Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Texas | 2021 State Bills Texas 2021 SB 1952 | Privacy | Died | Relates to the capture and use of an individual's biometric identifiers, specimen, or genetic information by a governmental body or peace officer or by a person for commercial purposes. Died. |
Wisconsin | 2017 State Bills Wisconsin 2017 SB 140 | Employment Nondiscrimination | Died | Addresses actions in circuit court alleging discrimination in employment, unfair honesty testing, or unfair genetic testing. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1. |
Arizona | 2020 State Bills Arizona 2020 HB 2691 | Other Topics | Died | Prohibits placing an inmate in isolated confinement based on certain factors, including genetic information. Died. |
Florida | 2018 State Bills Florida 2018 SB 1872 | Health Insurance Nondiscrimination | Died | Creates the Healthy Florida program to be administered by the Healthy Florida Board. Every resident of Florida is eligible and entitled to enroll under the Healthy Florida program. The program may not discriminate based on genetic information. 3/10/2018 Died in Banking and Insurance. |
Kentucky | 2010 State Bills Kentucky 2010 SB 155 | Health Insurance Nondiscrimination, Privacy | Died | This bill prohibits the adjustment of premium or contribution amounts based on genetic information; prohibits an insurer from requesting or requiring a genetic test of a member unless made pursuant to the Common Rule, equivalent federal regulations or any applicable administrative regulation for the protection of human subjects in research; prohibits the use of genetic information for underwriting purposes; prohibits the request, requirement, or purchase of genetic information by an insurer prior to an individual's enrollment under a plan; precludes insurers from requiring genetic information for eligibility for health insurance in the individual market; and prohibits the use of genetic information for the purpose of imposing any pre-existing condition exclusion. Measure failed. |
Maryland | 2019 State Bills Maryland 2019 HB 856 | Other Topics | Died | A hospital or related institution may not discriminate in admitting or providing personal care based on genetic information. Died. |
Michigan | 2016 State Bills Michigan 2016 HB 5769 | Privacy | Died | Amends the state genetic privacy law. Changes in introduced version of bill only involve unsubstantial changes in wording of text. Died. |
Missouri | 2017 State Bills Missouri 2017 HB 201 | Privacy | Died | Prohibits school districts from collecting biometric information on any student without the express written consent of the student�s parent or legal guardian. Biometric information is defined to include a DNA sequence and newborn screening information. Died. |
New Jersey | 2021 State Bills New Jersey 2021 A6080 | Privacy | Died | Prohibits a teaching staff member employed by a board of education from inputting the individually identifiable health information of a student or members of a student�s family, or conversations concerning such information, into a third party software application managed by an entity that engages in partisan political activity. The bill defines individually identifiable health information as any information, including genetic or vaccination information, relating to the past, present, or future physical or mental health or condition of an individual that either identifies the individual or could reasonably be used to identify the individual. Died. |
New York | 2018 State Bills New York 2018 A9780 | Privacy | Died | Enacts the Personal Information Protection Act. Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security of this information. Personal information includes DNA samples. Died. |
South Carolina | 2012 State Bills South Carolina 2012 SB 1266 | Health Insurance Coverage | Died | Existing law requires individual and group health insurers to cover mammograms. This bill requires that Coverage for mammograms required in subsection (A)(1) must include benefits for comprehensive ultrasound screening of an entire breast or breasts if a mammogram demonstrates heterogeneous or dense breast tissue based on: (a) the Breast Imaging Reporting and Data System established by the American College of Radiology; or (b) if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. Died. |
Washington | 2019 State Bills Washington 2019 HB 1990 | Other Topics | Died | Restricts genome editing of human embryos. Died. |
Colorado | 2015 State Bills Colorado 2015 SB 77 | Privacy, Research | Died | Establishes a parental bill of rights. Requirements include parental consent in writing before any record of a minor child's blood or DNA is made, shared, or stored, unless such blood or DNA is otherwise required by law or court order. Died. |
Idaho | 2007 State Bills Idaho 2007 SB 1107 | Health Insurance Nondiscrimination | Died | The bill amends the state genetic nondiscrimination law by prohibiting discrimination on the basis of genetic information or a genetic test in the issuance of coverage, or the fixing of rates, terms or conditions, for any policy or contract of hospital or medical insurance or any health benefit plan. Measure failed. |
Maryland | 2009 State Bills Maryland 2009 SB 2 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill repeals an exemption for disability insurance under the state genetic nondiscrimination law and amends the definition of genetic information used in the health_insurance_nondiscrimination law. Measure failed. |
Connecticut | 2020 State Bills Connecticut 2020 SB 134 | Privacy | Died | Requires businesses to disclose the proposed use of any personal information and to give consumers the right to discover what personal information the business possesses. Consumers may opt out of the sale of such information. Personal information is defined to include biometric information such as DNA which can be used to identify an individual. Died. |
Illinois | 2015 State Bills Illinois 2015 HB 1536 | Privacy | Died | Amends the School Code to add provisions concerning student and educator data privacy. Protections cover biometric records, defined to include DNA. Died. |
Maryland | 2014 State Bills Maryland 2014 HB 851 | Other Topics, Privacy | Died | Permits a health insurance carrier to make available upon request an upgrade to a biometric health care identification card that can securely validate one's identity and access his or her medical history. Biometric identification is defined to include DNA. Died. |
Massachusetts | 2018 State Bills Massachusetts 2018 H.4639 | Health Insurance Coverage | Died | Measure to enhance high quality, affordable health care. The bill includes a provision requiring coverage for genetically targeted drugs for Duchenne muscular dystrophy, if offered to active or retired employees of the commonwealth insured under the group insurance commission. Died. |
Mississippi | 2014 State Bills Mississippi 2014 HB 172 | Employment Nondiscrimination | Died | Makes it unlawful for any employer or insurer to use the results of DNA testing against a patient or against the patient's consanguineous family members for any discriminatory purpose. Any employer who violates this section shall, upon conviction, be fined up to $5,000.00 or imprisoned for not more than one year, or both. Died in Committee on February 4, 2014. |
New Jersey | 2017 State Bills New Jersey 2017 S3606 | Privacy | Died | Makes confidential any part of a 9-1-1 audio recording or transcript that discloses a person's health status, medical conditions, health care services or treatments, medical history, genetic information, or current health insurance plan information by excluding it from the definition of a government record. Died. |
New York | 2015 State Bills New York 2015 A1219 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination, Privacy | Died | Establishes a genetics advisory council and requires the council to report to the Governor on several topics, including (1) creating an environment in which there is equitable access to the benefits of genetic tests to all citizens regardless of race, ethnicity or economic status; and (2) the use of any genetic test by insurers, employers or educational institutions, including the potential for compromising the individual liberties and civil rights of individuals or causing individuals to suffer unfair discrimination. Died. |
Ohio | 2020 State Bills Ohio 2020 HB 649 | Privacy | Died | Requires a health care provider to obtain an individual's informed consent prior to testing for the presence or absence of a communicable life-threatening disease or infection or immune response to disease or infection that is the subject of an epidemic or pandemic. The results of an individual's test, including any partial or complete biometric record of an individual's DNA sequence is the property of the individual and may only be transmitted to the individual tested. 5/27/20 Referred to Committee on State and Local Government. Died. |
Vermont | 2021 State Bills Vermont 2021 S21 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Topics, Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based on an individual�s genetic information in relation to employment, labor relations, insurance coverage, and the provision of social and medical services. 1/13/2021 Read 1st time & referred to Committee on Economic Development, Housing and General Affairs. Carries over to 2022. |
California | 2014 State Bills California 2014 SB 1279 | Health Insurance Coverage | Died | Requires a health care service plan contract or a health insurance policy that is issued, amended, or renewed on or after January 1, 2015, to provide coverage for genetic testing for Lynch syndrome. Died. |
Florida | 2021 State Bills Florida 2021 SB 1734 | Privacy | Died | Creates the Florida privacy Protection Act. Requires certain businesses that collect consumer personal information to provide certain information to the consumer. Provides that consumers have the right to direct certain businesses not to sell their personal information. Prohibits businesses from selling the personal information of consumers younger than a specified age without express authorization from the consumer or the consumer�s parent or guardian under certain circumstances. Authorizes consumers to initiate civil actions for violations. Personal information is defined to include biometric information such as DNA. 4/28/21 Read 2nd time. Substituted CS/CS/CS/HB 969 (Died in returning Messages). Laid on Table - SJ 753. |
Kentucky | 2021 State Bills Kentucky 2021 HB 11 | Health Insurance Nondiscrimination | Died | Establishes health-status eligibility rules for health benefit plans in any market. Prohibits requiring a greater premium or contribution, or different benefits coverage, on the basis of any health status-related factor, including genetic information. Prohibits pre-existing condition exclusions. Prohibits adjustment of premium or contribution amounts for group health plans on the basis of genetic information. Died. |
Maryland | 2020 State Bills Maryland 2020 HB 307 | Privacy | Died | Establishes consumer protections pertaining to the collection, possession, use, disclosure and retention of biometric identifiers. Biometric information is defined to include genetic markers and genetic testing information. Died. |
Maryland | 2020 State Bills Maryland 2020 SB 875 | Other Topics | Died | Prohibits a hospital from withholding financial assistance or from denying a patient's application for financial assistance based on genetic information. Died. |
Minnesota | 2009 State Bills Minnesota 2009 HF 902 | Privacy, Research | Died | This bill creates personal property rights human biological specimens, defined as tissues, organs and body parts from which DNA may be isolated and requires written informed consent for the use of biological specimens in medical or genetic research. Consent forms must provide at least three options, including consent for a specific research project, consent for future research projects that are yet undefined, or consent for future research projects that are yet undefined, contingent on the research entity returning to seek specific written informed consent if the project is or could be considered controversial. The bill allows limited use of biological specimens for the calibration of laboratory equipment. Measure failed. |
Montana | 2013 State Bills Montana 2013 SB 383 | Health Insurance Nondiscrimination | Died | A health insurance issuer offering individual health_insurance_coverage in this state may not establish rules for eligibility or adjust premiums for any individual or individual's dependent to enroll in individual health_insurance_coverage based on genetic information. Individual health insurance issuers also may not impose any preexisting condition exclusion on the basis of genetic information or request or require an individual or a family member of an individual to undergo a genetic test. Died in Standing Committee. |
New York | 2007 State Bills New York 2007 A3113 | Health Insurance Coverage | Died | This bill requires health insurers to cover genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk of cancer. Measure failed. |
New York | 2019 State Bills New York 2019 A5651 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive screening for ovarian cancer for persons at high risk, including genetic testing. Died. |
Tennessee | 2019 State Bills Tennessee 2019 HB 459 | Other Topics | Died | Creates a genetic advisory committee. Substituted by 2019 SB 127, which became Pub. Ch. 43 April 3, 2019. |
West Virginia | 2020 State Bills West Virginia 2020 HB 2224 | Health Insurance Coverage | Died | Requires insurance coverage of a comprehensive ultrasound screening of breast if a woman is believed to be at increased risk of cancer based on several factors, including positive genetic testing. Died. |
Massachusetts | 2009 State Bills Massachusetts 2009 H 3809 | Health Insurance Coverage | Died | This bill requires individual accident and sickness policies, individual and group hospital service plans, the group insurance commissionplan for active and retired employees, and individual or group medical service agreement and health maintenance contract to provide benefits on a nondiscrminatory basis for diagnosis and treatment of autism. Diagnosis of autism spectrum disorders is defined to include genetic testing. Accompanied a new draft 2010 H. 4935, which was enacted. |
Minnesota | 2019 State Bills Minnesota 2019 HF 1048 | Other Topics | Died | Establishes a pharmacogenetics task force. Died. |
Nevada | 2021 State Bills Nevada 2021 AB 198 | Health Insurance Coverage | Died | Requires the State Plan for Medicaid to pay the nonfederal share of expenditures incurred to perform genetic testing to detect birth defects in the fetus of a pregnant woman who is 40 years of age or older. Died. |
New York | 2009 State Bills New York 2009 S4782 | Health Insurance Nondiscrimination | Died | This bill prohibits group or blanket policies that cover 51 or more employees for hospital, medical, major medical, or similar type comprehensive coverage from excluding members or dependents or establishing rates based on predisposing genetic characteristics. The bill also prohibits health insurers from requiring or using tests for or information about predisposing genetic characteristics for underwriting. The same restrictions are imposed upon hospital service corporations, health services corporation and medical expense indemnity corporations covering 51 or more employees. Measure failed. |
New York | 2019 State Bills New York 2019 S7083-A | Employment Nondiscrimination | Died | Prohibits an employer, licensing agency, employment agency, or labor organization from subjecting an individual to discriminatory harassment based on various factors, including predisposing genetic characteristics. Prohibits subjecting domestic workers to unwelcome harassment based on genetic information. Died. |
Texas | 2015 State Bills Texas 2015 SB 628 | Privacy | Died | Prohibits a governmental body from capturing or possessing a biometric identified, defined to include DNA, unless it has specific, explicit statutory or has the written consent of the individual or the individual's legal guardian. Died. |
West Virginia | 2021 State Bills West Virginia 2021 HB 3159 | Privacy | Died | Requires a business that collects personal information about consumers to maintain an online privacy policy, make such policy available on its Internet website, and update the information at least once every 12 months. Personal information includes biometric information such as an individual's DNA. 3/15/2021 To House Judiciary. Died. |
Alabama | 2021 State Bills Alabama 2021 HB 216 | Privacy | Died | Creates the Alabama Consumer privacy Act. Allows a consumer to request that a business: (1) disclose personal information that it collects; (2) delete certain personal information; (3) disclose the sale of certain personal information to third parties; and (4) allow a consumer to opt out of the sale of personal information. Prohibits a business from retaliating against a consumer for making a request for disclosure or for opting out and from selling the personal information of a consumer under 18 years of age. Personal information is defined to include biometric information such as DNA. Died. |
Florida | 2008 State Bills Florida 2008 SB 2730 | Health Insurance Coverage | Died | This bill requires individual and group health insurers to provide benefits or coverage for periodic colorectal cancer examinations and laboratory tests for individuals over 50 and for individuals under 50 who are considered high risk. Definition of high risk includes individuals who, because of the presence of recognized genetic markers, face a higher than normal risk of colorectal cancer. Measure failed. |
Indiana | 2018 State Bills Indiana 2018 SB 352 | Privacy | Died | Establishes requirements regarding student education records, personally identifiable information of a student, and certain other information concerning a student. Personally identifiable information includes a DNA sequence. Died. |
Maryland | 2017 State Bills Maryland 2017 HB 808 | Research | Died | Requiring hospital administrators to provide patients with a specified patient's bill of rights. The bill of rights addresses patient participation in research. Died. |
Massachusetts | 2020 State Bills Massachusetts 2020 H.4860 | Privacy | Died | Prohibits a public agency or public official from: (1) acquiring, possessing, accessing, using, or assisting with the use of or provide resources for the development or use of any biometric surveillance system, or (2) entering into a contract with or making a request to any third party for the purpose of acquiring, possessing, accessing or using information derived from a biometric surveillance system, unless expressly authorized by law. Biometric data is defined to include deoxyribonucleic acid. Died. |
Mississippi | 2019 State Bills Mississippi 2019 SB 2098 | Other Topics | Died | Allows parents to request exemption of their children from certain activities during a school year, including the collection, tracking, housing, reporting, selling, or sharing with any party outside of the local school district, of noneducational-related information on my child or my family, including, but not limited to DNA sequences. 02/05 (S) Died In Committee. |
New Jersey | 2020 State Bills New Jersey 2020 A4462 | Employment Nondiscrimination | Died | Declares that it is an unlawful employment practice for an employer based on certain factors to require an employee who is the parent or legal guardian of a school aged child to be physically present for work, when that work can be performed remotely, during the public health emergency and state of emergency declared by the Governor. Specified factors include genetic information or the refusal to submit to a genetic test or make available the results of a genetic test. Died. |
New York | 2017 State Bills New York 2017 A1882 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive screening for ovarian cancer. Additional coverage for computed tomography, barium enema X-rays, magnetic resonance imaging (MRI), positron emission tomography, laparoscopy, colonoscopy and biopsy if a person is at increased risk for ovarian cancer due to specified factors, including positive genetic testing. Died. |
Last updated: September 14, 2023