Search Results
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the translation of data into knowledge, products and procedures that improve health while protecting the privacy of research participants. The final policy was posted in the Federal Register Aug. 26, 2014 and …
Administrative
NHGRI branch responsible for education and community involvement programs to increase understanding of genomics and its ethical, legal, and social issues.
… The Education and Community Involvement Branch (ECIB) develops education and community involvement programs to engage a broad range of … the dissemination of information to teachers, students, and consumers. The branch acts as a liaison between the NHGRI and … Branch Staff …
News Release
Laura Koehly, Ph.D., has been named chief of NHGRI's Social and Behavioral Research Branch.
… Laura Koehly, Ph.D., has been named chief of the Social and Behavioral Research Branch (SBRB) in the Intramural Research Program at the National Human Research Institute (NHGRI), … such as attention deficit hyperactivity disorder (ADHD) and rare genetic conditions with a significant impact on …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … studies collecting sensitive data; however, under the new policy, as of October 1, 2017, NIH-funded researchers and their institutions will automatically be issued a …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants policy. Those interested in applying for a specific grant solicitation will find references and links to relevant policies within the grant announcement. … is the principal federal agency responsible for biomedical and behavioral research and research training. As such, it is …
Policies and Guidance
For FY2024, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… that address issues in the NHGRI Strategic Vision and NHGRI Building a Diverse Genomics Workforce Action Agenda … of resources, approaches, technologies that accelerate and support studies focused on the structure and biology of genomes, as applied broadly to many biological …
Administrative
The Ethics Branch provides leadership, guidance and advice to NHGRI employees regarding ethical standards of conduct.
… of Ethical Conduct for Employees of the Executive Branch and the Supplemental Standards of Ethical Conduct for Employees of the Department of Health and Human Services. … to upholding the highest standards for patient safety and the ethical conduct of research. Such activities are …
Event
On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion exploring a constant tension at multiple levels in genomics research and medicine, from patient-provider interactions to research engagement with marginalized communities.
… tension that spans all areas of biomedical research and clinical practice is the question of how experts can act … is best for those individuals. On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion - Genetic … Striking the Balance Between Expert Perspective and Patient Autonomy …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… extramural research community, as well as other scholars and members of the public, and is overseen and approved by the National Advisory Council for Human … The NHGRI Extramural Research Program is developed and guided by: (1) periodic planning processes, as reflected …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… extramural research community, as well as other scholars and members of the public, and is overseen and approved by the National Advisory Council for Human … The NHGRI Extramural Research Program is developed and guided by periodic planning processes, as reflected in …