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Genomics in Health and Wellness Meeting

Event Details

On March 5-6, 2019, the Genomic Medicine Working Group hosted the Genomics in Health and Wellness Meeting in Bethesda, Maryland. The meeting convened employers to discuss the role of genomics in employee health.

The meeting's objectives were to:

  • Determine employers’ interest in a list of potential genomic tests and charge a group to develop it.
  • Determine employers’ interest in a genomic medicine employee health program.
  • Explore the potential for developing a consensus around the role of genomics in employee health systems and disseminating recommendations.
  • Explore collaborative opportunities and potential projects to deploy genetic tests and a genetics-based testing program within employer populations and measure and publish the clinical and health economic impact.
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Hyatt Regency Bethesda

One Bethesda Metro Center
The Rooftop
Bethesda, MD 20810

Meeting Follow-on Findings

Stakeholders Assessing Genomics with Employers (SAGE)

This was a one-year project funded by NHGRI to support meeting conclusions regarding non-indication based genetic testing for employees.  The research deliverables included the development of frameworks that could be used by employers and researchers to guide informed decision-making and standardize process and outcomes investigations.  The SAGE project addressed the following specific questions:

  1. What are the experiences, insights, and outcomes from current genetic testing programs offered by employers as part of wellness programs?
     
  2. What is the legal and policy environment shaping both program implementation and data sharing in support of research to evaluate the impact of genetic testing programs?
     
  3. Is there sufficient evidence to support genetic testing as part of company wellness programs, and if so, what genetic tests would be appropriate given corporate wellness goals?

Appendices

Agenda

Executive Summary

Meeting Summary

Attendee List
 

  • Tuesday, March 5, 2019

  • 6:00 - 7:30 p.m. Tipping the Scales to Choose from Amongst ‘Equal’ Treatment Options
    Howard McLeod
    Moffit Cancer Center

 

  • Wednesday, March 6, 2019

  • 8:00 - 8:30 a.m. Introductions
    Geoff Ginsburg (Duke University)
  • 8:45 - 9:05 a.m. Background & Objectives: Employers’ perspective on preemptive genomic screening in employee wellness
    Moderators: Geoff Ginsburg (Duke University) and Robb Rowley (NHGRI)
  • 9:05 - 9:15 a.m. Discussion
    Moderator: Teri Manolio (NHGRI)
  • 9:15 - 9:50 a.m. Overview of pre-emptive genomics in employee wellness
    Marc Williams (Geisinger)
  • 9:50-10:10 a.m. Discussion
    Moderator: Eric Green (NHGRI)
  • 10:10 - 10:30 a.m. Break
  • 10:30 - 10:55 a.m. Economic implications of including genomics in employee wellness programs
    Tara Lavelle (Tufts University)
  • 10:55 - 11:15 a.m. Discussion
    Moderator: Pat Deverka (Geisinger National)
  • 11:15 - 11:40 a.m. Healthcare employer experience: Challenges within employee health programs
    Jeff Thompson (Gundersen Health System)
  • 11:40 a.m. - 12:00 p.m. Discussion
    Moderator: Laura Rodriguez (NHGRI)
  • 12:00 - 12:30 p.m. Working Lunch
  • 12:30 - 12:55 p.m. Non-healthcare employer offering genetic testing
    Jane Gilbert (Teachers' Retirement System of Kentucky)
    Gary Harbin (Teachers' Retirement System of Kentucky)
  • 12:55 - 1:15 p.m. Discussion
    Moderator: Howard McLeod (Moffitt Cancer Center)
  • 1:15 - 1:40 p.m. Genomic Medicine Working Group Formulary: Choosing the right test
    Robb Rowley (NHGRI)
  • 1:40 - 2:00 p.m. Discussion
    Moderator: Marc Williams (Geisinger)
  • 2:00 - 2:20 p.m. Break
  • 2:20 - 3:00 p.m. Panel: Employer priorities & gaps in understanding of genomics in employee wellness
    Moderator: Pat Deverka (Geisinger National)
    Panelists: Glenn Steele (Health Transformation Alliance), Jay Wohlgemuth (Quest Diagnostics), Jane Gilbert (Teachers' Retirement System of Kentucky) and Jeff Thompson (Gunderson Health System)
  • 3:00 - 3:40 p.m. Exploring future collaborations in genomics & employee wellness
    Robb Rowley (NHGRI)
    Jay Wohlgemuth (Quest Diagnostics)
  • 3:40 - 4:00 p.m. Discussion
    Moderator: Geoff Ginsburg (Duke University)
  • 4:00 - 4:30 p.m. Summary and Next Steps
    Teri Manolio (NHGRI)
  • 4:30 p.m. Adjourn
  • Agenda

    Executive Summary

    Meeting Summary

    Attendee List
     

    • Tuesday, March 5, 2019

    • 6:00 - 7:30 p.m. Tipping the Scales to Choose from Amongst ‘Equal’ Treatment Options
      Howard McLeod
      Moffit Cancer Center

     

    • Wednesday, March 6, 2019

    • 8:00 - 8:30 a.m. Introductions
      Geoff Ginsburg (Duke University)
    • 8:45 - 9:05 a.m. Background & Objectives: Employers’ perspective on preemptive genomic screening in employee wellness
      Moderators: Geoff Ginsburg (Duke University) and Robb Rowley (NHGRI)
    • 9:05 - 9:15 a.m. Discussion
      Moderator: Teri Manolio (NHGRI)
    • 9:15 - 9:50 a.m. Overview of pre-emptive genomics in employee wellness
      Marc Williams (Geisinger)
    • 9:50-10:10 a.m. Discussion
      Moderator: Eric Green (NHGRI)
    • 10:10 - 10:30 a.m. Break
    • 10:30 - 10:55 a.m. Economic implications of including genomics in employee wellness programs
      Tara Lavelle (Tufts University)
    • 10:55 - 11:15 a.m. Discussion
      Moderator: Pat Deverka (Geisinger National)
    • 11:15 - 11:40 a.m. Healthcare employer experience: Challenges within employee health programs
      Jeff Thompson (Gundersen Health System)
    • 11:40 a.m. - 12:00 p.m. Discussion
      Moderator: Laura Rodriguez (NHGRI)
    • 12:00 - 12:30 p.m. Working Lunch
    • 12:30 - 12:55 p.m. Non-healthcare employer offering genetic testing
      Jane Gilbert (Teachers' Retirement System of Kentucky)
      Gary Harbin (Teachers' Retirement System of Kentucky)
    • 12:55 - 1:15 p.m. Discussion
      Moderator: Howard McLeod (Moffitt Cancer Center)
    • 1:15 - 1:40 p.m. Genomic Medicine Working Group Formulary: Choosing the right test
      Robb Rowley (NHGRI)
    • 1:40 - 2:00 p.m. Discussion
      Moderator: Marc Williams (Geisinger)
    • 2:00 - 2:20 p.m. Break
    • 2:20 - 3:00 p.m. Panel: Employer priorities & gaps in understanding of genomics in employee wellness
      Moderator: Pat Deverka (Geisinger National)
      Panelists: Glenn Steele (Health Transformation Alliance), Jay Wohlgemuth (Quest Diagnostics), Jane Gilbert (Teachers' Retirement System of Kentucky) and Jeff Thompson (Gunderson Health System)
    • 3:00 - 3:40 p.m. Exploring future collaborations in genomics & employee wellness
      Robb Rowley (NHGRI)
      Jay Wohlgemuth (Quest Diagnostics)
    • 3:40 - 4:00 p.m. Discussion
      Moderator: Geoff Ginsburg (Duke University)
    • 4:00 - 4:30 p.m. Summary and Next Steps
      Teri Manolio (NHGRI)
    • 4:30 p.m. Adjourn

Last updated: December 7, 2020