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Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… Data sharing has been a central tenet of the field of genomics … Human Genome Project. While many recognize that sharing genomic data is critical to scientific progress, considerable … privacy and other concerns have been raised over sharing genomic data too broadly and openly. It is immensely …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… Genome-wide data from medieval German Jews show that the Ashkenazi … at Harvard Medical School; that grant is part of the NIH Research Project Grant Program ( PA-19-056 ). …  The effective date for the new NIH Data Management and Sharing (DMS) Policy occurred last …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
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… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome … Ms. Ghanaim collaborates with international, NIH and grantee partners on data sharing and privacy policy … Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome …
The Genomics Landscape
In 2022, The Genomics Landscape spotlighted genomic data sharing each month in a series of entries. This page contains a collection of each of those entries.
… Landscape Originally published: January 13, 2022  Data sharing is central to the field of genomics. Both human and non-human genomic data have been widely shared through public data … did you know that although NHGRI is one of the smallest NIH institutes by budget, it ranks #3 in total number of Data …
Policies and Guidance
Frequently Asked Questions regarding the NHGRI's Metadata and Phenotypic Data Sharing Expectations.
… Data sharing is an important aspect of the research endeavor that ensures maximal use of participants’ data for scientific discovery, rigor and reproducibility, and more. NHGRI-funded researchers subject to NIH’s data sharing policies are expected to share …
Event
On November 30th, 2020, NHGRI convened a virtual meeting for journal editors and NHGRI/NIH staff to discuss genomic data sharing.
… convened a virtual meeting for journal editors and NHGRI/NIH staff to discuss genomic data sharing. The goal of this meeting was to learn more … Scientific Journals and Genomic Data Sharing … convened a virtual meeting for journal editors and NHGRI/NIH staff to discuss genomic data sharing. …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… addressed in a Resource Sharing Plan?  Please review the NIH webpage on the Research Tools Policy for the NIH … research, spanning the various research areas (e.g., genomic science, genomic medicine, ELSI research), produces … laboratory equipment and machines)  Protocols (e.g.,data collection instruments, consent materials, laboratory …
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Office of Science Policy … we're committed to providing researchers with access to genomic data. The National Institutes of Health (NIH) Genomic Data Sharing Policy establishes a system to … and access processes. To address these concerns, NIH has made a number of improvements to dbGaP ( see Box 1 ). …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… will focus on the following topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to … NIH Data Sharing and Management Policy NHGRI’s Data Sharing Policies … hosts an informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy , on Tuesday, …
Policies and Guidance
NHGRI encourages you to share your thoughts on the topics explored on genome.gov and other websites we own or administer.
… or to remove comments, that are inconsistent with our policy, at our complete discretion. The views expressed in … NHGRI regards privacy issues can be found at our Privacy Policy . We welcome your comments at any time. However, given … Policy … Comment Policy … NHGRI Comment Policy, NIH Comment Policy, Website Comments, NHGRI Social Media …