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ISCC Ninth In-Person Meeting

Event Details

The Inter-Society Coordinating Committee for Practitioner Education in Genomics (ISCC-PEG) held its ninth in-person meeting on February 25, 2020, in Bethesda, Maryland.

Natcher Conference Center
Conference Center, Rooms E1/ E2, C1 C2, and J

Agenda

  • 8:00 a.m. - 8:30 a.m. Set-up and Breakfast
  • 8:30 a.m. - 9:00 a.m. Welcome and Introductions
  • 9:00 a.m. - 10:00 a.m. Keynote: Tools for Public Education about Research Ethics
    Jeffrey Botkin, M.D., M.P.H.
    Professor of Pediatrics and an Adjunct Professor of Human
    Genetics and Internal Medicine at the University of Utah
  • 10:00 a.m. - 10:30 a.m. Extramural Training Opportunities/News
    Heather A. Colley, M.S.
    Program Director, Division of Genomic Medicine, NHGRI
  • 10:30 a.m. - 11:00 a.m. Ethical, Legal and Social Implications Research Program
    Dave Kaufman, Ph.D.
    Program Director, Division of Genomics and Society, NHGRI
  • 11:00 a.m. - 11:30 a.m. Organization Members and ISCC Collaboration
    Robert Ostrander, M.D.
    SUNY Upstate Medical University,
    Representative from American Academy of Family Physicians
  • 11:30 a.m. - 12:00 p.m. ISCC Business: Discussion of ISCC Description and Draft “Policy on Review of Materials and Dissemination” document
  • 12:00 p.m. - 12:45 p.m. - Lunch (on your own) / Networking
  • 12:45 p.m. - 2:45 p.m. - Project Group Meetings
  • 2:45 p.m. - 3:45 p.m. - Project Group Meetings Updates and "Asks" of ISCC Membership
  • 3:45 p.m. - 4:30 p.m. - General discussions and suggestions for ISCC

List of Participants

Yassmine Akkari*
Scientific Director, Cytogenetics
Legacy Laboratory Services; Association for Molecular Pathology (AMP)

Christina Aquilante*
American College of Clinical Pharmacy

Rubin Baskir*
NIH, OD

Michelle Bishop*
Genomics Education Programme
Health Education England, United Kingdom

Delphine Blain
National Eye Institute

Jeff Botkin
Professor of Pediatrics and an Adjunct Professor of Human Genetics
University of Utah

Marie-Luise Brennan
NHGRI

Ben Brown
American Society of Pharmacovigilance

Leah Burke
Director, The University of Vermont Medical Center, Clinical Genetics Program

Hemin Chin*
NIAAA

Eriko Clements
Association for Molecular Pathology

Heather Collins
NLM

Shoumita Dasgupta
Professor
Boston University School of Medicine

Christina Daulton
Education and Community Involvement Branch
NHGRI

Erin Dickman*
Oncology Clinical Specialist
Oncology Nursing Society

Megan Doerr
Principal Scientist, Governance Sage Bionetworks

Andrea Durst*
Assistant Professor of Human Genetics
University of Pittsburgh

Kelly East*
Certified Genetic Counselor
HudsonAlpha Institute for Biotechnology

Carla Easter
ISCC-PEG Co-Chair
Chief Education and Community Involvement Branch
NHGRI

Emily Edelman
Associate Director, Clinical & Continuing Eduction
The Jackson Laboratory

Philip Empey
Director, Pharmacogenomics Center of Excellence
University of Pittsburgh

Anne Ersig*
Assistant Professor
University of Wisconsin-Madison School of Nursing

Andy Eugene*
Department of Psychiatry
Medical University of Lublin, Lublin, Poland

Ridgely Fisk Green*
Centers for Disease Control and Prevention

Anne Greb
Lead, Medical Education, Genetic Counselor
23andMe

Kate Greenberg*
NLM, NIH

Jeneva Gularte-Rinaldo
Samuel Merritt University
National Association of Hispanic Nurses

Chris Gunter*
NHGRI

Hwaida Hannoush
NHGRI

Karen Hanson
NCATS

Rich Haspel
ISCC-PEG Co-Chair, Department of Pathology
Beth Israel Deaconess Medical Center

Heidi Hempel
Education and Community Involvement Branch
NHGRI

Lisa Howley
Association of American Medical Colleges

Charles Huang*
Fellow
Undiagnosed Disease Network, NHGRI

Rachel Huddard*
PharmGKB

Belen Hurle
Education and Community Involvement Branch, NHGRI

Karen Hurley
Psychologist, Hereditary Cancer Risk
Cleveland Clinic

Anastasia Jacko*
University of Pittsburgh

Kim Jacoby-Morris
Education and Community Involvement Branch, NHGRI

Heather Junkins
NHGRI

Dave Kaufman
NHGRI

Andrew Landstrom
American Heart Association

Heewon Lee
Genetic counselor
University of Minnesota

Minnky Lee*
All of Us, NIH

Katie Lewis*
Genetic counselor
NHGRI

Ming Li
Assistant Professor
Towson University

Ebony Madden*
NHGRI

Teri Manolio*
NHGRI

Mylynda Massart
Medical Director
UPMC Primary Care Precision Medicine Center

Donna Messersmith
Education and Community Involvement Branch NHGRI

Rachel Mills
National Society of Genetic Counselors

Andrew Monte
Associate Professor
University of Colorado Denver-Anschutz Medical Center

Shawna Morrison*
GECKO

Daniel Mueller
Professor, Department of Psychiatry
University of Toronto

Stephen Murphy
Director, Public Health Solutions
WebMD/Medscape

Kiran Musunuru*
American Heart Association

Vicky Nembaware*
SADaCC Coordinator
Division of Human Genetics
University of Cape Town

Karen Niemchick
Assistant Professor, Department of Public Health
Grand Valley State University

Bob Ostrander
American Academy of Family Physicians

Aniwaa Owusu-obeng*
Mount Sinai Health System

Melissa Parisi
Chief, Intellectual & Developmental Disabilities Branch
NICHD

Gene Passamani
NCATS

Susan Persky*
NHGRI

Teresa Ramirez
NIH

Kate Reed*
Director, Clinical Education Program
The Jackson Laboratory

Sean Robinson
Assistant Professor & Director of Didactic Education
Department of Physician Assistant Studies, GWU

Nguyen Roche
NIDDK

Sara Rogers
Director of Clinical Affairs
American Society of Pharmacovigilance

Sandra San Miguel
NCI Center to Reduce Cancer Health Disparities

Nonniekaye Shelburne*
National Cancer Institute

Eric Sid
NCATS

Carrie Smith*
Director of Education
American Society of Hematology

Michelle Snyder
GARD Operations Manager
NCATS

Lillian Tom-Orme*
National Coalition of Ethnic Minority Nurse Associations (NCEMNA)

Tracey Weiler
Academic Program Director – Graduate Certificate in Molecular and Biomedical Sciences and Associate Professor – Human and Molecular Genetics
Florida International University

Michelle Whirl-Carrillo*
PharmGKB Director
Stanford University

Rosann Wise
Education and Community Involvement Branch, NHGRI

Suzanne Ziemnik
Chief Officer, Learning and Educational Research
American Society for Clinical Pathology

*Remote Participants

  • List of Participants

    Yassmine Akkari*
    Scientific Director, Cytogenetics
    Legacy Laboratory Services; Association for Molecular Pathology (AMP)

    Christina Aquilante*
    American College of Clinical Pharmacy

    Rubin Baskir*
    NIH, OD

    Michelle Bishop*
    Genomics Education Programme
    Health Education England, United Kingdom

    Delphine Blain
    National Eye Institute

    Jeff Botkin
    Professor of Pediatrics and an Adjunct Professor of Human Genetics
    University of Utah

    Marie-Luise Brennan
    NHGRI

    Ben Brown
    American Society of Pharmacovigilance

    Leah Burke
    Director, The University of Vermont Medical Center, Clinical Genetics Program

    Hemin Chin*
    NIAAA

    Eriko Clements
    Association for Molecular Pathology

    Heather Collins
    NLM

    Shoumita Dasgupta
    Professor
    Boston University School of Medicine

    Christina Daulton
    Education and Community Involvement Branch
    NHGRI

    Erin Dickman*
    Oncology Clinical Specialist
    Oncology Nursing Society

    Megan Doerr
    Principal Scientist, Governance Sage Bionetworks

    Andrea Durst*
    Assistant Professor of Human Genetics
    University of Pittsburgh

    Kelly East*
    Certified Genetic Counselor
    HudsonAlpha Institute for Biotechnology

    Carla Easter
    ISCC-PEG Co-Chair
    Chief Education and Community Involvement Branch
    NHGRI

    Emily Edelman
    Associate Director, Clinical & Continuing Eduction
    The Jackson Laboratory

    Philip Empey
    Director, Pharmacogenomics Center of Excellence
    University of Pittsburgh

    Anne Ersig*
    Assistant Professor
    University of Wisconsin-Madison School of Nursing

    Andy Eugene*
    Department of Psychiatry
    Medical University of Lublin, Lublin, Poland

    Ridgely Fisk Green*
    Centers for Disease Control and Prevention

    Anne Greb
    Lead, Medical Education, Genetic Counselor
    23andMe

    Kate Greenberg*
    NLM, NIH

    Jeneva Gularte-Rinaldo
    Samuel Merritt University
    National Association of Hispanic Nurses

    Chris Gunter*
    NHGRI

    Hwaida Hannoush
    NHGRI

    Karen Hanson
    NCATS

    Rich Haspel
    ISCC-PEG Co-Chair, Department of Pathology
    Beth Israel Deaconess Medical Center

    Heidi Hempel
    Education and Community Involvement Branch
    NHGRI

    Lisa Howley
    Association of American Medical Colleges

    Charles Huang*
    Fellow
    Undiagnosed Disease Network, NHGRI

    Rachel Huddard*
    PharmGKB

    Belen Hurle
    Education and Community Involvement Branch, NHGRI

    Karen Hurley
    Psychologist, Hereditary Cancer Risk
    Cleveland Clinic

    Anastasia Jacko*
    University of Pittsburgh

    Kim Jacoby-Morris
    Education and Community Involvement Branch, NHGRI

    Heather Junkins
    NHGRI

    Dave Kaufman
    NHGRI

    Andrew Landstrom
    American Heart Association

    Heewon Lee
    Genetic counselor
    University of Minnesota

    Minnky Lee*
    All of Us, NIH

    Katie Lewis*
    Genetic counselor
    NHGRI

    Ming Li
    Assistant Professor
    Towson University

    Ebony Madden*
    NHGRI

    Teri Manolio*
    NHGRI

    Mylynda Massart
    Medical Director
    UPMC Primary Care Precision Medicine Center

    Donna Messersmith
    Education and Community Involvement Branch NHGRI

    Rachel Mills
    National Society of Genetic Counselors

    Andrew Monte
    Associate Professor
    University of Colorado Denver-Anschutz Medical Center

    Shawna Morrison*
    GECKO

    Daniel Mueller
    Professor, Department of Psychiatry
    University of Toronto

    Stephen Murphy
    Director, Public Health Solutions
    WebMD/Medscape

    Kiran Musunuru*
    American Heart Association

    Vicky Nembaware*
    SADaCC Coordinator
    Division of Human Genetics
    University of Cape Town

    Karen Niemchick
    Assistant Professor, Department of Public Health
    Grand Valley State University

    Bob Ostrander
    American Academy of Family Physicians

    Aniwaa Owusu-obeng*
    Mount Sinai Health System

    Melissa Parisi
    Chief, Intellectual & Developmental Disabilities Branch
    NICHD

    Gene Passamani
    NCATS

    Susan Persky*
    NHGRI

    Teresa Ramirez
    NIH

    Kate Reed*
    Director, Clinical Education Program
    The Jackson Laboratory

    Sean Robinson
    Assistant Professor & Director of Didactic Education
    Department of Physician Assistant Studies, GWU

    Nguyen Roche
    NIDDK

    Sara Rogers
    Director of Clinical Affairs
    American Society of Pharmacovigilance

    Sandra San Miguel
    NCI Center to Reduce Cancer Health Disparities

    Nonniekaye Shelburne*
    National Cancer Institute

    Eric Sid
    NCATS

    Carrie Smith*
    Director of Education
    American Society of Hematology

    Michelle Snyder
    GARD Operations Manager
    NCATS

    Lillian Tom-Orme*
    National Coalition of Ethnic Minority Nurse Associations (NCEMNA)

    Tracey Weiler
    Academic Program Director – Graduate Certificate in Molecular and Biomedical Sciences and Associate Professor – Human and Molecular Genetics
    Florida International University

    Michelle Whirl-Carrillo*
    PharmGKB Director
    Stanford University

    Rosann Wise
    Education and Community Involvement Branch, NHGRI

    Suzanne Ziemnik
    Chief Officer, Learning and Educational Research
    American Society for Clinical Pathology

    *Remote Participants

Last updated: April 30, 2020