Last updated: January 22, 2010
New Models for Large Prospective Studies
January 22, 2010
Natcher Conference Center - Main Auditorium
Bethesda, Maryland
On January 22, 2010, the National Institutes of Health (NIH) hosted the New Models for Large Prospective Studies symposium at the Natcher Conference Center Main Auditorium in Bethesda, Maryland.
Large prospective, population-based cohorts are the optimal design for defining disease burden and studying the many genetic, lifestyle, and environmental factors that underlie human disease. Leveraging or expanding existing efforts to establish a large-scale population cohort may serve to create a much needed national research resource with which to examine genetic and environmental contributions to disease and advance personalized medicine.
The symposium, organized by the NIH Office of the Director, featured the UK Biobank and other large-scale national and international efforts and involved a series of plenary sessions and discussion panels to highlight novel approaches, lessons learned, and emerging opportunities in key aspects of study design including recruitment, examination and assessment, biospecimens, health records, IT infrastructure, consent, ethics, access and funding.
Agenda
Time | Speaker/Topic | |
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8:00 - 8:20 a.m. |
Welcome, Background & Objectives |
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8:20 - 9:15 a.m |
Recruitment |
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Presentation (15 minutes) |
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Presentation (15 minutes) |
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Panel Discussion (25 minutes)
|
|
9:15 - 10:10 a.m. |
Information Technology |
|
|
Presentation (15 minutes) |
|
|
Presentation (15 minutes) |
|
|
Panel Discussion (25 minutes)
|
|
10:10 - 10:30 a.m. |
Break |
|
10:30 - 11:25 a.m. |
Questionnaire & Examination |
|
|
Presentation (15 minutes) |
|
|
Presentation (15 minutes) |
|
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Panel Discussion (25 minutes)
|
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11:25 a.m. - 12:15 p.m. |
Lunch |
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12:15 - 1:10 p.m. |
Consent |
|
|
Presentation (15 minutes) |
|
|
Presentation (15 minutes) |
|
|
Panel Discussion (25 minutes)
|
|
1:10 - 2:05 p.m. |
Biorepositories |
|
|
Presentation (15 minutes) |
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|
Presentation (15 minutes) |
|
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Panel Discussion (25 minutes)
|
|
2:05 - 3:00 p.m. |
Health Outcomes & Health Information |
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|
Presentation (15 minutes) |
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|
Presentation (15 minutes) |
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Panel Discussion (25 minutes)
|
|
3:00 - 3:20 p.m. |
Break |
|
3:20 - 4:30 p.m. |
Funding Agency Perspectives |
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|
Presentation (10 minutes) |
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Presentation (10 minutes) |
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Presentation (10 minutes) |
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|
Presentation (10 minutes) |
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Panel Discussion (25 minutes)
|
|
4:30 p.m. |
Meeting Summary |
|
4:40 p.m. |
Conclusions for the NIH |
|
4:45 p.m. | Adjourn |