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News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the … protecting the privacy of research participants. The final policy was posted in the Federal Register Aug. 26, 2014 and published in the NIH Guide … of Health and Human Services. NIH is the primary federal agency conducting and supporting basic, clinical, and …
ISCC-PEG
A list of organizations and federal agency partners that have members in the Inter-Society Coordinating Committee for Practitioner Education in Genomics (ISCC-PEG).
… The Organizations and Federal Agency Partners listed below have members in the … Federal Agency Partners … Organizations and Federal Agency Partners … A list of organizations and federal agency partners that have members in the … A list of organizations and federal agency partners that have members in the …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… A Pathway to Science Policy and Education Careers One way to ensure that genomic discoveries in the lab drive policy and education for our benefit is to strengthen the … between genomic research and science education and policy. The National Human Genome Research Institute (NHGRI) …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the Policy and Program Analysis Branch (PPAB) within the Division of Policy, Communications and Education (DPCE). She will then … NHGRI welcomes 2015 ASHG/NHGRI education and public policy fellows …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to improve health are deeply influenced by important policy decisions at the national level. From guiding research … ASHG and NHGRI co-sponsor the Genetics and Public Policy Fellowship to give genetics/genomics professionals an opportunity to contribute to the policy-making process. The fellowship is designed as a bridge …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … studies collecting sensitive data; however, under the new policy, as of October 1, 2017, NIH-funded researchers and … research. Compliance with the requirements of the policy will become a term and condition of award for grant …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants policy. Those interested in applying for a specific grant … The NIH is the principal federal agency responsible for biomedical and behavioral … and the general public for responsible stewardship of federal research dollars. Sound management of research funds …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… Our website has links to many other federal agencies, and in a few cases we link to private … organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply with 508 … for Section 508 compliance (accessibility) on other federal or private Web sites. Reference in this website to …
The Genomics Landscape
In the October 2018 edition of The Genomics Landscape, NHGRI Director Dr. Eric Green highlights Dr. Dan Kastner as the Federal Employee of the Year.
… Aside from anticipating cooler weather, those of us in the federal government spend this time of year closely monitoring … NHGRI's Scientific Director, Dr. Dan Kastner, as the Federal Employee of the Year. Often referred to as the … Dr. Kastner received the Sammie's highest honor as the Federal Employee of the Year . In his over 30 years of …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… primary study, if consistent with study design. When the policy applies NHGRI encourages sharing of all data types. However, at this time the NIH GDS Policy and NHGRI implementation plans apply particularly to … with other data sets. Projects that are subject to the GDS Policy NHGRI finds value in and encourages the sharing of …