Search Results
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed … aims to enhance synergies in the areas of bioethics, policy, education, engagement and communication. Notice of … Proposed reorganization of the Division of Policy, Communications and Education …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… Rapid advances in genomic research have led to a wealth of potential clinical … A Pathway to Science Policy and Education Careers One way to ensure that genomic discoveries in the lab drive policy and education for … NHGRI-ASHG fellowships fulfill critical need in science policy and education …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants policy. Those interested in applying for a specific grant … the grantee has a working knowledge of the NIH Grants Policy Statement , understands whether an action requires …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … studies collecting sensitive data; however, under the new policy, as of October 1, 2017, NIH-funded researchers and … research. Compliance with the requirements of the policy will become a term and condition of award for grant …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the Policy and Program Analysis Branch (PPAB) within the Division … audiences, further developing her passion for genetic and genomic literacy and education. "My goal is to help improve …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and analysis that enables the National … PPAB promotes policies that facilitate the uptake of genomic technologies into the clinic and broader society, the …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely … primary study, if consistent with study design. When the policy applies NHGRI encourages sharing of all data types. … technologies. Data pertinent to the interpretation of genomic data — such as associated phenotype data (e.g., …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to improve health are deeply influenced by important policy decisions at the national level. From guiding research … ASHG and NHGRI co-sponsor the Genetics and Public Policy Fellowship to give genetics/genomics professionals an opportunity to contribute to the policy-making process. The fellowship is designed as a bridge …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… An individual’s privacy should be respected when their genomic information is used for research, clinical … or other uses. This page summarizes genetic and genomic privacy in these domains, along with information on … laws and policies that protect the privacy of genetic and genomic information. In the United States, the applicable …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… we are updating the way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary results for most of the studies we support in … Access to Genomic Summary Results In 2008, researchers raised concerns … Carrie D. Wollinetz, Ph.D., Associate Director for Science Policy, National Institutes of Health …