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NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… Cristina Kapustij, M.S., has been named chief of the Policy and Program Analysis Branch (PPAB) at the National Human Genome Research Institute (NHGRI). In her new role, she will oversee policy activities and evaluation as well as program reporting … PPAB is a part of the Division of Policy, Communications and Education (DPCE), whose mission is …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… uses. This page summarizes genetic and genomic privacy in these domains, along with information on the specific laws … protect the privacy of genetic and genomic information. In the United States, the applicable privacy protections rest … of the research participants (see Genomic Data Sharing Policy  below). In addition, NIH issues Certificates of …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research. … Amount of Data/Type of Study Design NHGRI finds value in and encourages the sharing of smaller project sizes that … according to the NIH guidance regarding scope of the GDS Policy . Investigators should consult with appropriate NHGRI …
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed reorganization aims to enhance synergies in the areas of bioethics, policy, education, engagement and communication. Notice of … Proposed reorganization of the Division of Policy, Communications and Education …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… Rapid advances in genomic research have led to a wealth of potential … A Pathway to Science Policy and Education Careers One way to ensure that genomic … bridge between scientists who know what the challenges and issues are, and the policy-makers who are actually writing …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants policy. Those interested in applying for a specific grant solicitation will find … grantees will properly administer the sponsored activities in accordance with the applicable regulations and policies. …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… Caroline "Cari" Young, Sc.M., first developed an interest in genetics in her high school AP biology class. "I was drawn to the … Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate … that this will not always be possible or appropriate. In addition, individual participants who do not consent to … primary study, if consistent with study design. When the policy applies NHGRI encourages sharing of all data types. …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… Advances in research and their successful translation to improve health are deeply influenced by important policy decisions at the national level. From guiding research … agendas to informing the integration of genetics and genomics in clinical settings, sound evidence-based public …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and analysis that enables the National … grantees and other external stakeholders, to address policy matters related to human genetics and genomics. PPAB …