Genomic Medicine XIV: Genomic Learning Healthcare Systems

11:00 a.m.

Welcome and Introductions

Overview of National Academy of Medicine's 2015 Workshop, Genomics-Enabled Learning Health Care Systems

Pat Deverka

Structure, Goals and Products of NHGRI Genomic Medicine Meetings

Teri Manolio

11:15 a.m.

Session 1: Laying the Groundwork

Moderators:
Rex Chisholm
Renee Rider

Keynote: The State of Genomic Learning Healthcare Systems (25 min)

Peter Hulick

Overview of gLHS Barriers (10 min)

Teri Manolio

Panel Discussion (55 min)

Adam Buchanan
Gai Elhanan
Casey Overby-Taylor
Bruce Korf

12:45 p.m.

Break

12:55 p.m.

Session 2: IT Infrastructure

Moderators:
Carol Bult
Christopher Chute

Clinical Informatics Recommendations From GM XIII (15 min)

Ken Wiley

Integrating Genomic Results Into EHRs (15 min)

Travis Osterman

Population-Based Clinical Decision Support for Precision Medicine (15 min)

Guilherme Del Fiol

Discussion (45 min)

2:25 p.m.

Break

2:55 p.m.

Session 3: The Role of gLHS in Increasing Health Equity and Access to Genomic Healthcare

Moderators:
Gail Jarvik
Karriem Watson

Identifying Biases in gLHS Data and Implementation (15 min)

Janina Jeff
Latrice Landry

Diverse Patient and Provider Engagement in gLHS (15 min)

Carol Horowitz

Facilitating gLHS through Patient Access to Genomic Information (15 min)

Deven McGraw

Discussion (60 min)

4:55 p.m.

Adjourn Day 1

11:00 a.m.

Welcome

Day 1 Recap

Pat Deverka
Teri Manolio

11:10 a.m.

Session 4: Enabling Providers to Implement Genomic Knowledge

Moderators:
Susanne Haga
Robb Rowley

Genomic Medicine Track for Internal Medicine Trainees (15 min)

Noura Abul-Husn

Improving Access to Genomics in Clinical Practice (15 min)

Rizwan Hamid

Scalable Solutions for Genetic Counseling (15 min)

Cynthia A. James

Genomic Medicine Implementation in the VA Healthcare System (15 min)

Jason Vassy

Discussion (45 min)

1:10 p.m.

Break

1:30 p.m.

Session 5: Establishing and Sustaining gLHS

Moderators:
Erin Ramos
Krystal Tsosie

Generating Evidence of Effectiveness and Value (15 min)

Howard McLeod

Genomic Learning Healthcare Systems and Payers (15 min)

Nancy Mendelsohn

Progress in the Integration of Personalized Medicine and Developing Common Metrics (15 min)

Daryl Pritchard

Discussion (45 min)

3:00 p.m.

Break

3:10 p.m.

Session 6: Realizing the Promise of gLHS

Moderators:
Pat Deverka
Teri Manolio

Turning gLHS Data into Knowledge (15 min)

Heidi Rehm

Creation of a Virtuous Cycle to Realize the gLHS (15 min)

Marc S. Williams

Scaling the Genomics Enabled Learning Health System to Optimize Research and Clinical Care (15 min)

Geoff Ginsburg

Discussion (30 min)

4:25 p.m.

Summary and Next Steps

Pat Deverka
Teri Manolio

5:00 p.m.

Adjourn Day 2