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News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… Communication and Public Liaison Branch … of Health (NIH) issued a notice in its Guide to Grants and Contracts seeking public comment on a proposed update to the data management of … of staff and associate director for science policy, and NHGRI director, Dr. Eric Green. Additionally, experts from …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and analysis that enables the National Human Genome Research Institute (NHGRI) to pursue its mission. … stakeholders, to address policy matters related to human genetics and genomics. PPAB promotes policies that facilitate …
Professional Development Programs
The National Institutes of Health (NIH) seeks qualified physicians, physician assistants, nurse practitioners, pharmacists, and genetic counselors interested in acquiring credentials and experience to lead genomic medicine research and implementation programs at the NIH, major medical centers, and other organizations.
… to learn about grants management, collaboration and leadership. An immersive experience in various settings, …  The level of exposure to great leaders in the field of genetics and genomics has been incredible. For a person like … position: Program Director, Division of Genomic Medicine, NHGRI  The NIH-ACMG Fellowship continues to exceed my …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… Patients with genetic disorders and members of the public, both in the United States and around the world, have diverse views about whether … Patients, patient advocates, and families of patients with genetic disorders have diverse … Pew Research Center, a nonpartisan group that polls the public on a variety of topics, conducted a survey  to …
Event
As the National Institutes of Health’s Newborn Sequencing in Genomic Medicine and Public Health (NSIGHT) program comes to a close, the NSIGHT program holds a public webinar on June 24, 2019, during its final steering committee meeting.
… of Health’s Newborn Sequencing in Genomic Medicine and Public Health (NSIGHT) program comes to a close, the NSIGHT program holds a public webinar on June 24, 2019, during its final steering … NSIGHT Final Public Session … of Health’s Newborn Sequencing in Genomic Medicine and Public Health (NSIGHT) program comes to a close, the …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… NHGRI is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that genomics benefits the health of all humans. To do this, we consider the ethical, legal, and social aspect of genomics research in our work, including …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing … Whenever possible, NHGRI strongly encourages studies involving human data to use … all data types. However, at this time the NIH GDS Policy and NHGRI implementation plans apply particularly to single …
Policies and Guidance
A list of reports, documents, workshop summaries and other works published by NHGRI.
… A list of reports, documents, workshop summaries and other works published by the National Human Genome Research Institute (NHGRI). … 2019 NHGRI Brochure A brochure that highlights NHGRI's focus on … its new organizational mantra, THE FOREFRONT OF GENOMICS®, and the exciting areas that will be explored during its 2020 …
Event
On Tuesday, December 17, 2024, ASHG and NHGRI co-host an informational webinar about Post-Baccalaureate Genomics Analyst Fellowship program for potential applications.
… ASHG Panelists … NHGRI Panelists … Are you interested in learning more about the ASHG-NHGRI Genomics and Public Service Post-Baccalaureate … multiple career paths that advance public service in human genetics and genomics. Training will focus on services for … Informational Webinar: ASHG-NHGRI Post-Baccalaureate Genomics Analyst Fellowship …