Search Results
Clinical Research
The Protocol Service Center provides assistance in the development and administration of study protocols requiring NIH Institutional Review Board approval.
… The National Human Genome Research Institute (NHGRI) Protocol Service Center (PSC) … navigation assistance to NIH investigators and staff in the development and administration of study protocols that require NIH Institutional Review … NHGRI PSC is staffed by protocol navigators with knowledge of the protocol review cycle and expertise in Institute and …
Research Funding
A list of current and previous Centers of Excellence in Genomic Science (CEGS) grant awards.
… Center for the Multiplexed Assessment Of Phenotype RM1 HG010461 Douglas Fowler University of … diverse environments, and each individual variant exists in the context of millions of other variants. In the second phase of our Center for Excellence in Genome Science (CEGS) -- the Center for …
Event
On September 23, 2024, the NHGRI ELSI Program hosted a pre-application webinar to provide an overview of a new Notice of Funding Opportunity (NOFO) for the ELSI Congress to support the organization of the next series of ELSI Congress meetings in 2026, 2028 and 2030.
… The NHGRI’s Ethical, Legal and Social Implications (ELSI) Research Program hosted a public pre-application webinar to provide an overview of a new Notice of Funding Opportunity (NOFO) for the … organization of the next series of ELSI Congress meetings in 2026, 2028, and 2030. During the webinar, NHGRI staff …
FAQ
Frequently asked questions from the September 23, 2024 pre-application webinar the NHGRI ELSI Program hosted.
… $350K direct costs is the budget limit during the year in which the conference is held. But planning for the … in May 2025. An award will be made during the summer of 2025. The first meeting organized under this award should occur during the first year of the project. If the first conference was planned for …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… At the time of this webinar, the National Human Genome Research Institute … with the goal of publishing the final Strategic Plan in the fall of 2020. Over the previous year, the NHGRI held … Strategic Plan. The internal working group that focused on ELSI, engagement and education issues in the Strategic Plan …
Event
The NHGRI Center for Genomics and Data Science Research is pleased to host Dr. Ewan Birney for a special seminar to celebrate the center’s first year of operation.
… The NHGRI Center for Genomics and Data Science Research is pleased to host Dr. Ewan Birney for a special seminar to celebrate the center’s first year of operation. Dr. Birney’s own research journey matches well … computation, and molecular biology to make breakthroughs in our understanding of genomic code. Please join us for what …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… data? NHGRI recognizes that methods for de-identification of qualitative data are developing, and existing tools may …  Guidance on de-identification from the Department of Health and Human Services NIST’s tools for … of Medicine's clinical text de-identification tool  In some cases, the repository to which you're submitting data …
News Release
Four NIH grants will support research on the ethical, legal and social questions raised by genomics research advances and genomic information.
… Four new grants from the National Institutes of Health will support research on the ethical, legal and … The awards will fund researchers at interdisciplinary centers through the National Human Genome Research Institute's (NHGRI) Centers of Excellence in Ethical, Legal and Social Implications Research …
Event
On November 18, 2021, NHGRI will host an NIH Genomics and Health Disparities Special Interest Group lecture, "NIH Approach to Inclusive Excellence - The COSWD Viewpoint" by Marie A. Bernard, M.D.
… A. Bernard, M.D. leads NIH thought regarding the science of scientific workforce diversity, assuring that the full … structural racism. Prior to being selected as the COSWD in May 2021, she was deputy director of the National … Biomedical Careers. Her national leadership in geriatrics research, teaching, and clinical practice has been recognized …
News Release
The Genomics and Society: Expanding the ELSI Universe conference focused on issues arising from the ethical, legal and social implications of genomic research.
… From prenatal genetic screening to the genetic testing of women with family histories of breast cancer, genomics is rapidly becoming a fixture in our lives. Genomics and Society: Expanding the ELSI Universe, a three-day conference on the vast number of … "NHGRI has been the major funder of ELSI research since the beginning of the Human Genome …