Search Results
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and resources … NIH Data Sharing and Management Policy NHGRI’s Data Sharing Policies and Expectations NIH … Complete List of NIH Activity Codes Subject to the DMS Policy (PDF) Considerations for Researchers Working with …
The Genomics Landscape
In May 4, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details a report released by the National Academies of Science, Engineering, and Medicine, that provided a series of recommendations for using population descriptors in future genetics and genomics studies.
… April 25, that highlighted relevant and interesting topics in genomics and concluded with the annual Louise M. Slaughter … As someone who previously led an active research program in comparative genomics, I was pleased to see a recent … et al. J Community Genet . 2023 Apr 12:1-9 PMC10092915 In the past 10 years, the ability to screen for genetic …
Fact Sheets
La hibridación fluorescente in situ brinda a los investigadores una manera de visualizar y mapear el material genético en las células de un individuo.
… La hibridación fluorescente in situ (HFIS) brinda a los investigadores una manera de … hfis.jpg] ¿Qué es la HFIS? La hibridación fluorescente in situ (HFIS) brinda a los investigadores una manera de … Hibridación fluorescente in situ … La hibridación fluorescente in situ brinda a los investigadores una manera de visualizar …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… NHGRI's Table of State Statutes Related to Genomics provides the total number of states that have enacted legislation on the topics in the database, together with a description of each topic. … is reviewed and updated monthly. Searchable topics in the database include employment and insurance …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… center around human germline because editing changes made in the germline would be passed down to future generations. … to make such editing more accurate and even "easy" in comparison to older technologies. Bioethicists and … banned research on germline editing, including 15 nations in Western Europe, because of ethical and safety concerns. 3 …
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… funded by NHGRI or other NIH Institutes takes place in the petri dish and in nonhuman organisms such as mice or zebrafish. Researchers … (traits). A typical study might be to model human disease in mice by deleting or editing certain genes that are thought … many cell types but by definition they also change genes in reproductive cells (like sperm and eggs). These changes …
Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
… and may be shared broadly and used for future research in a manner consistent with the participant’s informed … will be stored for an unlimited period of time to be used in future research. The research may be about similar … possible. - Credit: NHGRI Special Considerations for Genomics Research and NIH Sample Language for Data and …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… In October 2020, NHGRI published its “ Strategic Vision for Improving Human Health at the Forefront of Genomics ” in Nature . The development of this vision … of the genomics workforce; and ethical, legal, and social issues related to genomic advances. … guided by: (1) periodic planning processes, as reflected in the strategic plan referred to above, as well as earlier, …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… In October 2020, NHGRI published its “Strategic Vision for Improving Human Health at the Forefront of Genomics” in Nature . The development of this vision involved … of the genomics workforce; and ethical, legal, and social issues related to genomic advances. …
Policies and Guidance
For FY2024, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… Scientific Priorities Applications that address issues in the NHGRI Strategic Vision and NHGRI Building a Diverse Genomics Workforce Action Agenda . Development of resources, … will reduce both new competing and non-competing awards in FY 2024 by 2%, after any administrative and programmatic …