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NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… Cristina Kapustij, M.S., has been named chief of the Policy and Program Analysis Branch (PPAB) at the National Human Genome Research Institute (NHGRI). In her new role, she will oversee policy activities and evaluation as well as program reporting … will be vital as genomics continues to advance beyond the research laboratory toward clinical and other applications …
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed … aims to enhance synergies in the areas of bioethics, policy, education, engagement and communication. Notice of …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… and other information on National Human Genome Research Institute (NHGRI) websites are in the public domain, … acknowledgement, such as: "Courtesy: National Human Genome Research Institute" with a link back to genome.gov. … will abide by the same provisions as the NHGRI Copyright Policy. Please read our full external link disclaimer for …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… participants in biomedical, clinical and social-behavioral research can provide insights and discoveries that could not … model organisms or other methods. All federally-funded research with human participants such as that supported by … clarify the benefits and risks of participating in the research. …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and resources Q&A from … to Selecting a Repository Informed Consent for Secondary Research with Data and Biospecimens Listing of Generalist …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… Advances in research and their successful translation to improve health are deeply influenced by important policy decisions at the national level. From guiding research agendas to informing the integration of genetics and … and implementation of genetics-related health and research policies at a national level. The fellowship …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… Rapid advances in genomic research have led to a wealth of potential clinical … A Pathway to Science Policy and Education Careers One way to ensure that genomic … people who can succeed at the interface between genomic research and science education and policy. The National Human …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … studies we support in order to advance health or further research purposes. These summary results are importantly distinct from other genomic research data, most notably in that they do not include …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and analysis that enables the National Human Genome Research Institute (NHGRI) to pursue its mission. … into the clinic and broader society, the protection of research participants in genomic studies, and the integration …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data … NIH's goals to promote scientific advances and protect research participants' privacy interests by allowing genomic summary results from …