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News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data management practices would help support NIH's … NIH chief of staff and associate director for science policy, and NHGRI director, Dr. Eric Green. Additionally, …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… going to be a very busy one for NHGRI and for the field of genomics more generally. Many of us felt like we got “shot … research and what he is excited about for the future of genomics. As the title of the profile says, Neil “unravels … complexity of childhood diseases” and “aims to diversify genomics research.” All the best, …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… define genomic data as an identifier. However, NIH has policy protections in place to mitigate the risk of … risks to participants, including the Genomic Data Sharing Policy and the NIH Policy for Issuing Certificates of Confidentiality . … and sharing plan. As outlined in NIH's Supplemental Policy Information: Selecting a Repository for Data Resulting …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… non-human genomic data that are subject to the NIH GDS Policy to be submitted and released on the same timeline as … NHGRI data sharing policies. For general NIH data sharing policy information, please visit NIH's Scientific Data … Note: The NIH Data Management and Sharing (DMS) Policy ( NOT-OD-21-013 ) went into effect on January 25, …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and resources … NIH Data Sharing and Management Policy NHGRI’s Data Sharing Policies and Expectations NIH … Complete List of NIH Activity Codes Subject to the DMS Policy (PDF) Considerations for Researchers Working with …
Policies and Guidance
For most of FY20, NHGRI’s extramural program will be operating under the 2011 National Human Genome Research Institute (NHGRI) strategic plan.
… the science of medicine through the implementation of genomics; and improving the effectiveness of healthcare. … including the ethical, legal and societal implications of genomics (ELSI) research, clinical implementation of genomics, bioinformatics, technology development, and …
Policies and Guidance
For FY21, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… Vision for Improving Human Health at the Forefront of Genomics" in Nature . The development of this vision involved … focused on the structure and biology of genomes; the genomics of disease; the implementation and effectiveness of … training, developing, and expanding the diversity of the genomics workforce; and ethical, legal, and social issues …
Staff
Rebecca Hong is a scientific program analyst in the Policy and Program Analysis Branch at the National Human Genome Research Institute.
… Rebecca Hong is a scientific program analyst for the Policy and Program Analysis Branch (PPAB) at the National … Institute (NHGRI). Her responsibilities in PPAB include policy analysis, policy development, coding and reporting, workshop … Rebecca Hong, genomic policy, FDA regulation, genomic technology, legislation, AIDS …
Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
… possible. - Credit: NHGRI Special Considerations for Genomics Research and NIH Sample Language for Data and … you. - Credit: NHGRI Special Considerations for Genomics Research Example 2 Traditional identifying … information. - Credit: NHGRI Special Considerations for Genomics Research Example 2 Other researchers must get …
Policies and Guidance
For FY2024, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… in the NHGRI Strategic Vision and NHGRI Building a Diverse Genomics Workforce Action Agenda . Development of resources, … for genomes, cells, pathways, or populations). Functional genomics and functional characterization of genomic variation. Genomics of disease. Implementation and effectiveness of …