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News Release
NHGRI researchers have released new educational materials to help the sickle cell disease community learn about gene therapies for the disease.
… New educational materials to help the sickle cell disease community learn about gene therapies for the disease are now … options. “These materials offer the sickle cell disease community information about what participating in a gene … community understand these new therapies and to facilitate engagement between this community and those conducting …
15 Ways Genomics Influences Our World
Genomics is advancing the study of individual and communities of microbes.
Educational Resources
NHGRI educates students, teachers and the public about genomics through outreach events and hands-on activities.
… ​Community Outreach …
Staff
Christina R. Daulton serves as the Partnerships and Engagement Officer at the National Human Genome Research Institute (NHGRI) in the Office of the Deputy Director and the Training, Diversity, and Health Equity Office.
… Christina R. Daulton serves as the Partnerships and Engagement Officer at the National Human Genome Research … an Education Outreach Specialist in NHGRI’s Education and Community Involvement Branch, where she played a significant … Christina R. Daulton serves as the Partnerships and Engagement Officer at the National Human Genome Research …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… focused on protecting the individual, but there were no community protections. We made sure that, on behalf of the tribes, the revisions addressed community protections, community needs and community benefits. We did this through … Community focus is central to American Indians/Alaska Natives …
Staff
Dr. Belen Hurle is an associate investigator in NHGRI's Division of Intramural Research, an educational outreach specialist in the Education and Community Involvement Branch and a training program coordinator in the Intramural Training Office.
… Belen Hurle, Ph.D., develops models of public engagement related to genomics, genetics and public health. … an educational outreach specialist in the Education and Community Involvement Branch and a training program … Belen Hurle, genomics education, careers in genomics, community outreach …
Leadership Initiatives
The Genomics and Health Disparities Interest Group provides a forum to connect individuals from different scientific disciplines across the National Institutes of Health (NIH) and researchers in the Washington D.C. metropolitan area engaged in genomics and health disparities research, as well as provide opportunities for professional development, networking and community engagement.Â
… opportunities for professional development, networking and community engagement. … opportunities for professional development, networking and community engagement. In addition to establishing a listserv for … opportunities for professional development, networking and community engagement. …
Event
On March 13-14, 2017, the National Human Genome Research Institute (NHGRI) in partnership with the Foundation for the National Institutes of Health (FNIH) hosted a strategic visioning meeting for a proposed GLEE Initiative.
… Genetics Philip Alderson NIH/NLM Maria Alvarez El Paso Community College Zeke Alvarez-Saavedra miniPCR Kathy Arnos … Academy Alyssa Brooks NIH/NINR Lesley Brown Baltimore City Community College Jen Carroll Illumina June Carroll Mt. Sinai … Consultant Steve Mockrin NIH/OD Valentine Mukundente Community Faces of Utah Steve Murphy MedScape/WebMD Kiran …
Event
On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion exploring a constant tension at multiple levels in genomics research and medicine, from patient-provider interactions to research engagement with marginalized communities.
… medicine, from patient-provider interactions to research engagement with marginalized communities.   … medicine, from patient-provider interactions to research engagement with marginalized communities. … medicine, from patient-provider interactions to research engagement with marginalized communities. …
Engage
News, events and media resources related to the research and programs supported by the National Human Genome Research Institute.