Search Results
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and analysis that enables the National … grantees and other external stakeholders, to address policy matters related to human genetics and genomics. PPAB …
News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications Research Program, a part of the Division … like CRISPR-Cas9 raise? The Ethical, Legal and Social Implications Research Program, is designed to bring … and social sciences, epidemiology, public health, public policy, genomics and clinical research - to study the …
15 Ways Genomics Influences Our World
Genomics is fostering an appreciation for what our DNA means for our health, identities and culture.
… anyone's genome sequence raises many issues regarding the social context of genomics. Information about our genomes is … your society? Continued studies of the ethical, legal, and social implications of genomic advances can help to break … human genome sequence would raise many ethical and social issues. In 1990, the Ethical, Legal, and Social …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… The Social and Behavioral Research Branch (SBRB) aims to develop … conduct research at the intersection of genomics and the social and behavioral sciences and train the next generation … research is aligned with the four themes below. The social context of genomic discovery We approach research with …
News Release
Four NIH grants will support research on the ethical, legal and social questions raised by genomics research advances and genomic information.
… of Health will support research on the ethical, legal and social questions raised by advances in genomics research and … (NHGRI) Centers of Excellence in Ethical, Legal and Social Implications Research (CEER) program. … Indian and Alaskan Native communities. "Many ethical and social problems are not solved by experts in a single …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… define genomic data as an identifier. However, NIH has policy protections in place to mitigate the risk of … risks to participants, including the Genomic Data Sharing Policy and the NIH Policy for Issuing Certificates of Confidentiality . … both generalist repositories and those geared towards social science. It would be great to have the ELSI community …
Research Funding
Fosters basic and applied research on the ethical, legal and social implications of genetic and genomic research.
… new, or particularly persistent, ethical, legal, and social issues related to advances in genetics and genomics. … These projects may explore and elucidate the personal, social and cultural factors that shape the generation, … projects may investigate the ethical, legal, social and policy issues that arise in connection with the design and …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… non-human genomic data that are subject to the NIH GDS Policy to be submitted and released on the same timeline as … NHGRI data sharing policies. For general NIH data sharing policy information, please visit NIH's Scientific Data … Note: The NIH Data Management and Sharing (DMS) Policy ( NOT-OD-21-013 ) went into effect on January 25, …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and resources … NIH Data Sharing and Management Policy NHGRI’s Data Sharing Policies and Expectations NIH … Complete List of NIH Activity Codes Subject to the DMS Policy (PDF) Considerations for Researchers Working with …
Event
On January 25, 2023, the National Human Genome Research Institute will hold a roundtable on social and behavioral genomics.
… - 1:40 p.m. — Moderated Discussion: Genetics in postwar social and behavioral research Moderator: Nayanika Ghosh, … project paused amid backlash by Katharine Sanderson Social and behavioral science at the forefront of genomics: … a 3-million-person GWAS of educational attainment” by the Social Science Genetic Association Consortium Problems with …