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Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… will focus on the following topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data … NIH Data Sharing and Management Policy NHGRI’s Data Sharing Policies … The National Human Genome Research Institute hosts an informational webinar, …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… standards available for qualitative interview data? NHGRI recognizes that methods for de-identification of qualitative data are developing, and existing tools may have limitations. … Services NIST’s tools for de-identification Guidance on sharing images from the National Cancer Imaging Archive The …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… backgrounds to help implement computational genomics and data science materials at their schools! October 2023 … The Office of Genomic Data Science (OGDS) was established in 2021 to: Develop, … Provide guidance for NHGRI’s implementation of NIH data sharing policies , and promote the proper governance, …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… The NHGRI Genomic Data Science Working Group facilitates a deeper engagement of the National Advisory Council for Human Genome Research on complex issues at the interface between genomics and data science. … a subcommittee of the National Advisory Council for Human Genome Research . The working group has been charged with …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of policy and scientific research is critical to defining good policy. … Strengthening the Policy Workforce The National Human Genome Research Institute (NHGRI) and the American Society …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… Policy Issues in Genomics … of genomics research in our work, including these key policy issues. … of genomics research in our work, including these key policy issues …
Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… Thank you for visiting genome.gov and reviewing our privacy policy. The U.S. Department of Health and Human Services, of … as google.com or bing.com); and, Demographic and interest data. We use this information to measure the number of … you as an individual. Methods of Collecting Information Genome.gov uses Google Analytics and Alexa to collect …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… illustrations and other information on National Human Genome Research Institute (NHGRI) websites are in the public … acknowledgement, such as: "Courtesy: National Human Genome Research Institute" with a link back to genome.gov. … text Previously copyrighted text is published on genome.gov from time to time with the permission of the …
Office of Genomic Data Science
NHGRI is committed to increasing the availability of educational and research opportunities in computational genomics and data science (CGDS).
… and research opportunities in computational genomics and data science (CGDS). Through recent funding announcements for … foundation in CGDS and facilitate the development of the data science and genomics workforce. For CGDS educational … tools, and services available on NHGRI's Genomic Data Science Analysis, Visualization, and Informatics …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research. … Data Types NHGRI encourages sharing of all genomic data and … to, single nucleotide polymorphism (SNP) array data, genome sequence data, transcriptomic data, epigenomic data, …