Search Results
Clinical Research
The Institutional Review Board (IRB)Â is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… (IRB) is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural … Oversight for human subjects research happening in the National Human Genome Research … Review Board Office (IRBO) located within the Office of Human Subjects Research Protections (OHSRP). The OHSRP …
Clinical Research
The Protocol Service Center provides assistance in the development and administration of study protocols requiring NIH Institutional Review Board approval.
… The National Human Genome Research Institute (NHGRI) Protocol Service Center (PSC) … and staff in the development and administration of study protocols that require NIH Institutional Review … NHGRI PSC is staffed by protocol navigators with knowledge of the protocol review cycle and expertise in Institute and …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… unrestricted access to genomic summary results for most of the studies we support in order to advance health or further research purposes. These summary results are importantly distinct from other genomic research data, most notably in that they do not include …
News Release
An online Informed Consent Resource created in 2009 by NHGRI has been updated to keep pace with advances in genomics over the past several years
… studies are increasingly integral to the advancement of a spectrum of disease-based research. As knowledge stemming from the completion of the … help advance understanding about how to harness the power of genomics to improve health. Those participants would join …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… Today, the National Institutes of Health (NIH) issued a notice in its Guide to Grants and … NIH's goals to promote scientific advances and protect research participants' privacy interests by allowing genomic summary results from … and is especially interested in hearing from members of the general public, research participants, and/or the …
Research at NHGRI
The NHGRI Intramural Research Award recognizes research achievements by trainees in basic, clinical, and social behavioral science research.
… The NHGRI Intramural Research Award distinguishes meritorious research … a single, notable research achievement or a larger body of work of exemplary quality and significance. … NHGRI recognizes outstanding trainees in the Division of Intramural Research by granting the NHGRI Intramural …
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… forms and how to use clear and concise language to inform participants about the risks and benefits of participating in a research project. … future research and increase the scientific value of the data. For NIH-funded research, investigators are … increase participation of people who have concerns about privacy or do not want their samples and data used for …
Research Training
The Postdoctoral Intramural Research Training Award provides full-time, semi-independent research in NHGRI laboratories.
… The Postdoctoral Intramural Research Training Award (IRTA) is available to promising … who are interested in pursuing full-time, semi-independent research in National Human Genome Research Institute (NHGRI) laboratories. … academic interests and career plans. An important aspect of the postdoctoral training experience at NHGRI is the …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
​
… Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI). She spearheads NHGRI’s scientific … NIH and grantee partners on data sharing and privacy policy issues. For the last three years, she has …
Research Funding
NHGRI solicits grant applications that relate to its scientific priorities and research interests
… grant applications submitted to the National Institutes of Health (NIH) for research or research training are investigator-initiated proposals. These … If an applicant wishes to submit a proposal with a budget of $500,000 or more in direct costs for any one year, …