Search Results
Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… Thank you for visiting genome.gov and reviewing our privacy policy. The U.S. Department of Health and Human Services, of … or court order. The NHGRI is committed to protecting your privacy. We will not collect any personal information about … of session cookies as "Usage Tier 1-Single Session." The policy says, "This tier encompasses any use of single session …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… An individual’s privacy should be respected when their genomic information is used for research, clinical applications or other uses. This page summarizes genetic and genomic privacy in these domains, along with information on the … When conducting genomics research, two essential values of scientific research should …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… Cures Act, enacted December 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … is collected from participants as part of federally-funded research. … who conduct sensitive, health-related human subjects research be issued Certificates of Confidentiality . …
Policies and Guidance
The NHGRI funding policy is aimed at accelerating scientific and medical breakthroughs that improve human health.
… resources; methods and technologies that will accelerate research in understanding the structure of genomes; … the effectiveness of healthcare. NHGRI also supports research in the ethical, legal and societal implications of genomics research, clinical implementation of genomics, …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the … and procedures that improve health while protecting the privacy of research participants. The final policy was posted in the … projects that generate genomic data. This includes research conducted with the support of NIH grants and …
About NHGRI
A list of policies and guidance related to funding, genomic data sharing, website operations and our work environment at the National Human Genome Research Institute.
… and our work environment at the National Human Genome Research Institute (NHGRI). … and our work environment at the National Human Genome Research Institute. ​ … Website Accessibility, NIH Policy, Genomic Data Sharing, NHGRI Policy, NIH Website Policy, Copyright, Privacy Policy …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants policy. Those interested in applying for a specific grant … federal agency responsible for biomedical and behavioral research and research training. As such, it is accountable to …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of policy and scientific research is critical to defining good policy. … the Policy Workforce The National Human Genome Research Institute (NHGRI) and the American Society for Human …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research. … according to the NIH guidance regarding scope of the GDS Policy . Investigators should consult with appropriate NHGRI … to determine whether the GDS Policy applies to their research study. …
Policies and Guidance
NHGRI encourages you to share your thoughts on the topics explored on genome.gov and other websites we own or administer.
… The National Human Genome Research Institute (NHGRI) encourages you to share your … or to remove comments, that are inconsistent with our policy, at our complete discretion. The views expressed in … do not intend. Additional guidance as to how NHGRI regards privacy issues can be found at our Privacy Policy . We …