Search Results
Research Funding
The following are research areas of interest that have been identified by the participating NIH institutes, centers, and offices (ICOs) on the investigator-initiated ELSI Research Grants (R01, R21, R03). Program Officer(s) contact information is also included for each ICO.
… The following are research areas of interest that have been identified by the … and offices (ICOs) on the investigator-initiated ELSI Research Grants ( R01 , R21 , R03 ). Program Officer(s) … delivered to the ways we understand what it means to be human. The ELSI Research Program has identified four broad …
Media Advisory
The NIH-funded Integrative Human Microbiome Project presented at the International Human Microbiome Congress.
… the National Institutes of Health (NIH)-funded Integrative Human Microbiome Project (iHMP), which is coordinated by the National Human Genome Research Institute (NHGRI), will present findings at the 5th … the National Institutes of Health (NIH)-funded Integrative Human Microbiome Project (iHMP), which is coordinated by the …
Staff
Cristina Kapustij was the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute until June 2024.
… of the Policy and Program Analysis Branch at the National Human Genome Research Institute. Ms. Kapustij spearheads the branch’s … related to the ethical, legal and social implications of human genomics research and develops policies to address … of the Policy and Program Analysis Branch at the National Human Genome Research Institute until June 2024. …
News Release
NHGRI published its “Strategic vision for improving human health at The Forefront of Genomics” in the journal Nature. This vision describes the most compelling research priorities and opportunities in human genomics for the coming decade, signaling a new era in genomics for the Institute and the field.
… NHGRI's 2020 Strategic Vision describes opportunities in human genomics for improving human health. … The National Human Genome Research Institute (NHGRI), part of the National Institutes … principles and values that provide a guiding compass for human genomics. The field should pay significant attention to …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
… the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI). She spearheads NHGRI’s scientific … NHGRI programmatic policies, and promotes understanding of Human Subjects Research Regulations. Ms. Ghanaim graduated … the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI) …
News Release
NHGRI researchers have produced the first end-to-end DNA sequence of a human chromosome. The results show that generating a precise, base-by-base sequence of a human chromosome is now possible, and will enable researchers to produce a complete sequence of the human genome.
… This accomplishment opens a new era in genomics research. … Researchers at the National Human Genome Research Institute (NHGRI), part of the National Institutes … have produced the first end-to-end DNA sequence of a human chromosome. The results, published today in the journal …
Research Funding
A list of funding opportunities in genomics research provided by NHGRI and the National Institutes of Health.
… The National Human Genome Research Institute supports research and training and career … scientific and medical breakthroughs that improve human health. We do this by driving cutting-edge research, … To apprise the community of research areas that support that mission, NHGRI periodically …
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… aim to "modernize, simplify, and enhance" oversight for human subjects research in the United States to address changes in the nature of research since the original publication of the Common Rule in … the use of a single IRB for cooperative (or multisite) research will begin after 3 years, on January 20, 2020. …
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… about the risks and benefits of participating in a research project. … consent process and consent form should reflect the research uses for which samples, genomic data, and health … to seek consent for more narrowly defined research uses of participant samples and data. In addition, a biobank or data …
About NHGRI
The National Advisory Council for Human Genome Research provides expert advice on genetics, genomics research, training and programs to NHGRI and the NIH.
… The National Advisory Council for Human Genome Research (NACHGR) advises the Department of Health and Human Services (DHHS), the National Institutes of Health … National Advisory Council for Human Genome Research … The National Advisory Council for Human Genome Research provides expert advice on genetics, …