authorization; prohibits the collection or retention of a DNA sample of another person without authorization for specified purposes; prohibits specified DNA analysis and disclosure of DNA analysis results without authorization, etc. |
Kentucky | 2020 State Bills Kentucky 2020 SB 116 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died. |
Maryland | 2020 State Bills Maryland 2020 HB 255 | Other Topics | Died | Prohibits a hospital or related institution from discriminating in admitting or providing care for an individual based on various factors, including genetic information. Died. |
Massachusetts | 2014 State Bills Massachusetts 2014 S.2294 | Research | Died | This bill states that any public health surveillance activity which is also research is subject to the requirements for research using human subjects. Died. |
Minnesota | 2019 State Bills Minnesota 2019 SF 2912 | Privacy | Died | Businesses must conduct risk assessments of processing activities that involve sensitive consumer data, including genetic data. Died. |
New Hampshire | 2016 State Bills New Hampshire 2016 HB 1493 | Privacy | Died | Declares that an individual's genetic information and DNA sample are the property of the individual. Committee Report: Referred to Interim Study, 05/05/2016. |
Massachusetts | 2017 State Bills Massachusetts 2017 S.1120 | Other Topics | Died | Prohibits local or state administrative, legislative or regulatory body or instrumentality from engaging in discriminatory land use practices based on a variety of factors, including genetic information. Died. |
Mississippi | 2010 State Bills Mississippi 2010 HB 825 | Health Insurance Nondiscrimination | Died | This bill prohibits group health benefit plans from imposing pre-existing condition exclusions based on genetic information in the absence of a diagnosis. Measure failed. |
New Jersey | 2007 State Bills New Jersey 2007 A4170 | Employment Nondiscrimination | Died | This bill prohibits employers from (1) seeking to obtain or use a genetic test or genetic information, (2) requiring a genetic test or genetic information, (3) accessing or requesting or requiring consent to access genetic information, (4) requesting or requiring a genetic test from an individual or family member, or (5) inquiring about whether an individual or family member has taken or refused to take a genetic test. Civil penalties are set forth for violations. Measure failed. |
New York | 2013 State Bills New York 2013 A6527 | Privacy | Died | This bill establishes the Medicaid identification and anti-fraud biometric technology pilot program. Biometric technologies includes, but is not limited to, DNA and other identifiers. Died. |
North Carolina | 2019 State Bills North Carolina 2019 SB 455 | Other Topics | Died | Prohibits unlawful discriminatory practice based on protected status, including genetic information. Died. |
Utah | 2021 State Bills Utah 2021 SB 200 | Privacy | Died | Provides consumers the right to access, correct, and delete certain personal data. Gives consumers the right to opt out of the collection and use of personal data for certain purposes. Requires certain businesses that control and process personal data of consumers to: safeguard personal data; provide clear information to consumers regarding how the consumer's personal data are used; accept consumer requests to exercise the consumer's rights under this bill; comply with a consumer's request to exercise the consumer's rights under this bill; and maintain data protection assessments. Creates a process for a consumer to submit requests and appeal a business's decision regarding the business's processing of the consumer's personal data. Allows the Division of Consumer Protection to accept and investigate consumer complaints regarding the processing of personal data. Creates a right for a consumer to know what personal information a business collects, how the business uses the personal information, and whether the business sells the personal information. Allows a consumer to require a business to delete personal information, with |
Wisconsin | 2020 State Bills Wisconsin 2020 AB 870 | Privacy | Died | Requires controllers of consumers' personal data to provide a consumer with copies of the consumer's personal data processed by the controller. Personal data includes genetic information. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Alabama | 2020 State Bills Alabama 2020 HB 266 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | Prohibits health benefit plans, life insurers, and long term care insurers from (1) using an individual's genetic information to deny him or her insurance or to establish differentials in premium rates, or (2) requiring or soliciting genetic information, using genetic test results, or considering an individual's decisions or actions relating to genetic testing in any manner for insurance purposes. Died. |
Florida | 2007 State Bills Florida 2007 SB 2384 | Health Insurance Coverage | Died | This bill requires individual and group health insurers to provide benefits or coverage for periodic colorectal cancer examinations and laboratory tests for individuals over 50 and for individuals under 50 who are considered high risk. Definition of high risk includes individuals who, because of the presence of recognized genetic markers, face a higher than normal risk of colorectal cancer. Measure failed. |
Indiana | 2015 State Bills Indiana 2015 SB 323 | Research, Use of Residual Newborn Screening Specimens | Died | Amends the state's newborn screening statute. The bill requires consent to release newborn's residual blood specimen for epidemiological survey and research. Died. |
Maryland | 2017 State Bills Maryland 2017 HB 435 | Privacy | Died | Requires certain state and local governmental units to secure by encryption personal information of an individual that the unit has collected as computerized data. Personal information includes a genetic print or image. Died. |
Minnesota | 2008 State Bills Minnesota 2008 HF 3438/SF 3138 | Use of Residual Newborn Screening Specimens | Died | This bill excludes the health department's collection, use, storage and dissemination of genetic information and blood specimens for testing infants for heritable and congenital disorders from the law governing genetic information collected by a government entity. The bill also requires that parents are provided information about how specimens may be used and allows parents to opt out of public health studies or research. Measure failed. |
Missouri | 2021 State Bills Missouri 2021 HB 995 | Research, Use of Residual Newborn Screening Specimens | Died | Amends statute section pertaining to the release of residual newborn screening specimens for anonymous scientific study. Requires consent of parent or legal guardian be obtained for such release at the time of specimen collection. 2/23/2021 - House public hearing completed. Died. |
New Mexico | 2013 State Bills New Mexico 2013 HB 366 | Health Insurance Coverage | Died | An individual or group health insurance policy, health care plan or certificate of health insurance that is delivered or issued for delivery in New Mexico must provide certain benefits that have, in effect, a rating of "A" or "B" in the current recommendations of the United States preventive services task force, for various services, including genetic counseling and evaluation for breast cancer BRCA-gene testing for women whose family histories are associated with an increased risk for deleterious mutations in BRCA1 or BRCA2 genes. Died in Committee. |
New York | 2019 State Bills New York 2019 A1911 | Privacy | Died | Requires biometric identifies and information to be treated in a manner similar to confidential and sensitive information such as a genetic marker or genetic testing information. Died. |
Last updated: September 14, 2023