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News Release
The Clinical Sequencing Exploratory Research Consortium has offered an ethical framework to guide pediatricians in pursuing clinical sequencing studies.
… states. Pediatricians, in particular, face complicated ethical questions about what information they should disclose, and to whom, when genome sequencing uncovers signs of … Exploratory Research (CSER) Consortium has offered an ethical framework to guide pediatricians in pursuing clinical …
Research Funding
The following are research areas of interest that have been identified by the participating NIH institutes, centers, and offices (ICOs) on the investigator-initiated ELSI Research Grants (R01, R21, R03). Program Officer(s) contact information is also included for each ICO.
… identified by the participating NIH institutes, centers, and offices (ICOs) on the investigator-initiated ELSI … on a wide range of topics. ELSI research addresses the new and sometimes unexpected ways that genomics interacts with … understanding of genomics, as well as the surrounding social and physical environments, interact with long-held …
Event
On January 25, 2023, the National Human Genome Research Institute will hold a roundtable on social and behavioral genomics.
… 1:00 - 1:10 p.m. — Welcome and Introduction Eric Green, NHGRI Christopher Donohue, NHGRI … - 1:40 p.m. — Moderated Discussion: Genetics in postwar social and behavioral research Moderator: Nayanika Ghosh, Harvard … paused amid backlash by Katharine Sanderson Social and behavioral science at the forefront of genomics: …
Event
To bring together communities of researchers working in machine learning (ML), NHGRI hosted the Machine Learning in Genomics: Tools, Resources, Clinical Applications and Ethics workshop on April 13-14, 2021.
… Institute Keynote Session: What are the opportunities and challenges for ML in genomics research? Moderator: … 2:15 p.m. - Q&A Session 2:45 p.m. - Break Session 2: Ethical, Legal and Social Implications (ELSI) of machine learning in … Craven, Ph.D. , University of Wisconsin Session 3: Data and resource needs for machine learning in genomics …
Event
The purpose of this semi-annual lecture series is to bring distinguished researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community.
… The Social and Behavioral Research Branch (SBRB) Seminar … researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community. … Social and Behavioral Research Branch Seminar Series … researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH …
Staff
Leonard Ross is the director of the Ethics Branch at the National Human Genome Research Institute.
… Ross, J.D., M.B.A., is the director of the Ethics Branch and the ethics coordinator of the National Human Genome … Institutes of Health (NIH). Mr. Ross has a Bachelor's and Master's degree in Business Administration (Health Care … (J.D.) from the University of Baltimore School of Law and is admitted to practice in Maryland, Pennsylvania and the …
Event
November is Family Health History Awareness Month! To celebrate, the National Human Genome Research Institute will host several engagement events over social media on Wednesday, November 17.
… Institute will host several engagement events over social media on Wednesday, November 17. We encourage you and your organizations to join in and help amplify our Institute’s mission to increase genomic … Family Health History Social Media Campaign … Institute will host several engagement events over social media on Wednesday, November 17. …
News Release
Two grants will support studies on genomic literacy among Africans relating to research conducted in Africa by African investigators.
… The three-year grants are part of the Human Heredity and Health in Africa (H3Africa) program, funded by the … about disease susceptibility. Both grants are part of the Ethical, Legal and Social Implications (ELSI) component of H3Africa. … concepts, Nigeria cultural and language genomics research, Ethical, Legal and Social Implications, ELSI, genomics …
Media Advisory
On January 25, 2023, the National Human Genome Research Institute will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their benefits, limitations and potential for misuse.
… of Health will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their benefits, limitations and … Social genomics is a field of emerging research that suggests … complex social behavior. Panelists will discuss genetics and genomics studies that may be stigmatizing as well as …
Staff
Dr. Laura Koehly is the chief of and senior investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.
… Laura M. Koehly, Ph.D., is chief and senior investigator in the Social and Behavioral Research Branch, National Human Genome … Under Dr. Koehly's leadership, the Social Network Methods Section focuses on three main scientific goals: 1) develop methods that measure and model the complexities of relational systems, 2) use such …