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About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… NHGRI is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that … of genomics research in our work, including these key issues. … Policy Issues in Genomics … of genomics research in our work, including these key policy issues. …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the … protecting the privacy of research participants. The final policy was posted in the Federal Register Aug. 26, 2014 and published in the … submitted for a Jan. 25, 2015, receipt date, the policy will apply to all NIH-funded, large-scale human and …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of policy and scientific research is critical to defining good … Strengthening the Policy Workforce The National Human Genome Research Institute …
Policies and Guidance
The NHGRI funding policy is aimed at accelerating scientific and medical breakthroughs that improve human health.
… methods and technologies that will accelerate research in understanding the structure of genomes; understanding the … effectiveness of healthcare. NHGRI also supports research in the ethical, legal and societal implications of genomics research, clinical implementation of genomics, …
About NHGRI
A list of policies and guidance related to funding, genomic data sharing, website operations and our work environment at the National Human Genome Research Institute.
… Website Accessibility, NIH Policy, Genomic Data Sharing, NHGRI Policy, NIH Website Policy, Copyright, Privacy Policy …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … studies collecting sensitive data; however, under the new policy, as of October 1, 2017, NIH-funded researchers and … or other identifying characteristics of research subjects in response to legal demands, such as subpoenas. More …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… Human Genome Research Institute (NHGRI) websites are in the public domain, unless otherwise indicated. You may … credit line indicating that it did not originate at NHGRI. In this case, please be sure to cite the correct copyright … will abide by the same provisions as the NHGRI Copyright Policy. Please read our full external link disclaimer for …
Policies and Guidance
NHGRI encourages you to share your thoughts on the topics explored on genome.gov and other websites we own or administer.
… or to remove comments, that are inconsistent with our policy, at our complete discretion. The views expressed in comments reflect those of the author and do not … Additional guidance as to how NHGRI regards privacy issues can be found at our Privacy Policy . We welcome your …
Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… Thank you for visiting genome.gov and reviewing our privacy policy. The U.S. Department of Health and Human Services, of … standard information automatically collected and stored in the Web server's logs) unless you choose to provide it to … of session cookies as "Usage Tier 1-Single Session." The policy says, "This tier encompasses any use of single session …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… the National Institutes of Health (NIH) issued a notice in its Guide to Grants and Contracts seeking public comment … summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data management practices would help support NIH's …