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News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary results for most of the studies we support in order to advance health or further research purposes. … distinct from other genomic research data, most notably in that they do not include individual-level information. …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… going to be a very busy one for NHGRI and for the field of genomics more generally. Many of us felt like we got “shot out of a cannon” shortly after January 1 — but in a good way with many exciting developments! I would like … research and what he is excited about for the future of genomics. As the title of the profile says, Neil “unravels …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… of Medicine's clinical text de-identification tool In some cases, the repository to which you're submitting data … Steps taken to remove direct and indirect identifiers in the data Description of software and analytical methods used in survey and interview data analyses R code used in survey …
Talking Glossary
La hibridación in situ es una técnica de laboratorio empleada para localizar una secuencia de ADN o ARN en una muestra biológica.
… Hibridación in situ … La hibridación in situ es una técnica de laboratorio empleada para localizar … La hibridación in situ es una técnica de laboratorio empleada para localizar … La hibridación in situ es una técnica de laboratorio empleada para localizar …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… bacteria, and animals. Editing DNA can lead to changes in physical traits, like eye color, and disease risk. … scientists to make changes to DNA, leading to changes in physical traits, like eye color, and disease risk. … cut. The first genome editing technologies were developed in the late 1900s. More recently, a new genome editing tool …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… to Register Controlled-Access Studies Study registration in dbGaP is required for large-scale human genomic studies, … Data Sharing Plan. Follow the standard process outlined in How to Register and Submit Your Study in dbGaP (Steps 1 – 6) to register your study in …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
… Techniques to modify DNA in the genome have existed for several decades, but the … tends to focus on the potential use of genome editing in humans, the main application of this technology has been in basic research. Editing the genomes of yeast, bacteria, … genome editing technologies shows the remarkable progress in this field and also relays the critical role that basic …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and resources … NIH Data Sharing and Management Policy NHGRI’s Data Sharing Policies and Expectations NIH … Complete List of NIH Activity Codes Subject to the DMS Policy (PDF) Considerations for Researchers Working with …
The Genomics Landscape
In May 4, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details a report released by the National Academies of Science, Engineering, and Medicine, that provided a series of recommendations for using population descriptors in future genetics and genomics studies.
… April 25, that highlighted relevant and interesting topics in genomics and concluded with the annual Louise M. Slaughter … As someone who previously led an active research program in comparative genomics, I was pleased to see a recent … et al. J Community Genet . 2023 Apr 12:1-9 PMC10092915 In the past 10 years, the ability to screen for genetic …
Fact Sheets
La hibridación fluorescente in situ brinda a los investigadores una manera de visualizar y mapear el material genético en las células de un individuo.
… La hibridación fluorescente in situ (HFIS) brinda a los investigadores una manera de … hfis.jpg] ¿Qué es la HFIS? La hibridación fluorescente in situ (HFIS) brinda a los investigadores una manera de … Hibridación fluorescente in situ … La hibridación fluorescente in situ brinda a los investigadores una manera de visualizar …