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News Release
NIH will support research that incorporates DNA sequence information into electronic medical records.
… awards from the National Institutes of Health will support research that incorporates DNA sequence information into electronic medical records. The goal of research conducted by the Electronic Medical Records and Genomics (eMERGE) network is to better understand the genomic …
News Release
Fearful patients who received information about the role of genomics in obesity were less likely to take steps to improve health habits
… New research suggests that fearful patients who received information about the role of genomics in being overweight viewed the information as … she asked the 1,126 overweight participants to write for five minutes about situations that made them very angry … Fearful patients who received information about the role of genomics in obesity were less likely to take steps to improve …
About NHGRI
Information about how the NHGRI receives its funding and decides how to spend its annual budget.
… FY 2026 Budget proposes to consolidate NHGRI into NIGMS. For more information on the FY 2026 NIH Congressional … NIH Office of Budget website . The National Human Genome Research Institute (NHGRI) receives its funding through … of genetic information. The NHGRI budget provides funding for a dynamic intramural research program in genetic and …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic … data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic … data to use data generated from sources with participant consent for unrestricted access or for General Research Uses through … intramural staff should refer to specific instructions for NHGRI forms and submitting plans on the NHGRI Intranet's …
For Patients and Families
List of resources to help you find accurate and reliable information on genetic and rare diseases.
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… among the millions of online sources is a difficult task for almost everyone. We hope these tips will help you perform … information is available online. The material provided is for informational or educational purposes only and is not … specific tests and products by the National Human Genome Research Institute or the Office of Rare Diseases at the …
Educational Resources
The Genetic Information Nondiscrimination Act (GINA) is federal legislation that makes it unlawful to discriminate against individuals on the basis of their genetic profiles in regard to health insurance and employment.
Administrative
The Information Technology Branch provides leadership and service for information technology resources at NHGRI.
… Technology Branch (ITB) provides leadership and service for all information technology (IT) resources for the National Human Genome Research Institute (NHGRI). … Applications ITB develops and integrates applications for NHGRI customers. Operations ITB provides LAN and WAN …
Funded Research
The Advancing Genomic Medicine Research (AGMR) program stimulates innovation and advance understanding of when, where and how best to implement the use of genomic information and technologies in clinical care.
… Yu Boston Children's Hospital VIGOR: Virtual Genome Center for Infant Health Caitlin Gloeckner Allen Medical University … Infants and Children: A Novel Paradigm in Public Health Genomics Sean David University of Chicago Integrative … (ARDI): Advancing Genomic Medicine through rare diseases research in Africa Gabor T. Marth Martin Tristani-Firouzi …
15 Ways Genomics Influences Our World
Advances in genomics are helping you access information about your genome from your home.
… Advances in genomics are helping you access information about your genome … them with information about their genome? Advances in genomics since the Human Genome Project have led to an … tests. In contrast to clinical genomic testing, such as for cancer [see Cancer Genomics ] and prenatal screening …