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Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… Thank you for visiting genome.gov and reviewing our privacy policy. The U.S. Department of Health and Human Services, of … visited; Address of the Web site that connected you to an NIH Web site (such as google.com or bing.com); and, Demographic and interest data. We use this information to measure the number of …
Office of Genomic Data Science
NHGRI is committed to increasing the availability of educational and research opportunities in computational genomics and data science (CGDS).
… and research opportunities in computational genomics and data science (CGDS). Through recent funding announcements for … cloud workspaces, tools, and services available on NHGRI's Genomic Data Science Analysis, Visualization, and Informatics … (AnVIL) , the All of Us Researcher Workbench , and other NIH cloud-based platforms. By coordinating with these …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… will abide by the same provisions as the NHGRI Copyright Policy. Please read our full external link disclaimer for … Copyright Policy … NHGRI Copyright Policy, Image Use Policy, Public Domain Imagery, Genomics Information, Genomics …
News Release
NIH programs are establishing which genes and genomic variants play a role in human disease, enabling use in medicine and research.
… Institutes of Health are establishing which genes and genomic variants play a role in human disease, enabling their use in genomic medicine and research. NIH's Clinical Genome Resource ( ClinGen ) and ClinVar … is stored in ClinVar, which is funded and maintained by NIH's National Center for Biotechnology Information, part of …
NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… Cristina Kapustij, M.S., has been named chief of the Policy and Program Analysis Branch (PPAB) at the National … Institute (NHGRI). In her new role, she will oversee policy activities and evaluation as well as program reporting … mission is to promote the understanding and application of genomic knowledge to advance human health and society. "Ms. …
News Release
NHGRI researchers have developed the Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook, which helps people use their family history to assess their risk for heart disease, diabetes, breast cancer and colorectal cancer.
… (NHGRI), part of the National Institutes of Health (NIH), have developed the Families Sharing Health Assessment and Risk Evaluation (SHARE) … journal Public Health Genomics , the researchers published data gathered from questions on the efficacy of the workbook …
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed … aims to enhance synergies in the areas of bioethics, policy, education, engagement and communication. Notice of … To send questions and comments, email NHGRIsocial@nih.gov  or use the hashtag #NHGRIreorg on social media. …
Research at NHGRI
Families Sharing Health Assessment and Risk Evaluation (SHARE) helps you and your family learn how your family health history affects your risk for diseases.
… NIH researchers expand Families SHARE, an educational … on recruiting and engaging Black men in a community-based genomic education program . BMC Public Health 25, 805 (2025). … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… available regarding the DMS Policy, where should I start? NIH resources regarding the DMS Policy are available on the NIH Scientific Data Sharing site. Consider starting with the e-Learning … NHGRI has released some Considerations for Sharing Non-Genomic Data from Human Research Participants. …
The Genomics Landscape
In the April 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. talks about the NIH UNITE program's goal to end structural racism in biomedical research.
… biomedical research, to science education and outreach, to data science policy and strategy. But before you get to those stories, I … last month’s issue of The Genomics Landscape , the NHGRI Genomic Data Science Working Group of the National Advisory … framing that consistently examines the role of both genomic and non-genomic contributors to health and disease — …