Search Results
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… guidance on how to approach them. It also provides sample language to help investigators think through important … in their consent forms and how to use clear and concise language to inform participants about the risks and benefits … sharing) is appropriate. Therefore, some of the sample language below reflects wording that could be used when …
The Informed Consent Resource
Explore the basic elements of informed consent that are required by the Common Rule and that are relevant to genomics.
… and that are relevant to genomics. It also provides sample language that can be used as a guide when crafting informed … and the immediate and long-term goals of the study. Sample Language: Purpose of the Research You are invited to take … Data Repositories and Biobanks  for discussion and sample language). What the plans are for dissemination of …
Research Training
Resources for trainees ranging from grant writing resources to peer review and career guidance.
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… community benefits. We did this through the addition of language that acknowledges tribal authority over research …
Secondary Genomics Finding Service
Clinical Research Staff and Protocol Coordinators
… basic information, like the participant's name and what language they speak, etc. … of their participation in an NIH research study. Suggested language to incorporate into protocols and consent forms can …
The Genomics Landscape
In the December 8, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., looks back on the success of the Genome: Unlocking Life's Code exhibition as it came to a close in November.
… Informed Consent Resource to provide guidance and sample language for genomics research, including how to describe …
Explainer
Appropriate use of population descriptors in research is a critical scientific issue that is important for advancing genomic science and improving healthcare across human populations.
… ancestry, genetic ancestry, indigeneity status , primary language spoken, nationality, geographic origin, sex, … Ethnicity tends to refer to a group of people with shared language, religion, customs, beliefs, heritage and history, … but it did appear in prior years. 13 In some countries, language spoken, origins or religion matter more than race or …
Event
The 2022 - 2024 Class of ISCC-PEG Scholars provided virtual presentations of the genomics education projects in which they were involved during their two years of participation in the program. Their ISCC-PEG Mentors provided introductions.
… PM: Genetic Counselor’s Adaptations and Perceptions in Language Discordant Patient Encounters Molly Felix, Master of …
News Release
Mothers may be able to reduce guilt over their children's inherited obesity guilt by being more careful in the future about their children's diet.
… In a second study, Drs. Persky and Street reported that plain talk about genomic influences can lessen patients' …
History of Genomics Program
The NHGRI History of Genomics Archive is a digital archive that holds a wealth of materials from the early stages of the Human Genome Project and provides a unique and detailed look into how the field has developed in the decades following.
… aids and catalog records if they contain inappropriate language. Some documents in our collections may contain inaccurate, outdated, harmful and/or offensive language, such as sexist, racist, homophobic, ableist and dehumanizing language. In such cases, the language has been intentionally …