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Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply with 508 … External Link Disclaimer, Non-federal Websites, Website Policy, Federal Policy, NIH Website Policy …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… The Office of Genomic Data Science (OGDS) was established in 2021 to: Develop, promote, support and coordinate genomic data science activities  across all parts of NHGRI. … as the coordinating hub for NHGRI involvement in trans-NIH genomic data science efforts and in national and …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… Human Genome Project. While many recognize that sharing genomic data is critical to scientific progress, considerable … privacy and other concerns have been raised over sharing genomic data too broadly and openly. It is immensely … to balance these benefits and risks while crafting genomic data sharing policies. In this session, the four …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… out that we have added a new temporary section to The Genomic Landscape , one that highlights the “Guiding … opportunities, solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee … on January 25, 2023. NHGRI has a long history of sharing genomic data and strongly supports NIH’s in these increased …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… human deafness so that they can better understand the genomic basis of deafness.  … tools have the potential to help treat diseases with a genomic basis, like cystic fibrosis and diabetes. There are … CRISPR-Cas9, Genome Editing Technology, Genome Editing, Genomic Technology, Gene Editing, Gene Therapy, DNA Editing …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
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… CRISPR-Cas9, Genome Editing Technology, Genome Editing, Genomic Technology, Gene Editing, Gene Therapy, DNA Editing … Policy Issues …
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… of Genomics and Society in light of changes in genomics, genomic medicine, and the policy landscape, aiming to identify emerging issues or gaps. … among the different Genomics and Society research and policy components of NHGRI (noting that formal oversight of …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in … for future research use and broad data sharing of all genomic data derived from human sources, such as specimens …
The Genomics Landscape
In the September 3, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about the Impact of Genomic Variation on Function (IGVF) Consortium, the 2020 Genomic Innovator Awards and more.
… of the central challenges in biology is understanding how genomic variation affects genome function to influence … multiple funding opportunities to establish the Impact of Genomic Variation on Function (IGVF) Consortium , the … for systematically examining the relationships among genomic variation, genome function, and phenotypes. Over the …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… Policy Issues …